Parkinson’s Disease Blogs

Newsfeed:

  • …And Superman Leads the Way!
    * * * * * * * * * * * * * * From the New York Times: Up, up and out of the closet! The new Superman, Jonathan Kent — who is the son of Clark Kent and Lois Lane — will soon begin a romantic relationship with a male friend, DC Comics announced Monday. That same-sex ... read more
    Source: Parking SunsPublished on 2021-10-11By Bruce
  • Are Our Past Experiences the Lessons for Our Future?
    Time may not heal all wounds, for not all wounds are meant to heal. Scars can be helpful reminders of past experiences. #MotivationMonday ... read more
    Source: A Soft Voice In A Noisy WorldPublished on 2021-10-11By Karl Robb
  • Who Threw the Monkey Wrench? Adjusting to the Unexpected
    I don’t think a monkey should own a wrench. Monkey wrenches seem to be thrown from nowhere and land at the most unexpected and undesired moments. I’ve had several of these monkey wrenches land in my life recently, causing setbacks related to Parkinson’s disease (PD). Now, I’m back to more thrashing and gnashing. Unexpected things happen. The recent monkey wrench ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-10-08By Dr. C
  • Ready to Play Parkinson’s Truth or Dare?
    IMG_3138 We all know the game “truth or dare”… oh, those horrific teenage memories. I will review the rules for those who have been living under a rock. It’s a game for 2 or more participants. Players are given the ... read more
    Source: The Perky ParkiePublished on 2021-10-07By PerkyParkie
  • How Playing Games Can Benefit People With Parkinson’s
    We have become a screen society. Our days are often spent looking at screens rather than each other. I am no exception. There are digital versions of just about everything nowadays, including traditional board games. While apps can be convenient and beneficial, the feeling isn’t the same — using tactile pieces is part of the fun. If you’ve played Monopoly, ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-10-07By Lori DePorter
  • A Trip is Not a Fall. Or is it?
    Every time I see my Movement Disorders Specialist, I am always asked if I have fallen. As Parkinson’s progresses, balance can become less automatic, with falls becoming commonplace. A person can fall because of postural instability caused by a stooped posture. Freezing of gait and ridigity can cause falls, as well as turning in place. Vision problems are another cause. ... read more
    Source: Twitchy WomanPublished on 2021-10-06By skrischer
  • I’m Comforted by Inspiring Books About Fighting Disease
    I’m always on the hunt for different ways to find relief and even joy from what seems to be constant loss. Since my father’s Parkinson’s diagnosis, I have turned to reading books about the disease to see how others have managed the sadness that comes with this illness. Seeing my dad battle Parkinson’s (PD) has been taxing. Each day brings ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-10-06By Mary Beth Skylis
  • Parkinson’s Support Groups Can Offer a Little Help From Your Friends
    Everyone needs support. Whether a person is living with a chronic disease, serving as a caregiver for someone with an illness, or just living life, everybody needs support — to be encouraged, to be lifted up, or to have someone to share their experiences with.  I think we are born with this need to be supported and to offer support. ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-10-06By Jo Gambosi
  • Parting of the Clouds
    Even in the darkest of times, there are injections of light that temporarily part the clouds. #MotivationMonday ... read more
    Source: A Soft Voice In A Noisy WorldPublished on 2021-10-04By Karl Robb
  • Neuroscience week 1
    Saturday 2 October 2021 The first week of the MSc course in neuroscience I am doing at King’s College London was quite a shock. I had been expecting a gentle introduction: some basics like “what is neuroscience” to lay a foundation, some admin, some meetings with tutors and the like. There were a couple of introductory lectures on topics like ... read more
    Source: Shaking Steven – Living with YOPDPublished on 2021-10-02By Unknown
  • Thrashing and Gnashing: Managing Parkinson’s Bedtime Challenges
    Over the years, I have visited with many neurologists across multiple states regarding my Parkinson’s disease (PD). In their clinical interviews, they ask if I’m thrashing in my sleep. Then, they ask Mrs. Dr. C. It seems that thrashing in one’s sleep an important diagnostic symptom for Parkinson’s. In a study published earlier this year in Neuroepidemiology, Danish researchers found ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-10-01By Dr. C
  • Navigating a Career With Early-onset Parkinson’s Disease
    When a person is diagnosed with Parkinson’s disease at a young age, many thoughts swirl through their head. Once the dust starts to settle, they’ll likely start thinking about their career. Will they be able to continue working? If so, how long? What will happen when they can’t? Will they lose their house or car? Go bankrupt? When I was ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-09-30By Samantha Felder
  • The Financial Burden From Parkinson’s Exacts a High Cost
    Caregivers for people with Parkinson’s disease (PD) know the physical and emotional toll it exacts on those who suffer from it. The financial burden from Parkinson’s disease is less well known. My sister Bev has stage 3 PD and struggles with balance, cognitive, and falling issues. She also struggles with finances because she has used up most of her retirement ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-09-29By Jo Gambosi
