40 years of Parkinson’s can wear a man down; not Brian Hall

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• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• Brief Report: Social Isolation and Loneliness are Risk Factors for Worsening Parkinson’s Symptoms December 28, 2020 “A person is a person through other persons; you can’t be human in isolation; you are human only in relationships.” Desmond Tutu “There is a difference between solitude and isolation. One is connected and one isn’t. Solitude replenishes, isolation diminishes.” Henry Cloud Précis: Humans need connection, contact, and social interactions to thrive and survive. We define social isolation as the…
• Everything You Ever Wanted to Know about eBikes for People with Parkinson’s… and More May 10, 2018 Biking has long been recommended for people with Parkinson’s. Regular time on the bike can improve gait, balance, flexibility, motor coordination and strength. Not to mention emotional well-being. Beyond that, physicians and physical therapists agree that regular exercise can improve memory and thinking and reduce the risk of falls in people with Parkinson’s. Which is why we’re so excited about…
• How to Build Resilience and Live Well with Parkinson’s September 8, 2020 As the global pandemic continues to disrupt the daily routines, medical care, and exercise programs for our Parkinson’s community, stress levels are high and spirits may be dwindling. While these are normal reactions to prolonged isolation and uncertainty about the future, they can lead to a not-so-healthy mental state, and they can be detrimental to Parkinson’s symptoms in the long-term. In order…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• 8 Reasons to Use Your Bike as a Tool for Good March 28, 2019 We often talk about the benefits that cycling has for people living with Parkinson’s, but what are the benefits we all share when we ride and fundraise for a cause we care about? Here are eight benefits that members of Team DPF have shared with us and why many of them—people with Parkinson’s, Parkinson’s care partners, friends, family members, Parkinson’s…
• Reflections on World Parkinson Congress 2016 September 28, 2016 This was my first time attending the World Parkinson Congress. I suppose that is understandable considering that the congress is held every 3 years, and it has only been 2-1/2 years since my diagnosis. Prior to that, PD was not on my radar. As a congress newbie PwP, I thought I would share a few of my thoughts and "take-aways" from…
• How to Be the Parkinson’s Care Partner Your Partner Needs March 15, 2018 Photo care of World Parkinson Coalition® In honor of our celebration of Parkinson’s care partner week, we sat down with two Davis Phinney Foundation ambassadors, Brian and Lily Reedy, to talk to them about what life has been like since diagnosis and how they’ve adjusted to the new roles they play in each other’s lives.Here’s what they had to say.…
• 3 Ways to be a Parkinson’s Advocate July 13, 2020 Over one million people in the US are living with Parkinson’s today, which is more than the number of people diagnosed with multiple sclerosis, muscular dystrophy, and Lou Gehrig’s disease (ALS) combined. It’s the fastest-growing neurological disorder, a leading cause of disability in the world, and it’s on track to DOUBLE by the year 2040.  And that’s just the tip…
• 3 Ways to be a Parkinson’s Advocate July 13, 2020 Over one million people in the US are living with Parkinson’s today, which is more than the number of people diagnosed with multiple sclerosis, muscular dystrophy, and Lou Gehrig’s disease (ALS) combined. It’s the fastest-growing neurological disorder, a leading cause of disability in the world, and it’s on track to DOUBLE by the year 2040.  And that’s just the tip…
• 3 Ways to be a Parkinson’s Advocate July 13, 2020 Over one million people in the US are living with Parkinson’s today, which is more than the number of people diagnosed with multiple sclerosis, muscular dystrophy, and Lou Gehrig’s disease (ALS) combined. It’s the fastest-growing neurological disorder, a leading cause of disability in the world, and it’s on track to DOUBLE by the year 2040.  And that’s just the tip…
• Moments of Victory® – Catherine Strisik Shares Memories of Her Husband, Larry June 6, 2019 In this special Moments of Victory® post, Catherine Strisik talks about life with her husband, Larry Schreiber, and how they lived well with Parkinson’s up until his death in early 2016. What was your journey like once Larry was diagnosed? As the wife of Larry Schreiber, and as a writer, I immediately began writing down everything that was happening with Larry.…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Monthly Research Review – December 2020 December 31, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during December 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Conferences/lectures Other news…
• Having a Wellness Map and a Healing Perspective Can Lead to Well-being Moments July 12, 2019 A man walks into a store and asks for a map. The storekeeper responds, “We have lots of maps. Where are you going?” The man snaps, “Anywhere but here.” The shopkeeper says, “Sorry. We don’t have a map to ‘anywhere but here.’” When I was first hit with a sudden loss of vision, I wanted to escape. Anywhere was better…
• Aberrant resting-state oscillatory brain activity in Parkinson's disease patients with visual hallucinations: An MEG source-space study. March 22, 2019 Related ArticlesAberrant resting-state oscillatory brain activity in Parkinson's disease patients with visual hallucinations: An MEG source-space study. Neuroimage Clin. 2019 Mar 13;22:101752 Authors: Dauwan M, Hoff JI, Vriens EM, Hillebrand A, Stam CJ, Sommer IE Abstract To gain insight into possible underlying mechanism(s) of visual hallucinations (VH) in Parkinson's disease (PD), we explored changes in local oscillatory activity in different…
• Little Big Things™ – Parkinson’s Innovations to Help You Live Well October 29, 2019 All photos Chris Ocken What do a piece of saran wrap, a Nordic ski pole and an eBike have in common? All are everyday items that help people with Parkinson’s live well. And a couple of weeks ago in Austin, TX, we called them innovations or the Little Big Things that provide meaningful solutions to those living with Parkinson’s. For…
• Reader Response: “Grief” January 26, 2020 One of my New Year’s Resolutions for 2020 is to explore death at an intellectual level by reading what greater and more articulate minds than mine have written on the subject.  Thus, I recently read the first-person narrative, “Grief,” written by V.S. Naipaul, and published in The New Yorker on January 6. To review this article, I will follow the…
• How to Find Inspiration While Living with Parkinson’s May 23, 2019 Written by Brian Reedy, Davis Phinney Foundation Ambassador and retired high school teacher living with Parkinson’s since 2011 Over the past 10 years of living with Parkinson’s, I’ve discovered that people tend to approach it in one of two ways: they either see their lives as essentially over and they shut down, or they accept it as one of the unfortunate…