A highly challenging balance training intervention for people with multiple sclerosis: a feasibility trial

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• The road ahead: 2022 January 20, 2022 # # # # The first post at the start of each year on the SoPD website tries to provide an overview of where things are in the search for ‘disease modifying’ therapies for Parkinson’s.  It is an exercise in managing expectations as well as discussing what research events are scheduled for the next year so that we can keep…
• The road ahead: 2021 January 25, 2021 # # # # At the start of each year, it is a useful practise to layout what is planned over the next 12 months. The events that are scheduled for the year to come, so that we can keep an eye out for them. Obviously, where 2021 will end actually is unpredictable, but an outline of what is scheduled…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• The What, Why, and How of Community Action Committees (CACs) January 20, 2021 In our post announcing our Healthy Parkinson’s Communities initiative, we outlined our three goals:  Ensure Parkinson’s community leaders have the knowledge and resources they need to make a positive and sustainable change in their community  Encourage and support data-informed initiatives designed to increase access to and engagement with resources that improve the quality of life for people with Parkinson’s Work with communities to raise awareness…
• How to Work Full Time & Live Well with Parkinson’s September 17, 2020 One of the most common challenges people with Parkinson’s face is balancing treatment with everyday activities and responsibilities. Exercising, going to medical appointments, attending support groups, focusing on your mental health, and all the other necessities that help you live well with Parkinson’s require a lot of time and energy. For people working when diagnosed, finding a way to balance these demands with their career responsibilities can seem impossible.    A member of our community…
• What You Need to Know about Cycling with Parkinson’s September 15, 2020 So, you want to ride a bike? That’s fabulous! We’re behind you all the way. But we also want to make sure you stay safe and healthy while doing so. So, whether you’re about to take your first or fiftieth ride since your Parkinson’s diagnosis, here’s what you need to know.  #1 – Cycling is good for you  Research shows that people with Parkinson’s experience significant benefits from pushing pedals on…
• Cannabis and Parkinson’s: What to Know About Medical Marijuana, CBD, and more March 25, 2021 Although there is insufficient evidence that recommends using cannabis to treat Parkinson’s motor symptoms, a growing number of people with Parkinson’s are experimenting with it to help ease their symptoms. Others who have not experimented with cannabis products, such as medical marijuana and CBD, are expressing more interest in the subject. Yet, many people do not fully understand the chemical and biological makeup of cannabis plants, the different types of cannabis products, and what the research says about the effects on Parkinson’s symptoms.   A February 2021 study, published in the Journal of Parkinson’s Disease, reported that while…
• What to know about hospital stays and Parkinson’s March 16, 2021 When you’re living with Parkinson’s, hospital stays—planned or unplanned—require special consideration. Here, we’ll share how to prepare for a hospital stay, where to find helpful worksheets, checklists, and kits to take with you, and additional information that can keep you feeling your best during and after your stay.    Prepare Yourself for Changing Symptoms   Your motor symptoms can worsen when you…
• Monthly Research Review – July 2021 July 31, 2021 # # # # At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during July 2021. The post is divided into 10 parts based on the type of research: Top 5 pieces of Parkinson’s news Articles of general interest Basic biology…
• 5 Simple Exercises to Train Your Balance & Live Well with Parkinson’s March 1, 2021 Because Parkinson’s can impact the reflexes needed to maintain an upright posture, people with Parkinson’s may feel unstable while standing upright. This postural instability — better known as poor balance and coordination — can make certain physical activities difficult, and it also increases the risk of falling. The good news is that although postural instability is a common Parkinson’s symptom, it can be managed and mitigated with practice. By training your balance frequently, you can improve your postural stability and even regain some of your automatic balance reflexes.  …
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• Monthly Research Review – November 2020 November 30, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during November 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Conferences/lectures Other news…
• Building Your Parkinson’s Care Team April 7, 2021 Living well with Parkinson’s means living well in all aspects of your life—physical, mental, social, spiritual. One provider can’t possibly treat every part of your life, so, ideally, over time, you will build a holistic, integrated care team and plan that is personalized to YOUR symptoms, needs, and goals.  In the beginning, your primary care physician and neurologist or movement disorder specialist may be the only two people you need on…
• Turning Data into Action March 3, 2021 Your CAC is ready to roll. You have conducted research and completed a community healthy assessment for Parkinson’s (CHAP). Now, what?  The transition from data collection to action can be difficult for some groups. But it’s a crucial transition; it maintains the group’s momentum and engagement and helps the group build self-efficacy. (We’ve all been part of those committees that meet to talk a lot and then lose steam because they never act. We want to…
• 2016 Tai Chi Study Funded by the Davis Phinney Foundation Continues to Help People Live Well with Parkinson’s April 2, 2021 Before he enrolled in a research study about Tai Chi’s impacts on Parkinson’s symptoms, Rob Scott had never practiced the art. Now, five years later, it is an integral part of his life, helping him live well with Parkinson’s at 67.   “Tai Chi feels like a kind of meditation. A kind of paying attention and letting go at the same time.”   Rob was one of the participants in a…
• Formularies, Insurance, and Parkinson’s  September 11, 2020 Navigating health insurance is challenging even for people in the best of health, but when you need a variety of medications to treat your motor and non-motor Parkinson’s symptoms, it can feel even more overwhelming. Having a basic understanding of how insurance companies cover prescription medications, though, can help you get the care you need. Here, we’ll explore how formularies work, and we’ll share information about how your medications are covered, how you can make the most out…
• Monthly Research Review: January 2022 January 31, 2022 # # # # At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during January 2022. The post is divided into 10 parts based on the type of research: Top 6 pieces of Parkinson’s news Articles of general interest Basic biology…
• Meet the Leaders of The Victory Summit® Virtual Event: How to Live Well with Parkinson’s March 13, 2021 Over the past 15 years, our greatest joy has been getting to know people living with Parkinson’s. They are our greatest teachers, sources of inspiration, and the people we reach out to when we want to hear the real deal. That’s why we’re handing over our next The Victory Summit® Virtual Event to them. Join these speakers and the Foundation on April 2 as we celebrate Parkinson’s Awareness…
• Monthly research review: February 2020 February 29, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during February 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• Monthly research review – March 2021 March 31, 2021 # # # # At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during March 2021. The post is divided into ten parts based on the type of research: Top 5 pieces of Parkinson’s news Articles of general interest Basic biology…
• Monthly Research Review – October 2022 October 31, 2022 # # # # At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during October 2022. The post is divided into 10 parts based on the type of research: Top 5 pieces of Parkinson’s news Articles of general interest Basic biology…
• Monthly Research Review – May 2021 May 31, 2021 # # # # At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during May 2021. The post is divided into 10 parts based on the type of research: Top 5 pieces of Parkinson’s news Articles of general interest Basic biology…