Parkinson’s Disease Blogs

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  • Interview with Systems Neurology Expert Prof. Alberto Espay
    Dr. Alberto Espay is the director, professor and endowed chair of the UC James J. and Joan A. Gardner Family Center for Parkinson’s Disease and Movement Disorders.  After neurology training at Indiana University, he completed his clinical and electrophysiology training in Movement Disorders as well as an MSc program in Clinical Epidemiology and Health Care Research (Toronto Western Hospital, University ... read more
    Source: Tomorrow EditionPublished on 2019-01-22By Benjamin
  • The Energeezer Parkie Will Need a New Battery…Soon
    Several years ago, I wrote a story where I used rechargeable batteries as a way to describe what life is like with Parkinson's disease. Using my warped sense of humor, I changed the famous Energizer Bunny to the Energeezer Parkie. It thought it was a pretty good analogy. Once I had DBS surgery, my 'Parkie' battery was pretty close to ... read more
    Source: Parkinson’s HumorPublished on 2019-01-21
  • DBS Update: Six Years Later
    It has now been SIX years since I joined the DBS "Holes in My Head Club" for Parkinson's disease and I bet you are curious as to how am I doing?There isn't much change from last year. My DBS device settings are exactly the same as they were last year (1.30 left, 1.90 right) and my battery level is 2.76V ... read more
    Source: Parkinson’s HumorPublished on 2019-01-19
  • Comfort us.
    Mariette Robijn   She had fallen on her knees while running. There was even blood! She didn’t want to cry, but the tears ran down her cheeks nonetheless. The little girl’s mother ran to her and explained that there are 10 different types of plaster, 12 types of pill and 8 types of ointment. Oh, and if […] The post ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2019-01-17By marietterobijn
  • Whey Protein Supplements May Increase Glutathione in Parkinson’s
    “Basic research is what I am doing when I don’t know what I am doing.” Wernher von Braun “As far as the laws of mathematics refer to reality, they are not certain, and as far as they are certain, they do not refer to reality.” Albert Einstein Overview: In 1989, Riederer and others demonstrated that dopamine-producing neurons in the ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2019-01-16By Frank Church
  • The Promise of Precision Medicine
        The era of precision medicine in neurology is rapidly approaching as a number of trials targeting specific genetic cohorts in Parkinson’s disease will soon be entering phase three clinical trial. However, there is a growing suspicion that these precision medicine therapies might not be precise enough and that if we are going to realize the promise that it ... read more
    Source: Tomorrow EditionPublished on 2019-01-10By Benjamin
  • Driving Mr. Brooks
    It's no secret that I like to drive. Even though I have had Parkinson's disease symptoms for well over 20 years, thanks to Medtronic DBS, I am still a good driver.Mr. Brooks is a friend of ours. We met him when he joined the Corvette Club several years ago. He's been single all of his 85 years and he was ... read more
    Source: Parkinson’s HumorPublished on 2019-01-09
  • Interview with Me, Benjamin Stecher
      Just yesterday I was interviewed by Claire Marie Jones for her very lively and informative show on RadioParkies UK. We had a wide ranging discussion that touched on a lot of topics that I feel pretty strongly about, while also giving me the chance to ramble about life, civilization, and all the weird and funny things we humans do ... read more
    Source: Tomorrow EditionPublished on 2019-01-09By Benjamin
  • Snosnikrap
    Mariette Robijn I still remember it so well – what it was like before, when we were not yet – when I was not yet – and before they, before anyone. Others have long since forgotten what it was like before and might think I’ve always been like this. They’ve got used to it, they hardly ever […] The post ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2018-12-31By marietterobijn
  • Parkinson’s Life Strengths
    “The most beautiful people I’ve known are those who have known trials, have known struggles, have known loss, and have found their way out of the depths.” Elisabeth Kübler-Ross “Talents are best nurtured in solitude, but character is best formed in the stormy billows of the world.” Johann Wolfgang von Goethe Introduction: Living well with Parkinson’s takes a strong response ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2018-12-31By Frank Church
  • Dream on, Baby
    Mariette Robijn What did you dream about last night? Who were you with? No matter what, I assume you were yourself? I’m always myself in my dreams. Which can be a bit of a pain, especially when I’ve been known to dream 3 dreams a night. Sometimes, I’m just a passive bystander watching from the sidelines, sometimes […] The post ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2018-12-27By marietterobijn
  • Moving Day® 2018 in North Carolina was a Time to Walk for Parkinson’s
    “Opportunities to find deeper powers within ourselves come when life seems most challenging.” Joseph Campbell“Remember. Every day, some ordinary person does something extraordinary. Today, it’s your turn.” Lou HoltzPeople who move can change the world: “Moving Day® is the National Parkinson Foundation’s annual fundraising walk event. It is a fun and inspiring fundraising event that unites families, friends and communities ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2018-12-27By Frank Church
  • DBS Update: Five Years Later
    Well, it has been FIVE years since I joined the DBS "Holes in My Head Club" for Parkinson's disease and the thing people want to know most is...how am I REALLY doing?I am still doing fairly well. There isn't much change from last year. My DBS settings are slightly higher; up .1 on my left side and .3 on the ... read more
    Source: Parkinson’s HumorPublished on 2018-12-21
  • Time for an Update!
