A leap into the unknown

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• The road ahead: 2021 January 25, 2021 # # # # At the start of each year, it is a useful practise to layout what is planned over the next 12 months. The events that are scheduled for the year to come, so that we can keep an eye out for them. Obviously, where 2021 will end actually is unpredictable, but an outline of what is scheduled…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• Speech, Voice & Parkinson’s Q&A with John Dean January 28, 2021 We recently hosted a webinar with speech-language pathologist John Dean. You can get access to the recording here. We received so many questions during the session that we weren’t able to answer them all; so, John was kind enough to do some written Q&A for us. “When is a good time to start speech therapy?” It’s much better to maintain…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Shining a light on Parkinson’s November 7, 2019   NOTE: The information in today’s post should not be considered an endorsement of PhotoPharmics or the treatment they are proposing. The author of this blog has had no communication with the company. The information in this post is provided because the author has been asked by readers to discuss it. In October 2018, at the annual International Movement Disorders…
• Fan Fiction: The Joke Machine February 19, 2021 Parking Suns reader David Schneider contributed this amusing-but-still-kinda-scary short story about a man dealing with Parkinson’s on a typical day. Thank you, David! The Joke Machine – – David Schneider Once a friend had come for a weekend visit and ended up staying for two years. The “guest” paid half the rent and slept with a single blanket on the…
• ReWriting the World February 16, 2020 The following is an expanded version of a piece that recently appeared in Times Higher Education. It was written with Prof. Hilal A. Lashuel, the director of the laboratory of molecular and chemical biology of neurodegeneration at the Swiss Federal Institute of Technology Lausanne (École Polytechnique Federale de Lausanne, EPFL).     “That’s it, that’s the cure.” I stood squinting at…
• ReWriting the World February 16, 2020 The following is an expanded version of a piece that recently appeared in Times Higher Education. It was written with Prof. Hilal A. Lashuel, the director of the laboratory of molecular and chemical biology of neurodegeneration at the Swiss Federal Institute of Technology Lausanne (École Polytechnique Federale de Lausanne, EPFL).     “That’s it, that’s the cure.” I stood squinting at…
• ReWriting the World February 16, 2020 The following is an expanded version of a piece that recently appeared in Times Higher Education. It was written with Prof. Hilal A. Lashuel, the director of the laboratory of molecular and chemical biology of neurodegeneration at the Swiss Federal Institute of Technology Lausanne (École Polytechnique Federale de Lausanne, EPFL).     “That’s it, that’s the cure.” I stood squinting at…
• ReWriting the World February 16, 2020 The following is an expanded version of a piece that recently appeared in Times Higher Education. It was written with Prof. Hilal A. Lashuel, the director of the laboratory of molecular and chemical biology of neurodegeneration at the Swiss Federal Institute of Technology Lausanne (École Polytechnique Federale de Lausanne, EPFL).     “That’s it, that’s the cure.” I stood squinting at…
• ReWriting the World February 16, 2020 The following is an expanded version of a piece that recently appeared in Times Higher Education. It was written with Prof. Hilal A. Lashuel, the director of the laboratory of molecular and chemical biology of neurodegeneration at the Swiss Federal Institute of Technology Lausanne (École Polytechnique Federale de Lausanne, EPFL).     “That’s it, that’s the cure.” I stood squinting at…
• ReWriting the World February 16, 2020 The following is an expanded version of a piece that recently appeared in Times Higher Education. It was written with Prof. Hilal A. Lashuel, the director of the laboratory of molecular and chemical biology of neurodegeneration at the Swiss Federal Institute of Technology Lausanne (École Polytechnique Federale de Lausanne, EPFL).     “That’s it, that’s the cure.” I stood squinting at…
• ReWriting the World February 16, 2020 The following is an expanded version of a piece that recently appeared in Times Higher Education. It was written with Prof. Hilal A. Lashuel, the director of the laboratory of molecular and chemical biology of neurodegeneration at the Swiss Federal Institute of Technology Lausanne (École Polytechnique Federale de Lausanne, EPFL).     “That’s it, that’s the cure.” I stood squinting at…
• ReWriting the World February 16, 2020 The following is an expanded version of a piece that recently appeared in Times Higher Education. It was written with Prof. Hilal A. Lashuel, the director of the laboratory of molecular and chemical biology of neurodegeneration at the Swiss Federal Institute of Technology Lausanne (École Polytechnique Federale de Lausanne, EPFL).     “That’s it, that’s the cure.” I stood squinting at…
• ReWriting the World February 16, 2020 The following is an expanded version of a piece that recently appeared in Times Higher Education. It was written with Prof. Hilal A. Lashuel, the director of the laboratory of molecular and chemical biology of neurodegeneration at the Swiss Federal Institute of Technology Lausanne (École Polytechnique Federale de Lausanne, EPFL).     “That’s it, that’s the cure.” I stood squinting at…
• Monthly research review – March 2021 March 31, 2021 # # # # At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during March 2021. The post is divided into ten parts based on the type of research: Top 5 pieces of Parkinson’s news Articles of general interest Basic biology…
• The basket case February 10, 2021 # # # # One of the more interesting pieces of clinical trial news in 2020 was the publication of the results of a “basket study” for neurological conditions. This was a trial that involved a drug being tested on a selection of neurodegenerative conditions, rather than just one condition. Between December 2013 to May 2017, researchers recruited a total…
• EDITORIAL: Paywalls November 27, 2020 # # # # Today’s post is a rant about the research publishing industry – explaining the hole they have dug for themselves and us (via profiteering and a lack of innovation), discussing how the research community supports the system, and exploring efforts to solve the problem. You will be forgiven if you don’t read on, but understand that this…