A Checklist for Supporting Someone with Parkinson’s

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• The Parkinson’s Home Safety Checklist June 5, 2018 Making your home safe and comfortable is an important part of living well with Parkinson’s. That’s why we’ve spent the past couple of months asking people with Parkinson’s, occupational therapists (OTs), physical therapists (PTs) and care partners some of the most instrumental changes people with Parkinson’s can make to ensure their home is as safe and as comfortable as possible.…
• Ten things I’d tell myself if I were my friend April 17, 2016 Writing Smiles and Tears I once said to someone who gave me unsolicited advice on how to deal with Parkinson’s: look, I might be losing my health, but I’m certainly not losing my mind. So if I need advice, I’ll ask for it, okay? And you might or might not be on my preferred shortlist of advisors. That was […]…
• Fake News in Parkinson’s – Young Onset Conference 2017 November 20, 2017 To tackle all of those things that you will have seen you will have heard and I think the overriding message is if you heard it first from Google or a friend of a friend then probably and you should investigate further before you go spend any money you know whether it’s seaweed or whether it’s electric shocks the nipples…
• Parkinson’s Disease: A Family Affair August 12, 2019 Can we talk? Today, this soon to be 54-year-old-gray-hair-PD-bloggin’-mama-of-four (breath)… is on a mission. I have a message to share, a story to tell. Why? Because the love of my life has Parkinson’s…
• When Parkinson’s Is Ruining the Romance July 23, 2019 How would you define intimacy? Maybe it’s having a cup of coffee with a friend while sharing your thoughts about the latest “The Handmaid’s Tale” episode. Then again, maybe it’s when you have a…
• Parkinson’s Resources – Printable Guides December 1, 2019 At the Davis Phinney Foundation, we believe that communicating and collaborating with members of our community are critical. It’s how we learn what you care about most, what resources you’re looking for and what we can do to support you. The following are guides we’ve put together based on feedback and requests from our community members, and they’re designed to…
• 3 Years In……. April 21, 2018 On April 22 it will be my 3 year “anniversary” of being diagnosed with Young Onset Parkinson’s Disease. (Gosh, I just don’t know what to get myself) As I think about this date I really don’t know how to feel. Obviously there will not be a party or dinner with friends. I hate having this disease. I don’t know why…
• Do people with Parkinson’s still have…errr… March 10, 2019 Mariette Robijn It’s not really sustainable, having a sports coach with Parkinson’s. I mean: how on earth will you be able to get around 2 years from now? You’ve got a disease that’s only going to get progressively worse. And, I’ve seen no end of older people with dementia. That doesn’t apply to you lot, obviously. But […] The post…
• Kingdom of Parkinson’s. 5. AllByMyself. May 18, 2019 Mariette Robijn In the meantime, I’ve got the distinct the feeling that I am here alone, AllByMyself. Haplessly tapping away on my phone. Hey, that’s nice. Someone is texting me. Someone: “How are you?” AllByMyself: Oh well, I’m fine… I guess. Someone: “How did you first notice….?” AllByMyself: I’m not sure, really. Didn’t even think anything was […] The post…
• Happy New Year! December 31, 2019 New Year’s Wishes!(the body parts sonnet) Your heart has wished folks well on New Year’s Eve.You’ve sung “Should old acquaintance be forgot…”(Your brain recalled the right words – did it not?),And felt deep in your gut all you’ll achieveIn the year ahead.  You’ve mouthed the wordsAnd eyed the prize you’re sure you’ll win withinThe first few months.  Oh, toe the…
• 6 Things You Should Say to Someone With Parkinson’s Disease October 25, 2017 Finding out a friend, family member or co-worker has Parkinson’s disease is devastating, and despite our best intentions, we often say things that are offensive or hurtful. What the patient really wants to hear is that you’re there for them and thinking of them. With that in mind, we’ve compiled a list of things you should say to a person…
• Hope and the Top of the Pyramid July 9, 2018 Growing up my kids never really questioned their father’s illness but now as they mature every now and then they will ask, “so what’s going to happen?”The truth… “I don’t know.”I honestly don’t know how his illness is going to progress all I know is that it will progress so it’s hard to hope for anything good to come out…
• Our Corporate Partners April 29, 2019 Pictured above: The team from Cambridge Cognition before they embarked on a three day 84-mile walk along Hadrian's Wall to raise funds for The Cure Parkinson's Trust We commit our energy, enthusiasm and resources to ensuring the success of our corporate partnerships and we have been delighted to partner with the companies below. Their support has made a real difference…
• My 3 Keys to Living With Parkinson's Disease July 9, 2019 A few years ago, the Parkinson’s Foundation published an online article titled “Improving Brain Function with Exercise, Connectedness and Creativity.” (But it’s no longer on their website…oh-oh…oh, ...
• My 3 Keys to Living With Parkinson's Disease July 9, 2019 A few years ago, the Parkinson’s Foundation published an online article titled “Improving Brain Function with Exercise, Connectedness and Creativity.” (But it’s no longer on their website…oh-oh…oh, ...
• The WPC and the BGF Team Up! July 4, 2017 The World Parkinson Coalition (WPC) has teamed up with the Brian Grant Foundation (BGF) led by retired NBA basketball star Brian Grant, who was diagnosed with young onset Parkinson’s disease at age 36, to announce a new campaign to motivate and encourage physical activity and wellness among people with Parkinson’s disease (PD). Called the Parkinson Power Through Project (PTP), Brian…
• The WPC and the BGF Team Up! July 4, 2017 The World Parkinson Coalition (WPC) has teamed up with the Brian Grant Foundation (BGF) led by retired NBA basketball star Brian Grant, who was diagnosed with young onset Parkinson’s disease at age 36, to announce a new campaign to motivate and encourage physical activity and wellness among people with Parkinson’s disease (PD). Called the Parkinson Power Through Project (PTP), Brian…
• Dedicated to all Caregivers... March 20, 2019 Lee and I met when I was 23. He was 33. He was old. He had gray chest hair. Then, he picked up his guitar and that was it. We realized almost immediately that we both have the same sense of humor. We love to laugh. We hate telling and listening to people telling jokes. Sometimes we bug people cause…
• Facial Masks May 6, 2020 It’s a really weird time in the world today.  With COVID-19, many of us are on “shelter at home” orders.  People are encouraged not to leave their homes unless it’s for essential things like groceries or the pharmacy. If we do go out, we need to wear a facial mask and practice social distancing. I haven’t even heard of that phrase, until…
• 7 Early Symptoms People With Parkinson's Disease Noticed First March 4, 2019 The full gamut of symptoms Parkinson’s disease can cause doesn’t typically arrive all at once. If you have Parkinson’s disease, you likely first noticed a mild symptom or two, and thought, “Huh… what’ ...