Parkinson’s Disease Blogs

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  • Personal Perspective on Parkinson’s
    Personal Perspective on Parkinson’s By Sara Ochs Guest Blogger Copyright 2017 "Sara! Come sit down with me and listen to this song." Youtube is calling again and with a sigh, I try to find an excuse to get to the kitchen and help my mom with the dishes or take the dog out for yet another potty break. You see, ... read more
    Source: Shake, Rattle and RollPublished on 2017-02-07By Kate Kelsall
  • Say That Again
    Book: Say That Again  by Jane M. Cullen Reviewed by: Kate Kelsall                                                                                                                                                                    Photo ... read more
    Source: Shake, Rattle and RollPublished on 2017-01-20By Kate Kelsall
  • Personal Triumphs and Trials with Deep Brain Stimulation (DBS)
    My journey first started 20 years ago in May 1996. At an appointment with a neurologist, my left hand shook. My right arm hung there like a dead animal. I dropped things.  I had a blank facial expression. My voice was soft and raspy. Typing on the computer slowed and became punctuated with errors. A typed word such as “home” appeared ... read more
    Source: Shake, Rattle and RollPublished on 2016-12-24By Kate Kelsall
  • In Gratitude
    Author Unknown  The 92-year-old, petite, well-poised and proud lady, who is fully dressed each morning by eight o’clock, with her hair fashionably coiffed and makeup perfectly applied, even though she is legally blind, moved in to a nursing home today. Her husband of 70 years recently passed away, making the move necessary. After many hours of waiting patiently in ... read more
    Source: Shake, Rattle and RollPublished on 2016-11-22By Kate Kelsall
  • World Parkinson Congress – Day One
    Our first full day of the World Parkinson Congress started late because we both overslept. I guess all the travel caught up with us. Our hotel, the Quality Inn, had a free breakfast buffet included, and we managed to get there right before they closed. As we were eating, a lady with a WPC badge (I think the entire hotel ... read more
    Source: Parkinson’s HumorPublished on 2016-10-28
  • World Parkinson Congress – Opening Day
    Our trip to the World Parkinson Congress was almost complete. We only had a short drive to get there, so we stopped to see the famous Multnomah Falls, which is just 30 miles east of Portland, Oregon. This scenic waterfall is visible from I-84, a main east-west highway. In fact, there is a parking area between the east and westbound ... read more
    Source: Parkinson’s HumorPublished on 2016-10-28
  • I’m Back! I tried leaving PD at home, but was unsuccessful.
    "Leave My Parkinson’s Disease at Home" was the mantra that I told myself when going on vacation with my husband, Tom. We traveled to attend the Port Townsend (Washington) Film Festival (PTFF) in September of 2016 and visited friends, Gayle and Bill. It’s our annual ritual, and we have attended about eight of these film festivals in the last decade. ... read more
    Source: Shake, Rattle and RollPublished on 2016-10-25By Kate Kelsall
  • Everything is Peachy
    This story begins twelve years ago. My Wonderful Husband I were still living and traveling full time in a RV back then. We were staying at a campground, near the Columbia River in Oregon during the summer of 2004.  The campground was situated along a tributary river that fed into the Columbia and we were lucky enough to get one ... read more
    Source: Parkinson’s HumorPublished on 2016-10-24
  • Still Shaking, Rattling, and Rolling in 2016
      Still Shaking, Rattling and Rolling in 2016 Kate Kelsall was diagnosed with Parkinson’s in 1996, and has been blogging about it since 2006. She chronicles her daily life with the disease — including both her struggles and triumphs — and she does it with honesty and a positive spirit. On her blog you’ll find checklists to help you identify ... read more
    Source: Shake, Rattle and RollPublished on 2016-08-24By Kate Kelsall
  • UGH
    Two of the members of the Parkinson’s Disease (PD) Readers Club kindly asked me how I was doing this summer. I normally filter my words when I talk to people, but this time my unfiltered automatic response was “UGH.” I wasn’t sure what UGH really meant until I looked it up on Dictionary.com and the following is the definition: UGH ... read more
    Source: Shake, Rattle and RollPublished on 2016-08-22By Kate Kelsall
  • Speech Therapy and Beyond for Parkinson’s Disease
      Mary Spremulli, MA, CCC-SLP, speech-language pathologist, and Owner of Voice Aerobics, will be hosting a  webinar on Friday, August 26, 2016 at 12 pm EDT, titled: Speech Therapy and Beyond for Parkinson's Disease.   Mary, has over 25 years experience working with people with Parkinson's and related diseases, and the Voice Aerobics®  program, created by Mary in 1999, ... read more
    Source: Shake, Rattle and RollPublished on 2016-08-16By Kate Kelsall
  • Expectations and Acceptance of DBS
    “Expectations were like fine pottery. The harder you held them, the more likely they were to crack.” ― By Brandon Sanderson, "The Way of Kings" Some people with Parkinson’s Disease (PD) who have had Deep Brain Stimulation (DBS) surgery say that their lives have turned out for the better through the miracle of DBS. Others are disappointed when the results of ... read more
    Source: Shake, Rattle and RollPublished on 2016-06-26By Kate Kelsall
  • Spreading Parkinson’s Awareness Worldwide
