Parkinson’s Disease Blogs


  • The Measure of a Day With Parkinson’s
    “Stop measuring days by degree of productivity and start experiencing them by degree of presence.” Alan Watts “It’s so much easier to measure life in experience points.” Felicia Day Introduction: How do we value ourselves to society, work colleagues, neighbors, and our loved ones and family? We each have some sort of ‘value’ that others do recognize. Internally, we probably ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2021-11-14By Frank C. Church
  • Whack A Mole – Parkinson’s Style
    Artwork from Parkinsonsdisease.netFirst published in By Sharon Krischer I hate Parkinson’s! There, I have said it. I hate it, I hate it, I hate it. No, this isn’t a pity party. It is reality. I try to write positively about Parkinson’s disease (PD), but sometimes the negatives must be told. What did I do to deserve living with this ... read more
    Source: Twitchy WomanPublished on 2021-11-12By skrischer
  • Implementing the ‘Pause Between’ in Parkinson’s Management
    Armed with the tools of threshold management and mindful movements, I am ready to put the brakes on this accelerating Parkinson’s progression. Having tools and using them wisely are two different things. It’s the distinction between the design and delivery of my Parkinson’s self-management program. For me, the use of these self-management tools starts with intent. My intent is to ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-11-12By Dr. C
  • When Your RBF Hinders Communication
    I’m really not a rude person, but sometimes my Parkinson’s makes me look, shall we say… unapproachable. I feel that I’m happy-go-lucky and always have a smile on my face until I see my reflection.   I have a resting bitch face.  What the heck is that? Wikipedia defines it as, “a facial expression, which unintentionally appears as if a person is ... read more
    Source: The Perky ParkiePublished on 2021-11-10By PerkyParkie
  • Journaling Can Help Those With Parkinson’s Build a Legacy
    Journaling can be therapeutic for all of us. For someone with a chronic illness like Parkinson’s disease, storytelling by way of writing can leave a legacy for friends and family, and it can even change a person’s perspective about facing illness. In explaining why she decided to keep a journal, Lori DePorter, a fellow columnist at Parkinson’s News Today, wrote ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-11-10By Jo Gambosi
  • Need a Bud?
    **************** No, I don’t mean what you may be smoking at night, nor the famous, if mediocre, American beer.  I write today to announce that the Michael J Fox Foundation has an online buddy support group that can hook you up with people who share your interests. It’s rather like, which is how I met my husband almost ... read more
    Source: Parking SunsPublished on 2021-11-10By Bruce
  • Proudest Accomplishments & Challenging Times
    It seems like our proudest accomplishments come out of our most challenging times. #MotivationMonday ... read more
    Source: A Soft Voice In A Noisy WorldPublished on 2021-11-08By Karl Robb
  • Parkinson’s: Fight Song
    “Never let your head hang down. Never give up and sit down and grieve. Find another way.” Satchel Paige “Never give up, for that is just the place and time that the tide will turn.” Harriet Beecher Stowe Introduction: Living with Parkinson’s is a daily fight (in my mind) because Parkinson’s is always trying to get you to stay and ... read more
    Source: Frank Church – Journey wIth Parkinson’sPublished on 2021-11-08By Frank C. Church
  • Sharing the Voice Newsletter
    In this Fall newsletter, check out the links to upcoming community events, thoughtful conversations, Fall Photo gallery, and What to Watch. ... read more
    Source: A Soft Voice In A Noisy WorldPublished on 2021-11-06By Karl Robb
  • The Emotional Flicker Effect Has Its Triggers and Precursors
    One of the major goals I have for managing Parkinson’s disease is to decrease the frequency and intensity of the “ugly days.” Ugly days are episodic in my life but still require managing symptoms every day. If I can keep the worst of the symptoms at bay, I — and those around me — can avoid the downward spiral of ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-11-05By Dr. C
  • Someone to talk to
    I was diagnosed with Parkinsons in September of 2020. It was a Thursday, and I was completely shocked and devastated. On the three hour drive home, I found Twitchy Woman on the internet. I read Sharon’s blog and immediately messaged her. We talked on Sunday, and it was after that phone call, that I decided Parkinsons wasn’t the end of ... read more
    Source: Twitchy WomanPublished on 2021-11-04By skrischer
  • Is Parkinson’s the Culprit for Every Calamity in Life?
