Parkinson’s Disease Blogs

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  • Support Group Meeting Alert (This is NOT a Drill!)
    Hey Everybody, It's a meeting alert! We will have our regularly scheduled meeting this Saturday, January 20th, 3:30 at the usual place, the Pioneer home 5th floor West lounge. We will have a parkinson's pop quiz to start the new year right, so bring your brains, or your gut or ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2018-01-18
  • New episode of the Parkinson’s Pundit on REM Sleep Disorders
    Do you have trouble distinguishing reality from a nightmare? The PD Pundit is here to help! ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2018-01-15
  • A Good Life With Parkinson’s
    “I choose to make the rest of my life the best of my life.” Louise Hay “Avoiding problems you need to face is avoiding the life you need to live.” Paulo Coelho I feel your stiffness; I know it well. I sense your troubled thoughts; my mind also has questions. ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2018-01-13By Frank Church
  • A few notes on falling
    Back when I was first diagnosed with Parkinson's Disease, I had a fear of falling. There were two things I especially did not relish about the idea that it would become a part of my modern lifestyle. #1 was pain, and the possibility of a fall leading to broken bones, ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2018-01-09
  • Finishing what I didn’t begin.
    Mariette Robijn The title says it all. You could skip the entire blog, because you already get it. It feels great to finish something that you began. Something that you chose for yourself, something that’s truly yours. I finished my education, chose my husband (and husband chose me), bought a ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2018-01-09By marietterobijn
  • Dopamine Agonist Withdrawal Syndrome (DAWS) in Parkinson’s
    “Some remedies are worse than the disease.” Publilius Syrus “Each patient carries his own doctor inside him.” Norman Cousins Summary: Dopamine agonists are widely used in the treatment of Parkinson’s, especially as a first-line therapy. Some patients on a dopamine agonist experience side-effects that require either tapering or discontinuation of ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2018-01-08By Frank Church
  • 64 Quotes on Persistence to Help Your Journey With Parkinson’s Disease
    “Kites rise highest against the wind – not with it!” Winston Churchill “Energy and persistence conquer all things.” Benjamin Franklin Introduction: On January 1, LinkedIn announced that I had a work anniversary of 32 years at The University North Carolina at Chapel Hill ( if you include my postdoc at ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2018-01-07By Frank Church
  • Complementary and Alternative Medicine (CAM) and Over-the-Counter Therapies in Parkinson’s
    With Parkinson’s, exercise is better than taking a bottle of pills. If you don’t do anything you’ll just stagnate.” Brian Lambert “With Parkinson’s you have two choices: You can let it control you, or you can control it. And I’ve chosen to control it.” US Senator Isakson Introduction: Having one ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2018-01-03By Frank Church
  • Coming THURSDAY, January 4th, a Special Edition of the Anchorage Parkinson’s Disease Support group: Connie Carpenter Phinney on Care Partnering
    We will have a special edition of the Anchorage Parkinson's Disease Support group on THURSDAY, January 4th. Our speaker will be Connie Carpenter Phinney of the Davis Phinney Parkinson's Foundation. Connie has 17 years of experience as a care partner with her husband Davis Phinney. Both Phinneys were champion cyclists ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2017-12-29
  • 7 Tips and Healthy Habits for Working with Parkinson’s
    “Nothing will work unless you do.” Maya Angelou “The best preparation for good work tomorrow is to do good work today.” Elbert Hubbard Précis: Over the past eight weeks, some loyal readers and several friends have asked me: “Is everything  okay?”; “Has my health taken a downturn?”; “Have you stopped ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2017-12-28By Frank Church
  • Closing the Year on a High Note. International Cooperation to Help People with PD
    Okay, I admit the "International Cooperation" heralded in the clickbait hed above was just me and one French guy, but dagnabbit, we must start somewhere! It began when with a note from Monsieur Jean-Louis Dufloux seeking permission to use an old but redoubtable cartoon I drew (Yes, it's this one.) ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2017-12-20
  • My Parkinson’s Journey: DBS and Cataract Surgeries Update
    I've delayed getting  an update on my cataract surgery. Not because of anything bad happening, but just real busy it seems. So here it is, without further notice, here is my video! ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-12-18
  • Monday Meeting with Speech Pathologist Anne Ver Hoef UPDATE
    Hello friends, Anne Ver Hoef who is coordinating the new speech  practice meetings for people​with PD asked me to pass along that the next meeting, Monday Dec. 18 at 3:30 will be held in classroom 1, NOT the Ivy room.  Classroom one is downstairs in the bldg closest to Airport ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2017-12-18
  • The Parkinson’s Forecast for Anchorage and Environs
    Heads up fellow PwPD. We will beat back the darkness Saturday, Dec 16 by potlucking like we don't care that it's too dim to tell what exactly is on our plates. Not that we can taste anything, anyway, given that our sense of smell is shot. We'll eat, watch the ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2017-12-12
  • So, what fun things have you been up to lately?