    April is Parkinson's Disease Awareness Month. Kate Kelsall is spreading awareness about Parkinson's Disease through her article published in Spotlight on PD: Raising the Bar for Healthcare Collaboration, a website in the UK  at: http://www.diseasespotlight.com/parkinsons-disease-qa-with-kate-kelsall/ Check it out.   ... read more
    Source: Shake, Rattle and RollPublished on 2016-04-02By Kate Kelsall
  • The Dilemma: Who, What, When to Tell and Not Tell in the Workplace about Parkinson’s
    It’s a dilemma: who, what, and when to tell those in the workplace about your diagnosis of Parkinson’s Disease. I’ve always prided myself on being transparent (is that word still en vogue?) and a person who avoids secrecy.  However, honesty may not serve you well when telling your employer and co-workers about your diagnosis of Parkinson’s. If you disclose your ... read more
    Source: Shake, Rattle and RollPublished on 2016-02-21By Kate Kelsall
  • The New Year: Another Chance of Getting It Right
    When I was employed in the business world, there was a lot of focus on goal-setting and performance reviews. Organizations would make big productions out of identifying goals, measuring goals, revising goals, and concocting new goals for the following year. I recall spending many hours complying with all of this analyses, but I always thought that we would be ... read more
    Source: Shake, Rattle and RollPublished on 2016-01-01By Kate Kelsall
  • Gratitude: A Memory of the Heart
    Instead of comparing our lot with that of those who are more fortunate than we are, we should compare it with the lot of the great majority of our fellow men. It then appears that we are among the privileged.   Helen Keller   I COMPARE myself with people who are more fortunate, taller, leaner, smarter, healthier, prettier, more talented and ... read more
    Source: Shake, Rattle and RollPublished on 2015-11-26By Kate Kelsall
  • Discovering Clues About Your Parents’ Well-Being: When They May Need Some Help
    With the holidays rapidly approaching, many of us will be visiting our parents who may live across the country or on the other side of the world. You may see signs of declining mental or physical health in your parents. You might not be sure if your parents need help, but you suspect that something is not right. How can ... read more
    Source: Shake, Rattle and RollPublished on 2015-11-24By Kate Kelsall
  • Don’t Get Stuck in the Whining
      After 20 years of Parkinson’s Disease (PD) and 10 years of Deep Brain Stimulation (DBS) surgery, you wouldn’t think that I would have anything to complain about. I’m embarrassed to admit that sometimes I prefer complaining to counting my blessings. However, with Thanksgiving approaching in a couple of weeks, it’s important that I get all of the whining ... read more
    Source: Shake, Rattle and RollPublished on 2015-11-15By Kate Kelsall
  • Is It 50/50?
    It’s often awkward to know how to respond when people ask me "How are you doing or feeling with Parkinson's Disease (PD)?" When talking to my friend, Gayle, her suggestion was to say "50/50." This means I am doing equally good and bad and/or my health is equally favorable and unfavorable. Then if people want to know more specific information, they can ... read more
    Source: Shake, Rattle and RollPublished on 2015-10-03By Kate Kelsall
  • Heels On, Head Up, It’s A New Day
    Heels On, Head Up, It's A New Day By Tonya Walker Copyright ©2015   What made you decide to pursue DBS?  That is an interesting question, because it was a long process for me.  When I was initially diagnosed with Parkinson's Disease (PD), my neurologist spent a considerable amount of time discussing treatment options with me.  I recall that at ... read more
    Source: Shake, Rattle and RollPublished on 2015-08-27By Kate Kelsall
  • Achieving the Balance between Medications and Food
    It’s challenging being a woman with Parkinson’s for nearly two decades. On Monday, I am focused on food and medications. It entails delaying my intake of food, shopping for food, preparing meals, eating meals, washing the dishes and cleaning up the kitchen, calling the pharmacy, ordering and getting renewals for medications, picking up medications, organizing medications in the ... read more
    Source: Shake, Rattle and RollPublished on 2015-07-22By Kate Kelsall
  • Nearly Normal
      "Nobody realizes that some people expend tremendous energy merely to be normal."  Albert Camus Since my diagnosis of Parkinson’s Disease (PD) 19 years ago and Deep Brain Stimulation (DBS) surgery 10 years ago I have attempted to look and act normal, and sometimes I have been Nearly Normal. It takes a lot of hard work and patience. I've always been ... read more
    Source: Shake, Rattle and RollPublished on 2015-07-18By Kate Kelsall
  • Time Waits for No One
    It happened to three of my family members. First, four days before she died, my Mom had her first swallowing evaluation. At that point, she was unable to eat or drink anything. Her cause of death was dysphagia (swallowing difficulties) and Lewy Body Dementia. Second, my mother-in-law’s death certificate said one of the causes of her death was ... read more
    Source: Shake, Rattle and RollPublished on 2015-06-29By Kate Kelsall
  • So What’s the Good News?
    In Missouri, where I come from, we don't talk about what we do - we just do it. If we talk about it, it's seen as bragging.” Brad Pitt   I’m with Brad Pitt on this one. Also, growing up in Missouri, if I wanted to share some accomplishment, an award or good news of my day, I would always preface ... read more
    Source: Shake, Rattle and RollPublished on 2015-05-31By Kate Kelsall
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