    Can those of us with Parkinson’s disease blame the condition for all of our trials and tribulations? The quick answer often is “Yes. Absolutely.” However, it’s not always so black and white. While it’s true that Parkinson’s complicates things, it’s not responsible for every calamity in life. Various circumstances can bring trauma into our lives. Sometimes we come to that ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-11-04By Lori DePorter
  • The Challenge of Being a Caregiver Is Seeing a Loved One Struggle
    As a moderator for the Parkinson’s News Today Forums, I recently posed a question that’s received several surprising responses. I asked our forum members about their greatest challenge as a caregiver for someone with Parkinson’s disease (PD). I had imagined they might cite medication management, doctor appointments, meal preparation, household responsibilities, or other obstacles. These tasks are complicated for those ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-11-03By Mary Beth Skylis
  • How Facial Exercises Can Benefit People With Parkinson’s
    In my recent column about oral health, I discussed how some symptoms of Parkinson’s disease (PD), such as facial stiffness and decreased tone and strength in the jaw, tongue, and facial muscles, can lead to dental problems. These issues, combined with dry mouth and decreased amounts of saliva, can also affect swallowing. The facial and jaw problems associated with PD ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-11-03By Jo Gambosi
  • The Inevitable Changes of Our Lives
    The inevitable changes of our lives can come at the most unexpected and inconvenient times. It is the challenges of change that test our flexibility and resilience. #MotivationMonday ... read more
    Source: A Soft Voice In A Noisy WorldPublished on 2021-11-01By Karl Robb
  • The Sun in Poetry: Mildew
    I have many poems which mention the sun, but this one seems appropriate for Halloween as well as for the post just before this, which mentioned the real life Leatherman, who lived in caves during the second half of the 19th Century. ******************** Mildew Behold, within that cavern drear and dank, Whose walls in rainbow tints so dimly shine, ... read more
    Source: Parking SunsPublished on 2021-10-30By Bruce
  • Meet John Ball
    I think John is the perfect story to be the first person with Parkinson’s in our interviews as he shares his wisdom and indomitable spirit. ... read more
    Source: A Soft Voice In A Noisy WorldPublished on 2021-10-29By Karl Robb
  • What is an Oscillopathy? – Part 1
    One question I have been trying to answer for years now is, what kinds of knowledge would someone like myself have to acquire to try and understand the brain and neurodegenerative diseases? Which subjects would I need under my belt to even attempt to make sense of our brains and why some parts of it degenerate faster in some ... read more
    Source: Tomorrow EditionPublished on 2021-10-29By Benjamin
  • Brain Waves and Parkinson’s: A Possible Link to the ‘Flicker Effect’
    While searching for a way to communicate telepathically, German psychiatrist Hans Berger invented the EEG machine to measure pulsating electrical brain activity in 1924. Professing my ignorance, I know more about telepathy as “advanced empathy” from my PhD thesis than I do about electroencephalography, or EEG. Seldom do I stray outside my field of brain rehabilitation. But the scattered bits ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-10-29By Dr. C
  • Halloween Musings
    “On Halloween you get to become anything that you want to be.” — Ava Dellaira What do you want to be on Halloween? And what if you could be granted three wishes on Halloween by your Halloween alter ego? Halloween is mystical, magical holiday, not matter how old you are. It has become a holiday where we ... read more
    Source: Twitchy WomanPublished on 2021-10-29By skrischer
  • No Bones Day
    I was scrolling through my social media platforms the other day and I fell into the rabbit hole of TikTok and Instagram.  Once you start you can’t stop.  One video led to the next one and before I knew it, I’d lost hours of my life that I will never get back.  I do have to admit, although the video clips are not ... read more
    Source: The Perky ParkiePublished on 2021-10-27By PerkyParkie
  • Take Another Mindful Walk + Update on My Legs
    * * * * * * * * * * Autumn is a great time to walk in the woods, but before we get started, please click here to view my workout schedule from the past two months.  In my last blog post I discussed my battles with falling and festinating gait, claiming that “If I work out five ... read more
    Source: Parking SunsPublished on 2021-10-27By Bruce
  • The Challenge of Oral Health in Parkinson’s Disease
    Parkinson’s disease (PD) is known to affect oral health because of disease-related symptoms. According to the Parkinson’s Foundation, physical issues such as rigidity, shaking, uncontrolled movements, and even balance problems can prevent a person with PD from keeping up good oral hygiene. Increased or decreased amounts of saliva, which also are associated with medications taken to treat PD, can lead ... read more
    Source: Parkinson’s News Today (Columns)Published on 2021-10-27By Jo Gambosi
  • Cornucopia of Tools
    There is a cornucopia of possible tools for people with Parkinson's disease to discover. It takes an open mind, open heart, and a little faith. #MotivationMonday ... read more
    Source: A Soft Voice In A Noisy WorldPublished on 2021-10-25By Karl Robb
  • Hola! Me Llamo Gavin
    I have the cherished good fortune of being happy most of the time. ... read more
    Source: Your Move Fitness (Gavin Mogan)Published on 2021-10-22By Your Move Fitness
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