    Mariette Robijn I didn’t see that coming. Imagine visiting your neurologist and, when you get there, they can’t wait to hear what fun things you’ve been up to since your last appointment. “So, Mrs. Robijn, tell me, what fun things have you been up to? What?!! Only two? In those four ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2017-12-03By marietterobijn
  • I’m Doing Great So Far.
    I've been doing great!Just wanted to give everyone a heads up who has been following this blog. I can tell, so very slowly, that I'm getting more stable. Still doing steady enough and can type well enough, that I just finished around 25K words on my novel during the second ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-12-01
  • Lymph System Shocker!!! The PD Pundit Looks at Yet Another Surprise From the Amazing Brain
    Heads up! A brand new edition of the PD Pundit now available for your inspection! Just click here, and prepare yourself for a stunning revelation. ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2017-11-28
  • An Alert, Well-Hydrated Artist in No Acute Distress
    An Update from HadleyHadley, John and SarahGentle Readers,It’s been nine months since I published the epilogue for my story about Hadley Ferguson, my intrepid friend with multiple system atrophy. I thought you might appreciate this update in her own words, written for the 2017 MSA Coalition’s fundraising effort on this Giving Tuesday, 2017. ... read more
    Source: An Alert, Well-Hydrated Artist in No Acute DistressPublished on 2017-11-28
  • WimPower.
    Mariette Robijn All sorts of bright sparks follow the Wim Hof Method Training. I thought: either clever people attend the training or the training makes you clever. So, I also enrolled. I plumped for the ‘sitting in a tank of ice’ option. A plucky friend was going to join me. ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2017-11-24By marietterobijn
  • An Apple A Day…
    My very first personal computer was a used Windows 95 laptop purchased in 1998. It served us well for many years while we travelled the country in our RV. It was small and didn't take up much space, but then it had a dreaded "blue screen of death" episode and crashed. I ... read more
    Source: Parkinson’s HumorPublished on 2017-11-16
  • I Said, Late-Breaking Meeting, Speech Therapy for PD
    Hi folks, I just received a note from Rock-Star speech pathologist Anne Ver Hoef who has this to say "I’m organizing a PD speech group: meeting Monday, Nov 13 at 4:00 pm at Denny’s on DeBarr Rd, back room. I️ have invited several people but got behind in timeliness. Sorry ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2017-11-11
  • My Parkinson’s Journey: Post Deep Brain Stimulation Update
    Hi. Time for another update. Some new news to report, as well as updating for old news.https://www.youtube.com/embed/TURY-p53dOw ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-11-03
  • A new episode of The PD Pundit (He's only trying to help) Hot on the trail of a Parkinson's cure is up over at ParkinsonsDisease.net. Today's topic, the rapid acceleration of PD care. ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2017-10-31
  • R.I.P. Bob Rinehart, Longtime APDSG member
    Bob at the picnic last SummerI'm sorry to report Bob Rinehart, the genial Texan in the old-fashioned suspenders, has died. According to Caroline, his wife, Parkinson's Disease did not play a major role in Bob's final hours as he was also coping with cancer and other ailments as well. Not ... read more
    Source: Off and On: The Alaska Parkinson’s RagPublished on 2017-10-24
  • Deep Brain Stimulation Scheduled!
    I recently went live on YouTube (for the first time) to update everyone about new information concerning my DBS (deep brain stimulation) surgery. I discussed what DBS is, and the process I'll experience having it done.Below are the three embedded videos. There are three of them, because the feed was ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2017-10-22
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