YOPD = Young Onset Parkinson's Disease

YOPD = Young Onset Parkinson’s Disease

We think that regardless of your age, you're always too young to have Parkinson's. When someone is diagnosed with Parkinson's at a younger age, it is called Young Onset Parkinson's Disease (YOPD). Parkinson's Disease has the reputation of being a disease associated with old age, with good reason. Essentially, the longer that you live, the greater your chance is of developing PD. If you live into your 80's, you have almost a 2% chance (2  in 100) of developing PD. If you die in your 50's, you decrease your odds of getting Parkinson's, as only 0.1% (1 in 1000) of ...
Exercise for Parkinson's Disease - Understanding Exercise Intensity & Forced Exercise

Exercise for Parkinson’s Disease – Understanding Exercise Intensity & Forced Exercise

This presentation explains some concepts regarding exercise for Parkinson's Disease, explaining how exercise intensity is measured and why it matters, and the concepts of vigorous intensity exercise and forced exercise ...
Reconnecting Through Rhythm

Reconnecting Through Rhythm

Parkinson's disease disrupts rhythm. And sometimes PD obliterates rhythm, battering it beyond recognition. But, we don't have to accept it this way. Working to maintain mind-body connections is well worth the effort ... if you call music, dance, sports, games, or the like, effort. I'm learning every day, but I'm grateful to be able to share my approach to coping with PD as of today. Today, now, is all I really have. I hope this video somehow helps ease your Parkinson's burden: ...
Active Sex Life May Benefit Men with Early Parkinson’s Disease

Active Sex Life May Benefit Men with Early Parkinson’s Disease

This latest Parkinson’s Disease research is too important not to be shared. Published in the European Journal of Neurology, a new study indicates that an active sex life is linked with lower disability and better quality of life in men with early Parkinson’s disease. Yes, it appears that sexercise is medicine. More study is needed, but word on the street is that volunteers are afraid they'll end up in the placebo group. It is imperative that it gets shared on Twitter and Facebook. This study should be widely publicized and broadcast on every major global news network. Why stop there? ...
Oddities and Opportunities in Movement During Parkinson's Off Periods

Oddities and Opportunities in Movement During Parkinson’s Off Periods

When my PD medication wears off, I struggle. But there are times that I actually enjoy the challenge of moving that I face after 11 years of living with PD. There’s a reason they recommend exercising when your medication is working and you are on. But, I also find satisfaction in challenging my body when the meds wear off. There are a surprising number of ways around my body's persuasive argument that it just can't do what I'm asking it to. Unfortunately, it's rarely easy. Falling can, and sometimes does occur, and I try to learn from it. As the ...
Wearing a red light bucket hat on your head for Parkinson’s

Wearing a red light bucket hat on your head for Parkinson’s

One of the most intriguing PD stories of the year has been an unusual fashion trend taking place in Tasmania (Australia). Wearing a red light bucket on your head for Parkinson’s is literally turning heads in Tasmania. The treatment is known as photobiomodulation. It is experimental and unproven. It does not claim to cure Parkinson's. The people who have been experimenting with this technology claim to see slow and subtle improvements in PD symptoms over time. It is not a double-blind study, and it is possible a placebo effect is responsible for any improvements. An article on the ABC News ...
World Parkinson Congress 2019: Best of the Blog Reports

World Parkinson Congress 2019: Best of the Blog Reports

World Parkinson Congress 2019 in Kyoto was educational, inspirational, and a great excuse to visit Japan again. And in 3 years time, it'll give us an excuse to return to Barcelona for WPC 2022. What did we learn this time? I mean, aside from the fact that serving lunch at a Parkinson's Disease conference with chopsticks as the only utensil is a sick and twisted form of torture. We've highlighted some of the best official and unofficial blog reports from the conference: ...
Gut Bacteria Ate My Parkinson's Meds

Gut Bacteria Ate My Parkinson’s Meds

The dog ate my homework, and gut bacteria ate my Parkinson’s meds. I'm glad it wasn't the other way around. In spite of my poor attempt at humor, this is one of the most interesting scientific discoveries related to Parkinson’s Disease so far this year. No, it does not bring us any closer to a cure, but it is of practical significance because it identifies a naturally occurring scenario that can severely limit the effectiveness of levodopa ...
Carbidopa/Laughadopa: One Pill to Rule Them All

Carbidopa/Laughadopa: One Pill to Rule Them All

Someone once told me that laughter was the best medicine. I think it was the claims reviewer at my health insurance provider. Thanks to carbidopa/laughadopa therapy, I can repurpose so many of my Parkinson's symptoms to treat other symptoms, that the worse my PD gets, the better I feel. ‘Off’ time can be repurposed as meditation time. Loss of smell/taste can be useful, if not absolutely essential, in eating healthier. Soft voices give an excuse to shift attention and become better listeners. Periods of freezing can be research/self-analysis of how fear holds us back in other areas of life ...
WPC2019 Anecdote: Parkinson's Disease and the Nagging Spouse

WPC2019 Anecdote: Parkinson’s Disease and the Nagging Spouse

My wife went to one session at the World Parkinson Congress 2019 without me.  It is my fault. I suggested it. I had another time commitment, so I suggested that she use the time to go to a panel discussion about living well with Parkinson's. I wasn't there, so I don't know exactly what was said, or the context in which it was said. I only know what she told me she heard. Her takeaway from this session was that one of the panelists said that one of their keys to living well with Parkinson's was that it was very helpful ...
Targeting PD Tremors with Strength Training: Forearm, Wrist and Grip

Targeting PD Tremors with Strength Training: Forearm, Wrist and Grip

Most of us have tremors in our lower arm and wrist. In this video, we discuss strength training exercises targeting the forearm, wrist and grip ... simple low intensity exercises that are a great way to start the day. The equipment used in this video: TheraBand FlexBar - https://www.amazon.com/TheraBand-Tendonitis-Strength-Resistance-Tendinitis/dp/B000KGOMBC/ Grip Strengthener: https://www.amazon.com/ADMA-Strengthener-Adjustable-Resistance-Rehabilitation/dp/B07DB2QL6M/ Bowflex SelectTech Adjustable Dumbbells - https://www.amazon.com/Bowflex-SelectTech-Adjustable-Dumbbells-Pair/dp/B001ARYU58/ ...