    I know I'm overdue for an update for friends and family. I'm sure people would like to "see me" in a video, as that would tell more how I'm doing than I can describe on a blog post. Unfortunately, being we're staying with my daughter, there isn't a good place for me to create that video. So, this will have ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2018-12-08
  • I just love working with People with Colds
    Mariette Robijn I love working with People with Colds. Yep, I’ve fully immersed myself in the subject. Well, in all that snot. I’ve since discovered that they’re not the SUM of all that snot. Rather, they just happen to have lots of it. So, I’ve immersed myself in all that snot. And I’ve also discovered that there […] The post ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2018-12-06By marietterobijn
  • Rock Steady Boxing. 100% Parkinson’s.
    Mariette Robijn ‘If you want to be able to walk reasonably well 20 years from now, then you’d better start exercising’, said the neurologist more than 6 years ago, when we’d just received my Parkinson’s diagnosis. If you’ve got Parkinson’s, exercise is of vital importance. Next to medicine, exercise is the key way of limiting the disease’s […] The post ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2018-11-23By marietterobijn
  • I need new tools
    Mariette Robijn You’re so used to be able to do everything and anything. Got tools for just about everything. Especially those automated jobs, like walking or smiling. Or shrugging your shoulders. Or getting up fast to go and do something even faster. Or answer a question really quickly. Tap your fingers just for fun or out of […] The post ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2018-11-15By marietterobijn
  • Journey with Parkinson’s: During an Intermission
    “Hope is a function of struggle.” Brené Brown “What we know matters but who we are matters more.” Brené Brown Why do we learn?“The best thing for being sad,” replied Merlin, beginning to puff and blow, “is to learn something. That’s the only thing that never fails. You may grow old and trembling in your anatomies, you may lie awake ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2018-10-26By Frank Church
  • Journey with Parkinson’s: During an Intermission
    “Hope is a function of struggle.” Brené Brown “What we know matters but who we are matters more.” Brené Brown Why do we learn?“The best thing for being sad,” replied Merlin, beginning to puff and blow, “is to learn something. That’s the only thing that never fails. You may grow old and trembling in your anatomies, you may lie awake ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2018-10-26By Frank Church
  • The Dirty Secret
    Today I've finally decided to discuss a dirty little secret, or not so secret as the case may be: constipation. I've been intending to write this article for some time, but it has been slow in coming. (See what I did there?)A lot of people have this problem, but Parkinson's patients tend to be overly afflicted by it. I used ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2018-10-13
  • Parkinson’s – the least of my problems
    Mariette Robijn   Your life consists of good and not good. Regardless of whether that’s self-induced or caused by someone or something else. Sometimes it can hover between the two, sort of semi-good. But mostly it’s simply good or not good. From ‘everything is good’ to ‘everything is most certainly not good’ If you’re diagnosed with Parkinson’s […] The post ... read more
    Source: Writing Smiles and Tears – Parkinson’s Blogs by Mariëtte RobijnPublished on 2018-10-07By marietterobijn
  • Link Between Parkinson’s and Tooth Decay
    I went to the Dentist today (10/3/18). To put it bluntly, my teeth are falling apart. I was told today, that I have about five teeth that are worth saving, and even those were weak. The conclusion? To extract them all out for full dentures.That prognosis caused my wife, Lenita, to ask when I started noticing the decay accelerating. I ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2018-10-03
  • Year in Review with DBS
    As of last Saturday, Sept. 29, was one year since my Deep Brian Stimulation (DBS). So I figured it was a good time to review the past year in relation to getting DBS.It was a bit scary getting wheeled into the operating room. Waving bye to my wife, wondering if something went wrong, if it would be the last I'd ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2018-10-01
  • Why I’m on a Plant-Based Diet, and Why You Should Be Too.
    "All well and good for you, Rick. If it helps you, more power to you. But why do I need to be on a plant-based diet?"I know I could "talk" or in this case, type till I'm blue in the face, and there will be some people who are simply not willing to give up their meat, dairy and eggs. ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2018-09-25
  • We’re in Colorado!
    Hello, everyone.Yes, as I've said in the title, we've successfully arrived in Colorado with our lives and stuff intact. I had one big harrowing experience in coming here, though.We were driving down I25 toward Denver, about a little over 40 minutes from our final destination. Just north of Colorado Springs, I suddenly noticed the trailer swaying back and forth. I ... read more
    Source: My Parkinson’s Journey by Rick CopplePublished on 2018-09-17
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