Parkinson’s Disease Blogs

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  • An Apple A Day…
    My very first personal computer was a used Windows 95 laptop purchased in 1998. It served us well for many years while we travelled the country in our RV. It was small and didn't take up much space, but then it had a dreaded "blue screen of death" episode and crashed. I ... read more
    Source: Parkinson’s HumorPublished on 2017-11-16
  • I Said, Late-Breaking Meeting, Speech Therapy for PD
    Hi folks, I just received a note from Rock-Star speech pathologist Anne Ver Hoef who has this to say "I’m organizing a PD speech group: meeting Monday, Nov 13 at 4:00 pm at Denny’s on DeBarr Rd, back room. I️ have invited several people but got behind in timeliness. Sorry ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2017-11-11
  • My Parkinson’s Journey: Post Deep Brain Stimulation Update
    Hi. Time for another update. Some new news to report, as well as updating for old news.https://www.youtube.com/embed/TURY-p53dOw ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-11-03
  • A new episode of The PD Pundit (He's only trying to help) Hot on the trail of a Parkinson's cure is up over at ParkinsonsDisease.net. Today's topic, the rapid acceleration of PD care. ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2017-10-31
  • R.I.P. Bob Rinehart, Longtime APDSG member
    Bob at the picnic last SummerI'm sorry to report Bob Rinehart, the genial Texan in the old-fashioned suspenders, has died. According to Caroline, his wife, Parkinson's Disease did not play a major role in Bob's final hours as he was also coping with cancer and other ailments as well. Not ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2017-10-24
  • Deep Brain Stimulation Scheduled!
    I recently went live on YouTube (for the first time) to update everyone about new information concerning my DBS (deep brain stimulation) surgery. I discussed what DBS is, and the process I'll experience having it done.Below are the three embedded videos. There are three of them, because the feed was ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • DBS News
    Greetings!I decided it would be much quicker to type this out, as my fingers seem to be doing fine at the moment and it will be quicker, I hope. Plus, good to have this info in print rather said in a video blog.Plans are going full steam ahead on getting ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • MRI Experience
    Yesterday, I went to the hospital to get an extensive MRI done in preparation for my DBS surgery on the 27th. Although it was outpatient, they did the whole nine yards down to carting me on a bed through the halls.In this video, I relate my experiences of the event. ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • I Am Now in Guinea Pig Status
    Received a call from my neurosurgeon today that he is switching to the new machine for the Deep Brain Stimulation leads insertion surgery on 9/27.You may recall from previous posts that the neurosurgeon had told me that the hospital was getting in a relatively new DBS machine that would not ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • Current PD Symptom Status
    In this video, about 35 minutes long, I detail where I'm at both in the medications I'm taking and the symptoms I currently have which I expect to show improvement when my DBS surgery takes place, gets turned on, and programmed. Below the video, I've included the notes of my ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • Welcome to the Journey
    I wanted to post a quick blog entry. One, to welcome the new people who signed up to the blog for my journey in DBS coming up next 3 weeks. Two, to test out writing a blog post on my phone since I may be doing that in the hospital ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • My DBS Journey: Day 1 – 9/25/17
    My first day's blog is here on this DBS journey of mine. The video is below.I apologize for the sound quality. My headphones had run out of power so I had to use the computer's built in mic, which isn't real great. But turn your volumes up to maximum and ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • My DBS Journey: Day 2 – 9/26/17
    Time for my daily DBS adventure update. Day 2: CT Scan.I'm also off my medications now, which means no dyskinesia but more PD symptoms. You'll get a view of that on the video. ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • My DBS Journey: Day 3a – Thank You!
    I wanted to say thank you to everybody who supported me and is praying for me and my family during the surgery today. I've got a ton of people praying, and that is comforting. God's got this!I hope to see everybody on the other side and be in good shape ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • My DBS Journey: Day 3b – Delay
    Surgery has been delayed for 2 hours. I'll be getting out pretty late so it will probably be pass the time the email will to go out. I'll let you know what happens as soon as we know something, thanks. ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • My DBS Journey: Day 3c – Results
    Hi everyone. Good news, I made it! Surgeon said he was real happy with the lead placement. That I should be able to get a good outcome with programming. I'm feeling fine and doing well. The experience was very interesting. I'll tell you more about it later. For now, know ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • My DBS Journey: Day 6 – The Experience
    I told you I'd give you some more of my experience in going through DBS. Well, here it is. In full, living color! As much color as word can convey, anyway.So without further notice, here is my video. Enjoy!https://www.youtube.com/embed/y_G15DDhCEo> ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • My DBS Journey: Day 7 – Recuperating
    A quick text post to let you all know that today I've spent some time recuperating like a good, little patient.We woke up, had breakfast, had a service (read the 6th hour since it was just past noon at that point along with the scripture reading for today, then discussed ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • My DBS Journey: Day 8 – Feeling Better
    Feeling better today. Here's today's video. Have fun!https://www.youtube.com/embed/stW1M6z0E7w ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • My DBS Journey: Day 9 – Ready for Stage 2
    Yep, I'm ready for the next surgery. Bet you rarely have anyone else say that!But this is the surgery when the battery is installed and turned on. I will finally be rid of this medication roller coaster for a while.Here's the video. Don't look your gift horse in the mouth. ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • My DBS Journey: Day 10 – The Battery Install
    Not much to add here. Hard to type, so here it is.https://www.youtube.com/embed/myTr7jF6tf0 ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • My DBS Journey: Day 11 – More Recovery
    Hello. Welcome to my blog. Today, I'm going to give you more details on my recovery. Thanks for watching.https://www.youtube.com/embed/TEQT2BVFBzY ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • My DBS Journey: Day 12 – More of the same
    Just a quick, late night update. Still recovering. Felt better today. Would have been a much better day save for several hours of the day spent on the toilet. Measures taken. Looking forward to a better day tomorrow.Util then. ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • My DBS Journey: Day 15 – Preparing for Programmimg
    Down to the final stage of this process: programming and turning it on!Finally!Here's the video the day before programming.https://www.youtube.com/embed/30NG0fMYSG4 ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
  • You ARE your disease after all. Bummer.
    Mariette Robijn   We have a lot on our plates with Parkinson’s – accepting, letting go, embracing, exercising, resting, eating healthy, sleeping well, and goodness knows what else. Meanwhile, Parkinson’s continues to threaten your brain on all fronts, while your leg shuffles and your hand trembles. You’re acutely aware that ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2017-10-18By marietterobijn
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