16th Day of Advent

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• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• 16th Day of Advent December 16, 2018 This year we have seen so many amazing individuals set themselves inspiring running challenges in support of The Cure Parkinson’s Trust (CPT) including… CPT supporter Helen Pike (pictured below) took on an incredible ‘Summer of Running’ challenge covering over 400 miles in a bid to raise awareness and funds for Parkinson’s research. Helen completed 7 races over 6 months -…
• Life with Parkinson’s in the Time of COVID-19: April is Parkinson’s Awareness Month April 1, 2020 “The measure of who we are is what we do with what we have.” Vince Lombardi “When you have exhausted all possibilities, remember this: you haven’t.” Thomas Edison Précis: A different world exists today than it did just a few weeks ago, all driven by the COVID-19 pandemic. The virus seemingly favors the elderly who have a pre-existing disease(s); however,…
• Life with Parkinson’s in the Time of COVID-19: April is Parkinson’s Awareness Month April 1, 2020 “The measure of who we are is what we do with what we have.” Vince Lombardi “When you have exhausted all possibilities, remember this: you haven’t.” Thomas Edison Précis: A different world exists today than it did just a few weeks ago, all driven by the COVID-19 pandemic. The virus seemingly favors the elderly who have a pre-existing disease(s); however,…
• Parkinson’s Awareness Month is a time to look outward, not inward March 30, 2019 Who decides which disease or cause can lay claim to a month as an awareness month? I’m just curious, because we’re about to enter April, which for some reason is Parkinson’s Disease Awareness Month. It's not that I don't believe that PD deserves an awareness month. My issue is that I feel like a hypocrite. I am so aware of…
• Shining a light on Parkinson’s November 7, 2019   NOTE: The information in today’s post should not be considered an endorsement of PhotoPharmics or the treatment they are proposing. The author of this blog has had no communication with the company. The information in this post is provided because the author has been asked by readers to discuss it. In October 2018, at the annual International Movement Disorders…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• Monthly research review: February 2020 February 29, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during February 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• Administrative news: One year #PostAc October 1, 2019   Today’s post will be something a little different: 12 months ago today I stepped away from being a Parkinson’s research scientist and joined the Cure Parkinson’s Trust in a new role of deputy director of Research. It has been an amazing (and very busy – note the back dating of this post!) year! I definitely have no regrets, and…
• Monthy research review – December 2019 December 30, 2019   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during December 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• “The injustice of Parkinson’s motivates me” July 16, 2020 Since his Parkinson’s diagnosis 12 years ago, Alex Flynn has completed a staggering number of adventures – from finishing a 160-mile run in the Bavarian Alps in Germany, to cycling, climbing, kayaking and running his way across 3,256 miles of America. He tells us about his approach to fundraising for the condition – and what motivates him to keep moving…
• The 2019 Linked Clinical Trials meeting October 16, 2019   Things were a bit quiet on the SoPD over the summer, but for good reasons. There was a short hiatus for a family break, but the rest of the time I was rather occupied with the day job. Tremendous efforts were being made at the Cure Parkinson’s Trust, as we were gearing up for our main event of the…
• Milestones in Parkinson’s Disease Research and Discovery April 11, 2017 “The real voyage of discovery consists not in seeking new landscapes, but in having new eyes.” Marcel Proust “The process of scientific discovery is, in effect, a continual flight from wonder.” Albert Einstein Preface:  Happy birthday to James Parkinson (neurologist, geologist, scientist, activist),  born April 11, 1755 and died December 21, 1824.  World Parkinson’s Day April 11, 2017. Introduction to…
• The Source to Salt – Six Marathons in Six Days June 6, 2019 Andrew “Pegs” Pengelly is an inspiring story of courage in the face of adversity. After learning of his diagnosis in his early fifties, Andrew set about constructing a new vision for his life. Part of that vision was a plan of exercise and this year he decided to run over 300km along the River Thames in London. Recently, we asked…
• Run for Parkinson’s: campaigners raise £321,000 at London marathon May 4, 2017 A record number of runners took part in the gruelling 26.2-mile London marathon and many – including celebrities and bloggers – were raising money for Parkinson’s research. Here, we round up a social media snapshot of their epic efforts all the way to the finish line Most people need a charitable reason to inspire them to run a marathon. For 235 out…
• Monthly Research Review – November 2019 November 30, 2019   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during November 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• Helen Pike's Summer of Running September 13, 2018 This summer The Cure Parkinson’s Trust (CPT) supporter Helen Pike took on an incredible ‘Summer of Running’ challenge covering over 400 miles in a bid to raise awareness and funds for Parkinson’s research. Helen said:  “Parkinson's has affected my family, including my lovely Mum over the decades and I wish to do everything I can to prevent this cruel disease…
• Helen Pike's Summer of Running September 13, 2018 This summer The Cure Parkinson’s Trust (CPT) supporter Helen Pike took on an incredible ‘Summer of Running’ challenge covering over 400 miles in a bid to raise awareness and funds for Parkinson’s research. Helen said:  “Parkinson's has affected my family, including my lovely Mum over the decades and I wish to do everything I can to prevent this cruel disease…