Parkinson’s Disease Blogs

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  • Support Group Meeting Dec 15, The return of the Holiday Potluck!
    Ho!...  H o ! . . .  H  o   o    o     o  !  .  .  .  Happy holiday greetings to you wherever and whomever you are. In case you hadn't noticed, another year has whizzed by. This means it's time for yet another holiday potluck, so ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2018-12-10
  • Time for an Update!
    I know I'm overdue for an update for friends and family. I'm sure people would like to "see me" in a video, as that would tell more how I'm doing than I can describe on a blog post. Unfortunately, being we're staying with my daughter, there isn't a good place ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2018-12-08
  • I just love working with People with Colds
    Mariette Robijn I love working with People with Colds. Yep, I’ve fully immersed myself in the subject. Well, in all that snot. I’ve since discovered that they’re not the SUM of all that snot. Rather, they just happen to have lots of it. So, I’ve immersed myself in all that ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2018-12-06By marietterobijn
  • Float like a lead pipe, sting like a puffin, Boxing for Parkinson's is way better than nothin' I explain it all here on the Northwest Parkinson's Foundation Blog ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2018-12-04
  • Rock Steady Boxing. 100% Parkinson’s.
    Mariette Robijn ‘If you want to be able to walk reasonably well 20 years from now, then you’d better start exercising’, said the neurologist more than 6 years ago, when we’d just received my Parkinson’s diagnosis. If you’ve got Parkinson’s, exercise is of vital importance. Next to medicine, exercise is ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2018-11-23By marietterobijn
  • Meeting Saturday, Nov. 17,
    Hello friends, Yes, we will have a meeting this weekend, and yes, in a break with recent practice, I plan to attend. Radical, I know. On the agenda for this gathering, we will catch up on the replacement of yours truly as august  leader and Grand :Poo-Bah of the APDSG. ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2018-11-15
  • I need new tools
    Mariette Robijn You’re so used to be able to do everything and anything. Got tools for just about everything. Especially those automated jobs, like walking or smiling. Or shrugging your shoulders. Or getting up fast to go and do something even faster. Or answer a question really quickly. Tap your ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2018-11-15By marietterobijn
  • Rain Man
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2018-11-14
  • High Noon
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2018-11-14
  • PD and Horse Sense, a Post from The Northwest Parkinson’s Community Blog
    Here is a reprint of a recent post I wrote for the Northwest Parkinson's Foundation Community Blog. You can still have adventures even with Parkinson's.How did I spatter all this horse manure on my freshly laundered clothes? My wife was away for an extended cross-country adventure. I remained behind to ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2018-11-01
  • Pete’s Parkinson’s Portraits, Alan Alda
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2018-11-01
  • Journey with Parkinson’s: During an Intermission
    “Hope is a function of struggle.” Brené Brown “What we know matters but who we are matters more.” Brené Brown Why do we learn?“The best thing for being sad,” replied Merlin, beginning to puff and blow, “is to learn something. That’s the only thing that never fails. You may grow ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2018-10-26By Frank Church
  • Journey with Parkinson’s: During an Intermission
    “Hope is a function of struggle.” Brené Brown “What we know matters but who we are matters more.” Brené Brown Why do we learn?“The best thing for being sad,” replied Merlin, beginning to puff and blow, “is to learn something. That’s the only thing that never fails. You may grow ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2018-10-26By Frank Church
  • The Dirty Secret
    Today I've finally decided to discuss a dirty little secret, or not so secret as the case may be: constipation. I've been intending to write this article for some time, but it has been slow in coming. (See what I did there?)A lot of people have this problem, but Parkinson's ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2018-10-13
  • Parkinson’s – the least of my problems
    Mariette Robijn   Your life consists of good and not good. Regardless of whether that’s self-induced or caused by someone or something else. Sometimes it can hover between the two, sort of semi-good. But mostly it’s simply good or not good. From ‘everything is good’ to ‘everything is most certainly ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2018-10-07By marietterobijn
  • Link Between Parkinson’s and Tooth Decay
    I went to the Dentist today (10/3/18). To put it bluntly, my teeth are falling apart. I was told today, that I have about five teeth that are worth saving, and even those were weak. The conclusion? To extract them all out for full dentures.That prognosis caused my wife, Lenita, ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2018-10-03
  • Year in Review with DBS
    As of last Saturday, Sept. 29, was one year since my Deep Brian Stimulation (DBS). So I figured it was a good time to review the past year in relation to getting DBS.It was a bit scary getting wheeled into the operating room. Waving bye to my wife, wondering if ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2018-10-01
  • Why I’m on a Plant-Based Diet, and Why You Should Be Too.
    "All well and good for you, Rick. If it helps you, more power to you. But why do I need to be on a plant-based diet?"I know I could "talk" or in this case, type till I'm blue in the face, and there will be some people who are simply ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2018-09-25
  • We’re in Colorado!
    Hello, everyone.Yes, as I've said in the title, we've successfully arrived in Colorado with our lives and stuff intact. I had one big harrowing experience in coming here, though.We were driving down I25 toward Denver, about a little over 40 minutes from our final destination. Just north of Colorado Springs, ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2018-09-17
  • Surprises at the Karaoke Finals
    We were all packed for our trip and our first stop was only 200 miles north of Yuma. We decided to go see the Talent Quest International Karaoke Finals in Laughlin, NV on our way to Portland, Oregon. We hadn't been back since the dance contest incident back in 2011.We ... read more
    Source: Parkinson’s HumorPublished on 2018-09-17
  • Jury Duty with Parkinson’s Disease
    The notice arrived in early May. It was a juror questionnaire form, asking me to respond online. I could have asked one of my doctors to write me an excuse but I did not. I think I would like to serve on a jury. I never have. The notice said I may ... read more
    Source: Parkinson’s HumorPublished on 2018-09-10
  • Things that you do/don’t/never have to get used to
    Mariette Robijn  Oh, I could get used to that! That glorious sunshine, that peace and tranquillity, that plush bed, that fancy house. You’d better get used to it. There’s nothing else for it. Hm, this might take a bit of getting used to. This getting up at 6 am business. ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2018-09-09By marietterobijn
  • #theyhavedifficultydualtasking #Parkinsons #therapist
    Mariette Robijn  “So, you have to get them to do exercises, where they have to perform two or more tasks simultaneously. This trains their brains, because this type of thing isn’t easy for these people, you know. It’s nothing to worry about, but you do have to know how to ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2018-09-02By marietterobijn
  • Always, With Parkinson’s
    “Our illness is often our healing.” Mooji “Life was always a matter of waiting for the right moment to act.” Paulo Coelho The Beginning of the Thought:  I was at the driving range recently hitting golf balls.  And this guy walks by wearing a T-shirt that said: “Always on, Never ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2018-08-23By Frank Church
  • Always, With Parkinson’s
    “Our illness is often our healing.” Mooji “Life was always a matter of waiting for the right moment to act.” Paulo Coelho The Beginning of the Thought:  I was at the driving range recently hitting golf balls.  And this guy walks by wearing a T-shirt that said: “Always on, Never ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2018-08-23By Frank Church
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