Parkinson’s Disease Blogs

Received a call from my neurosurgeon today that he is switching to the new machine for the Deep Brain Stimulation leads insertion surgery on 9/27.You may recall from previous posts that the neurosurgeon had told me that the hospital was getting in a relatively new DBS machine that would not ... read more

There is a meeting orf (just for fun, I'm gpoing tp leave in all my typo's in this note.) the Anchorage Parkinson's Disease Support Group tomorrow, the 16th of Sept.For you stivcklers, the offictal start time is 3:30. Our topic will be an important new study just released on PD ... read more

Yesterday, I went to the hospital to get an extensive MRI done in preparation for my DBS surgery on the 27th. Although it was outpatient, they did the whole nine yards down to carting me on a bed through the halls.In this video, I relate my experiences of the event. ... read more

The Holy Grail of Parkinson's research is reversing and healing the damage the disease does. Short of that, and more immediately within our reach, is slowing it down. Ironically, the fact Parkinson's is slow-moving to begin with makes it difficult to tell whether your attempts to retard it are effective. ... read more

“The excitement of vitamins, nutrition and metabolism permeated the environment.” Paul D. Boyer “A substance that makes you ill if you don’t eat it.” Albert Szent-Gyorgy Introduction: Claire McLean, an amazing-PT who is vital to my life managing my Parkinson’s, posted a very interesting article about the generation of ... read more

I wanted to squeeze in one more post I've been needing to do before I turn my attention mostly to my experiences with the DBS (deep brain stimulation) surgery coming up.I'm typing this one out rather than a video blog in part because my wife is napping and will soon ... read more

About two weeks ago, I was introduced to Dr. Greger by way of my doctor. He gave me a website to look at, and told me to do a search on Parkinson's and see what foods it suggest one should eat and not eat to benefit Parkinson's.This action on his ... read more

Greetings!I decided it would be much quicker to type this out, as my fingers seem to be doing fine at the moment and it will be quicker, I hope. Plus, good to have this info in print rather said in a video blog.Plans are going full steam ahead on getting ... read more

Here is a post I did for the Northwest Parkinson's Disease Foundation's  Community Blog, reposted with their permission. This was a piece I was a bit nervous about posting because the "meta" nature of the message seemed like it might elude some. But it seemed to go over just fine. ... read more

I was rarely labeled "Too quiet" before I was diagnosed with Parkinson's Disease. Since my diagnosis, it's been much easier for others to hear themselves think, to slip in a word edgewise, too make themselves heard over the dull roar. But a blogger is supposed to spout regularly, and often.As ... read more

I recently went live on YouTube (for the first time) to update everyone about new information concerning my DBS (deep brain stimulation) surgery. I discussed what DBS is, and the process I'll experience having it done.Below are the three embedded videos. There are three of them, because the feed was ... read more

Mariette Robijn My right hand used to be so strong! I could do anything I wanted with it and consider that perfectly normal. These days, whenever I see my right hand, I know: you used to be so strong. You’re doing your best, but you’re definitely not what you used ... read more

To be honest, TEN years ago, I wasn't feeling very optimistic. I still had my sense of humor, but I was becoming very discouraged. I had been sending out "The Letter" to neurologists for weeks and weeks and had not received even one reply. Since I had been previously told, by ... read more

“When diet is wrong medicine is of no use. When diet is correct medicine is of no need.’’ Ancient Ayurvedic Proverb ‘‘What is food to one man may be fierce poison to others.’’ Lucretius (99 B.C.-55 BC). Précis: Last month in London, England, at the Alzheimer’s Association International Conference (AAIC) ... read more

For those who follow this blog regularly, you know that a big detour got thrown into my Parkinson's disease road trip when I found out that my Movement Disorder Specialist, Dr. Sherman, was no longer on my insurance companies list of clinicians I could see. I would need to find ... read more

Keeping in mind Davis Phinney's motto is that "every victory counts," it's nice to have some victorious news to share.                                                             ... read more

“Just put one foot in front of the other.”  Austin Peck “Coming together is a beginning; keeping together is progress; working together is success.”  Henry Ford Introduction to Part 1: From May 28-June 3, >100 people came to Scottsdale, Arizona for the PWR! Retreat. The final tally had >50 people-with-Parkinson’s, ... read more

Mariette Robijn There’s still so much that I want to do. Please don’t tell me that I won’t be able to. That my dreams will go up in virtual smoke. Please don’t tell me that, Life. You won’t have it all Still, there does come a moment when you realise ... read more

Thanks to all who took the time to stop by the Singing Fiddle Ranch for our annual APDSG  Summer Potluck. People brought food and smiles, and below are the photos to prove it. We had perfect weather, no ants, and only two falling incidents, one of which ended up in ... read more

Hello Friends, The next meeting of the Anchorage Parkinson's Disease Support Group will be our annual Summer potluck. As per ancient APDSG tradition, the shindig will take place at the usual time, 3:30 in the afternoon. The place will, however, be at the unusual home of Peter and Pamela Dunlap-Shohl, ... read more

For those with children the long expanse of school summer holidays looms so this week’s tasty blog is dedicated to entertaining them. And creating lifelong healthy eating habits. Get them growing In a review of 120 studies on children’s eating behaviours published earlier this year it was concluded that ... read more

Mariette Robijn Tell me about when you were little; the hands with which you played in the sand, the food you shunned, the small heartaches and the huge plans. Tell me about a time when you were so sure that you’d grow up big and strong, and what you would ... read more

“Enjoy the journey, enjoy every moment, and quit worrying about Winning and losing.” Matt Biondi “Enjoy the journey as much as the destination.”  Marshall Sylver Introduction:  It has been a month since my last blog post.  Trips to Arizona, California, Alabama, and Florida consumed much of the month.  I spent ... read more

By GUEST BLOGGER:  Charlotte Stall, PD Advocate in Denver, Colorado, on behalf of the J P Parkinson’s Book Club When Julie and I first met with Kate to discuss being guest bloggers, our goal was to share our experience and knowledge about how to start and lead a Parkinson’s Reading ... read more

Hello all, just got back from the Comics and Medicine conference in Seattle. It was a good opportunity to meet people who have been instrumental in the success "My Degeneration" has met with, especially MK Cizerwiec, who has been a tireless, enthusiastic, and influential friend of the book, Kendra Boileau, ... read more