  • Mania & Me
    A couple weeks ago I sat with a psychiatrist for about two hours and emerged with a brand new diagnostic bumper sticker to slap on myself – hypomania. More curious than bothered, I did as I had with the other clinical label I carry, Parkinson’s disease, and asked: what precisely is mania? Reading through some of the ... read more
    Source: Tomorrow EditionPublished on 2021-09-28By Benjamin
  • Illness Teaches
    Illness teaches a whole new perspective on living. #MotivationMonday Chronic illness changes lives and forces those of us with conditions to realize how precious every single day is to us. We can appreciate what some may not see. ... read more
    Source: A Soft Voice In A Noisy WorldPublished on 2021-09-27By Karl Robb
  • Cooking with Parkinson’s
    “In the past, I would cook nonstop for three days. It was a production. Now I trim the menu to what I know I’ll be able to do.”Denise Coley The other day, going through my emails, I saw one that stopped me in my tracks: A Food Lovers Guide to Cooking with Parkinson’s from Epicurious, a website known for its ... read more
    Source: Twitchy WomanPublished on 2021-09-27By skrischer
  • Flying solo
    Sunday 29 September 2021 Rosa scanned her boarding pass, went through the gate, then looked round just before she headed into airport security and waved. We both felt a brief tinge of poignancy: this was the first time she was flying alone. Only a short flight to Northern Ireland to attend her grandmother’s funeral, but a significant milestone nevertheless. ... read more
    Source: Shaking Steven – Living with YOPDPublished on 2021-09-26By Unknown
  • The Unreasonable Effectiveness of Deep Brain Stimulation Therapy and the Future of Neuromodulation
    When DBS electrodes are properly placed the results are nothing short of a modern medical miracle. However, in most patients the effectiveness wanes over time. There are a lot of theories as to why, below I will try to explain the one that makes the most sense to me, sometimes referred to as the Habituation Model. (I am ... read more
    Source: Tomorrow EditionPublished on 2021-09-25By Benjamin
  • A Fresh Look at Parkinson’s Self-Management
    The power of the human mind to reshape itself, adapt to even the most traumatic of events, is a gift given to me by the head injury patients from my past clinical experience. Their courage inspired me to find a scientific model to help me with my own Parkinson’s disease (PD) brain injury. Individualized presentation explained by the spectrum stage ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-09-24By Dr. C
  • LGBTQ+ with Parkinson’s? There’s an Online Support Group Just for You!
    If you belong to both the Parkinson’s and LGBTQ communities, you or someone you know might benefit from an opportunity to participate in the online support group, Parkinson’s Pride. If you’re interested in applying to be a participant, or would like more information, you can click here to register. You can also contact Mikayla Hyman at mhyman@bidmc.harvard.edu or call ... read more
    Source: Parking SunsPublished on 2021-09-23By Bruce
  • Kayaking May Be an Ideal Activity for Those With Parkinson’s
    As Parkinson’s disease progresses, it can become harder for someone to find physical activities they can do with others, which can affect their social life. However, a few years ago, my husband, Mike, and I discovered something we could do together: kayaking. Like other paddle sports, kayaking incorporates many of the exercises recommended for those of us with Parkinson’s. It ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-09-23By Lori DePorter
  • Was it all just a dream?
    Sometimes I have trouble determining what is a dream and what is reality. I know I am not alone in this.  I can say with confidence that we all have experienced this confusion at some point. Let’s imagine you get home after a long day of antiquing.  Don’t ask me why I chose that activity, never done it before… it just sounds ... read more
    Source: The Perky ParkiePublished on 2021-09-23By PerkyParkie
  • The Lighter Side of Parkinson’s
    Parkinson’s disease (PD) is a serious illness that can have major effects on a person, both physically and emotionally. As a caregiver to my older sister, Bev, I have witnessed those changes in her after she was diagnosed in 2017. But can there be a lighter side to the disease? Bev, who now has stage 3 PD, and I think ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-09-22By Jo Gambosi
  • Why should you participate in Clinical Trials for Parkinson’s?
    It’s so crucial that patients with Parkinson’s be part of the solution, that they participate in trials and help move the ball forward so that people like you …. can benefit from the knowledge that we get from these trials.”Andrew Siderowf, MD You do trials for yourself because you hope it works, and then two to three years down the ... read more
    Source: Twitchy WomanPublished on 2021-09-20By skrischer
  • Poetry and Parkinson’s
    From the desk of Eli Pollard, Executive Director, World Parkinson Coalition: Dear friends, I am emailing you today to let you know about a special Poetry and Parkinson’s event that is taking place this week. As some of you participated in the WPC Haiku Competition* leading up to the WPC 2019, I thought you might be interested in joining ... read more
    Source: Parking SunsPublished on 2021-09-20By Bruce
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