Newsfeed:
- Planet Patient vs Planet Researcher – from both sides now (by Frank Church)
Mariette Robijn This thoughtful blog was written by Frank Church, as a follow-up on Simon Stott’s ‘rebuttal’ of my blog ‘Planet Patient vs Planet Researcher’ About Frank Church: Medical school and undergraduate biology educator, biomedical science researcher and part-time golfer. My diagnosis of Parkinson’s Disease, combined with my career in science ... read more - Hanging Out With The Guys
I'm not normal and I am not ashamed to admit it. I prefer to hang out with the guys. If given a choice of getting dressed up and going to a fashion show luncheon with a group of ladies OR putting on old jeans and a t-shirt and watching the ... read more - Brief Report: Link Between Physical Activity and Health-related Quality of Life in Parkinson’s
“The body achieves what the mind believes.” Jim Evans “Life is like riding a bicycle. To keep your balance, you must keep moving.” Albert Einstein Overview: Dr. Ehlen and associates work in the Department of Neurology, Charité-University Medicine, Berlin, Germany and Faculty of Psychology and Neuroscience, Maastricht, Netherlands. Their publication ... read more - Brief Report: Benefit of Probiotic Supplements in Parkinson’s
“Taking probiotics is a habit that can really benefit the digestive system, which is intricately connected to our overall health.” Dr. Michael F. Roizen “Compelling new studies are showing how probiotics can help keep healthy people healthy. One study showed a decreased incidence of common infectious diseases among kids in ... read more - Peripatetic Pete, Looking for a VolunteerGreetings Parkinspeople and those who love them, I'm looking for a volunteer to host our next two support group meetings as I will be away visiting family far, far from Alaska. If you can attend the meetings, greet newcomers and help foster a discussion about Parkinson's Disease, this is the ... read more
- My Recent Findings and a Move.I wanted to give a quick update on my last post. Yes, I've definitively noticed a difference on my symptoms as per the plant-based diet. How, you may ask?Simply, I've cheated on occasion, as I indicated in my original statement I would. That is, on special occasions, I would eat ... read more
- Journey with Parkinson’s: Brief Reports on Current Research/Issues
“There is a single light of science, and to brighten it anywhere is to brighten it everywhere.” Isaac Asimov “Live neither in the past nor in the future, but let each day’s work absorb your entire energies, and satisfy your widest ambition.” Sir William Osler Introduction: For the following reasons, ... read more - Tenacity and Parkinson’s
“Let me tell you the secret that has led me to my goal. My strength lies solely in my tenacity.” Louis Pasteur To succeed in life in today’s world, you must have the will and tenacity to finish the job.” Chin-Ning Chu Definition of Tenacity: <noun te·nac·i·ty ... read more - Our July Support Group Meeting: Annual Parkinson’s PinicAN INVITATION Summertime, and the livin' is easy... unless you have Parkinson's Disease, in which case the livin' is difficult, no matter what the season. It is however, easier than the livin' in Winter, and that calls for a celebration. But how to acknowledge this season of nature's bounty and ... read more
- Dopamine Agonists and Impulse Control Disorders in Parkinson’s
“Whenever you are immersed in compulsive thinking, you are avoiding what is. You don’t want to be where you are. Here, Now.” Eckhart Tolle “Somewhere between obsession and compulsion is impulse.” Alexander Pushkin Introduction: In the latest issue of Neurology (June, 2018), Dr. Corvol and collaborators in Paris, France, present ... read more - Planet Patient vs Planet Researcher: From Both Sides, Now
“I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn- She lives in the Netherlands and was diagnosed with Parkinson’s at the young ... read more - Plant-Based Diet, All the Way!My last post centered around how I would go on a plant-based diet to see how it might help my symptoms. After doing some more research, I know that I'm on the right track. Even if it doesn't help my Parkinson's symptoms, it will certainly be a more healthy way ... read more
- Daily Inspiration (Mantra) from the 2018 PWR! (Parkinson Wellness Recovery) Retreat
