Parkinson’s Disease Blogs

To Keep the Memory of Charlotte Forten Grimké Still are there wonders of the dark and day:    The muted shrilling of shy things at night,       So small beneath the stars and moon;    The peace, dream-frail, but perfect while the light       Lies softly on the leaves at noon.          These are, and these will be              Until ... read more

“In these matters the only certainty is that nothing is certain.” Pliny the Elder “Knowledge is an unending adventure at the edge of uncertainty.” Jacob Bronowski Précis: There are many motor and non-symptoms in Parkinson’s, which gives us our own individual expression pattern of this chronic neurodegenerative disease. A common thread we share is linked to the eventual and slow ... read more

Saturday 24 August 2019“What’s wrong? Is there something you want to talk about?”Clara had a look on her face that I have come to recognise. We had just returned from an overnight trip to Sussex for my birthday and she looked concerned.There was silence for a while. She seemed reluctant to speak but eventually came out with it.“It’s your driving. ... read more

A diagnosis of Parkinson’s disease (PD), like any other chronic and incurable disease, can be life-altering, scary, and nerve-wracking. There are a lot of misconceptions about PD, and being aware of misinformation… ... read more

Wow! That was intense. I was just sitting in the “pause between” with no expectation beyond a quiet mind, allowing the moment to bloom. Suddenly, the moment transformed into this encompassing sense of being caressed by calmness. Even more surprising, the calm stayed with me for part of the day, and it came with the near absence of pain. The experience ... read more

                Since being diagnosed with Parkinson’s disease almost 10 years ago… Geez. I guess it’s true what they say, “Time flies when you’re having fun”. I have no idea who “they” are, but “they” seem to be ... read more

I have been writing this blog just over 2 years now. I looked back on my first entry. Seemed innocent enough, just wanted to blog about my Parkinson’s a bit and if it helped someone else with Parkinson’s then cool. This was supposed to be a place for me to vent and a place to share my experiences. One thing ... read more

Ever since I can remember, I have had this idea that summer is a great time to be outdoors. However, I’m dead wrong on much of this argument, especially with regards to… ... read more

For me, it’s about love. ... read more

At the top of a Colorado mountain, I realize that my phone has just a single bar of service. I drop to the dusty ground, frantic to contact my dad. He’s going into surgery for deep brain stimulation (DBS) today, and I haven’t had the chance to tell him how much I love him. “Dad,” I text anxiously, “I’m in ... read more

I had the symptoms long before the diagnosis. They started back in high school. By the age of 32, I was looking for answers, but finding the wrong ones. I didn’t find the right answer until 10 years later: Parkinson’s disease. While exploring the internet, I found Daily Strength… When I was diagnosed, I didn’t know where to turn ... read more

On December 18, 2018, the United States Food and Drug Administration (FDA) approved the use of focused ultrasound therapy for the treatment of tremor-dominant Parkinson’s disease (PD) with the use of the… ... read more

Although there aren't a lot of drugs that treat the symptoms of Parkinson's, there's enormous variability in how much is needed - and even if side effects can get in the way of using a medication.The "gold standard" drug is levodopa, often teamed with carbidopa to reduce nausea and increase levodopa effectiveness.  But there's no "standard dose."  Newly diagnosed pwp ... read more

The other day I did something stupid. Really stupid.  I love to putter in my garden on beautiful days. Only on this beautiful day, I crossed the line. My puttering turned into work, and before long, I was sweating bullets — shotgun-sized bullets on a 98-degree day. Yet, I kept going.  I kept going because I didn’t have the good ... read more

To promote an enriched environment for everyone, I’ve attached a short story, “Kaboom!”, that I’m working on. If you have any feedback or questions, please leave a message at the bottom of the screen. Much obliged, and happy reading! KaboomDownload The post Enriched Environment: Kaboom! appeared first on Parking Suns. ... read more

Announcing the first ever International Table Tennis Federation Parkinson’s World Table Tennis Championship! Where: Westchester Table Tennis Center, 175 Tompkins Avenue, Pleasantville, NY 10570, United States of America (about 1 hour by train from New York City’s Grand Central Station) When: October 11 – 13, 2019 Who: Open to anyone with Parkinson’s, no matter what your level of ping pong ... read more

Roaming aroundOur supermarket but neverBuying anything, just alwaysOmnipresent, his teeth areText. The post Acrostic Poem appeared first on Parking Suns. ... read more

This is the most unselfish, selfless group of men and families I've ever been around. This is rare in this day and age. Rare in a microwave society where it's all about entitlement, and all about when do I get to play ... read more

As anyone with Parkinson’s disease (PD) knows, PD is a chronic, degenerative movement disorder that can greatly affect quality of life. But in my alternate career as a dance fitness instructor, I… ... read more

Well, I'll tell you . . . in this video. Yes, that's right, my first video blog in a while, pretty much since before we moved last year. I just installed the software onto my "New" laptop to record more professionally but I've yet to add the intros and other stuff to it. A future project.One thing I need to ... read more

Why does Grandma walk so silly? Why does her head bobble when she walks?my 4 year old grandson, Evan Sometimes we do not notice our symptoms, we are so used to living with them. Sometimes it takes someone else, even a 4 year old, to point out to us that yes, when we suspect that changes are occuring, it is ... read more

Betty slapped George hard. There was no response, so she dialed 911. Parkinson’s disease (PD) had forced George into early retirement. He loved basking in the sun, diving into a good book, and working on his tan on their deck. Betty was in the kitchen when she saw him slumped over in the chair. This wasn’t the first time George had ... read more

For over thirty years of my life, I have been some sort of a writer. Whether for fun with imaginative tales of the supernatural, for historical purposes with my life’s happenings, for… ... read more

Years ago, Harrison Ford played the role of Henry Turner, the main character in the movie “Regarding Henry.” Henry’s entire world shifts when he is shot in the head during a robbery at the convenience store where he was buying cigarettes. The nearly fatal injury puts him into cardiac arrest and he ends up with brain damage, specifically retrograde amnesia. ... read more

We know from research and general observation – even first-hand experience – that Parkinson’s disease (PD) can have a detrimental impact on nighttime sleep. People with PD may struggle to fall asleep… ... read more