Newsfeed:
- Managing Chronic Pain in Parkinson’s Disease
“Behind every beautiful thing, there’s some kind of pain.” Bob Dylan “You feel your strength in the experience of pain.” Jim Morrison An Aging Population with Chronic Pain: The definition of chronic pain is pain that continues beyond the expected time of healing. Chronic pain can increase frailty, and it’s ... read more - Pete’s Parkinson’s Portraits. Linda Ronstadt
... read more - Anchorage Parkinson’s Support Group Meeting for FebruaryHello hardy northern Parkspeople, there will be a meeting this Saturday of the Anchorage Parkinson's Disease Support Group. The topic will be humor and Parkinson's Disease. Everybody bring at least one funny story to tell concerning Parkinson's Disease. What's that you say? There's nothing funny about Parkinson's? Well I disagree. ... read more
- Brief Report: Contentment, Gratitude, and Mindfulness in the Presence of Parkinson’s
“Contentment is natural wealth.” Socrates “Gratitude makes sense of our past, brings peace for today, and creates a vision for tomorrow.” Melody Beattie “Mindfulness is the miracle by which we master and restore ourselves.” Thich Nhat Hanh Contentment, Gratitude, and Mindfulness: Living with Parkinson’s has brought me a lot; ... read more - YumaBev is a VIDEO star??
After almost two years of editing, the Lights, Camera, Action video my Wonderful Husband and I did about Medtronic DBS therapy for Parkinson's disease is finally available to be viewed. Click to play:I had watched some of the other Patient Stories online and was expecting mine to be 1 or 2 ... read more - Parkinson’s and Sialorrhea (Drooling or Excessive Salivation)
“The good physician treats the disease; the great physician treats the patient who has the disease.” Sir William Osler “Listen to your patient, he is telling you the diagnosis.” Sir William Osler Précis: The medical term used for excessive drooling is sialorrhea [si·al·or·rhe·a (sī-ăl′ə-rē′ə)]. Hockstein et al. said, “Sialorrhea (drooling ... read more - The Energeezer Parkie Will Need a New Battery…Soon
Several years ago, I wrote a story where I used rechargeable batteries as a way to describe what life is like with Parkinson's disease. Using my warped sense of humor, I changed the famous Energizer Bunny to the Energeezer Parkie. It thought it was a pretty good analogy. Once I ... read more - DBS Update: Six Years Later
It has now been SIX years since I joined the DBS "Holes in My Head Club" for Parkinson's disease and I bet you are curious as to how am I doing?There isn't much change from last year. My DBS device settings are exactly the same as they were last year ... read more - Comfort us.
Mariette Robijn She had fallen on her knees while running. There was even blood! She didn’t want to cry, but the tears ran down her cheeks nonetheless. The little girl’s mother ran to her and explained that there are 10 different types of plaster, 12 types of pill and ... read more - It’s Support Group Meeting TimeHey friends, here's the PD buzz for January. We will have a meeting January 19th at 3:30 as we always do the third Saturday of the month. But it's not enough merely to meet. What is our agenda? Glad you asked! We will be talking about PD podcasts! What is ... read more
- Whey Protein Supplements May Increase Glutathione in Parkinson’s
“Basic research is what I am doing when I don’t know what I am doing.” Wernher von Braun “As far as the laws of mathematics refer to reality, they are not certain, and as far as they are certain, they do not refer to reality.” Albert Einstein Overview: In ... read more - Driving Mr. Brooks
It's no secret that I like to drive. Even though I have had Parkinson's disease symptoms for well over 20 years, thanks to Medtronic DBS, I am still a good driver.Mr. Brooks is a friend of ours. We met him when he joined the Corvette Club several years ago. He's ... read more - Snosnikrap
Mariette Robijn I still remember it so well – what it was like before, when we were not yet – when I was not yet – and before they, before anyone. Others have long since forgotten what it was like before and might think I’ve always been like this. They’ve ... read more - Parkinson’s Life Strengths
“The most beautiful people I’ve known are those who have known trials, have known struggles, have known loss, and have found their way out of the depths.” Elisabeth Kübler-Ross “Talents are best nurtured in solitude, but character is best formed in the stormy billows of the world.” Johann Wolfgang von ... read more - Dream on, BabyMariette Robijn What did you dream about last night? Who were you with? No matter what, I assume you were yourself? I’m always myself in my dreams. Which can be a bit of a pain, especially when I’ve been known to dream 3 dreams a night. Sometimes, I’m just a ... read more
- Moving Day® 2018 in North Carolina was a Time to Walk for Parkinson’s
“Opportunities to find deeper powers within ourselves come when life seems most challenging.” Joseph Campbell“Remember. Every day, some ordinary person does something extraordinary. Today, it’s your turn.” Lou HoltzPeople who move can change the world: “Moving Day® is the National Parkinson Foundation’s annual fundraising walk event. It is a fun ... read more - Can Comics Enhance the Practice of Medicine? A study using “My Degeneration, a Journey Through Parkinson’s suggests “Yes”
Copies of "My Degeneration" await readers at Fireside Books in Palmer in 2015This past summer, I attended a conference on "Graphic Medicine" an area of the medical humanities that considers the intersection of comics and medicine. It's a discipline that rests on the assumption that through creating and reading comics, ... read more - DBS Update: Five Years Later
Well, it has been FIVE years since I joined the DBS "Holes in My Head Club" for Parkinson's disease and the thing people want to know most is...how am I REALLY doing?I am still doing fairly well. There isn't much change from last year. My DBS settings are slightly higher; ... read more - Support Group Meeting Dec 15, The return of the Holiday Potluck!Ho!... H o ! . . . H o o o o ! . . . Happy holiday greetings to you wherever and whomever you are. In case you hadn't noticed, another year has whizzed by. This means it's time for yet another holiday potluck, so ... read more
- Time for an Update!I know I'm overdue for an update for friends and family. I'm sure people would like to "see me" in a video, as that would tell more how I'm doing than I can describe on a blog post. Unfortunately, being we're staying with my daughter, there isn't a good place ... read more
- I just love working with People with ColdsMariette Robijn I love working with People with Colds. Yep, I’ve fully immersed myself in the subject. Well, in all that snot. I’ve since discovered that they’re not the SUM of all that snot. Rather, they just happen to have lots of it. So, I’ve immersed myself in all that ... read more
- Rock Steady Boxing. 100% Parkinson’s.Mariette Robijn ‘If you want to be able to walk reasonably well 20 years from now, then you’d better start exercising’, said the neurologist more than 6 years ago, when we’d just received my Parkinson’s diagnosis. If you’ve got Parkinson’s, exercise is of vital importance. Next to medicine, exercise is ... read more
- Meeting Saturday, Nov. 17,Hello friends, Yes, we will have a meeting this weekend, and yes, in a break with recent practice, I plan to attend. Radical, I know. On the agenda for this gathering, we will catch up on the replacement of yours truly as august leader and Grand :Poo-Bah of the APDSG. ... read more
- I need new toolsMariette Robijn You’re so used to be able to do everything and anything. Got tools for just about everything. Especially those automated jobs, like walking or smiling. Or shrugging your shoulders. Or getting up fast to go and do something even faster. Or answer a question really quickly. Tap your ... read more