“One of the hardest things in life is having words in your heart that you can’t utter.” James Earl Jones “Good actions are a guard against the blows of adversity.” Abu Bakr Introduction: A new part of the recently completed PWR! (Parkinson Wellness Recovery) retreat for 2018 in Scottsdale, AZ ... read more - Parkie Prophet Predicts Panoply of PD-related Summer MeetingsWho can say what the future holds? Well, good news, I can! At least as far as next two meetings of the distinguished APDSG are concerned. Our upcoming meeting will be held June 16th. We will have a presentation on hallucinations and delusions in PD from Gail Howshikowa. Gail is ... read more
- I don’t believe in Parkinson’sMariette Robijn Obviously I know I’ve got Parkinson’s. But I don’t believe in it. You tend to believe in things that you don’t have or cannot grasp. Things that are intangible. You need faith, in other words, to keep believing. I believe in the child that we lost – I ... read more
- World Parkinson Congress – Final Day
We were up early today and had breakfast with Pertti and a grad student from India. That's one of the brilliant ideas behind the World Parkinson Congress. Doctors, researchers, grad students, therapists and people with Parkinson's and their care-partners are all treated as equals and may attend any program they ... read more - World Parkinson Congress – Day Two
The theme for Day Two was inspiration! Read on.We got to breakfast at our hotel earlier today and sat with Jari and his room mate, Pertti, from Finland. Jari and I had been emailing each other during the summer. Jari also had DBS for his Parkinson's disease . His bumps ... read more - I’ve Gotta Speakin’ Problem
The title of this story reminds me of a country song by David Ball called Thinkin' Problem. The opening lyrics are: Yes, I admit I've got a thinkin' problem,She's always on my mind, Her memory goes round and round, I've tried to quit a thousand timesMy new lyrics would be: Yes, I admit I've ... read more - Return of the Return of the PD Pundit
Scarcely two weeks have gone by since I last posted the appearance of a new PD Pundit comic. And now here comes a new one, all shiny and bright! This one is about the necessity of adapting to our new reality, and how to remake your passion in a way ... read more - Your Local Drug Dealer
If you have Parkinson's disease, you should get to know your friendly drug dealer, also known as your pharmacist. They know more about Parkinson's medications, side effects, as well as food, drug and supplement interactions than even the best Movement Disorder Specialist. Why? Because that's their job.A local pharmacist named ... read more - Where the Heck is Yuma?
There are many people who LIVE in Arizona who don't have a clue where Yuma is, so don't feel bad if you don't know. Yuma (pronounced YOU-mah) is in the southwest corner of Arizona. Occasionally, someone will call it YUMM-ah, which I find humorous. The Colorado river separates Yuma from ... read more - Planet Researcher to Planet Patient (by Simon Stott)Mariette Robijn Simon Stott is a researcher who makes the unusual effort of explaining the science and research that is currently being conducted on Parkinson’s disease in plain English. He made an even more unusual effort by writing an answer to my blog “Planet Patient vs Planet Researcher.” From his site ... read more
- My Parkinson’s Life Style Eating Plan
I’ve been on the Keto diet, as well as several other Paleo and plant-based diets in hopes they would help my Parkinson’s symptoms. When my wife and I decided to get serious with our eating life style again, we looked at our options and our focus turned back to doing ... read more - Return of the PD Pundit: Conveying Visually What it Feels Like to Have Parkinson’s
Hey folks, a neo-graphic experiential Parkinson's opportunity shared here! (Translation from Jargonizer: New comic showing how having Parkinson's Disease feels from the inside). For those of you who prefer not to know, or who already know, here's a link to a great spoken word piece about escaping from jail by ... read more - Planet Patient vs Planet ResearcherMariette Robijn If you’ve got Parkinson’s, you tend to think that all those researchers should just get a blooming move on and find a cure. Or an effective therapy at the very least. I trust you researchers think the same. Yet, patients are on a totally different planet to researchers. ... read more
