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• Hope fatigue: will there ever be a cure? February 1, 2020 Saturday 1 February 2020At the start of 2020 there was a flurry of posts on various Parkinson’s forums about all the promising research and clinical trials in progress, not to mention a few puns around “20/20 vision”.Rather than repeat it all here (and probably get some of it wrong), I would refer you instead to The Science of Parkinson’s take…
• Canadian Open Parkinson Network funding begins collaboration platform to accelerate Parkinson’s disease research and knowledge November 27, 2018 TORONTO, ON — (November 27, 2018)—Parkinson Canada together with Brain Canada are pleased to announce the creation of the Canadian Open Parkinson Network (C-OPN). The $2 million Platform Grant is intended to support the initial development and maintenance of a large-scale research network that is built on the foundation of the established and successful Quebec Parkinson Network (QPN), and involve multiple provinces,…
• CEO Listening Tour identifies key themes among Parkinson Community November 6, 2020 In April 2020, Parkinson Canada welcomed new President and CEO, Dr. Karen Lee, just weeks after the global outbreak of COVID-19. Throughout the summer Karen embarked on an 8-session virtual listening tour with participants from across Canada. Participants shared their resilience, passion, and determination for the Parkinson’s community through sharing their experiences living with Parkinson’s, involvement in their communities, and…
• The Canadian Open Parkinson Network—National Research Platform Accelerates Parkinson’s Disease Discoveries June 16, 2020 TORONTO, ON — (June 16, 2020)—Parkinson Canada invites people living with Parkinson’s disease to join the Canadian Open Parkinson Network (C-OPN) to be part of the solution to improve lives for those living with Parkinson’s and ultimately to help discover a cure.  Phase one of C-OPN brings together many of Canada’s best in Parkinson’s research with eight sites initially taking…
• The Canadian Open Parkinson Network—National Research Platform Accelerates Parkinson’s Disease Discoveries June 16, 2020 TORONTO, ON — (June 16, 2020)—Parkinson Canada invites people living with Parkinson’s disease to join the Canadian Open Parkinson Network (C-OPN) to be part of the solution to improve lives for those living with Parkinson’s and ultimately to help discover a cure.  Phase one of C-OPN brings together many of Canada’s best in Parkinson’s research with eight sites initially taking…
• The Canadian Open Parkinson Network—National Research Platform Accelerates Parkinson’s Disease Discoveries June 16, 2020 TORONTO, ON — (June 16, 2020)—Parkinson Canada invites people living with Parkinson’s disease to join the Canadian Open Parkinson Network (C-OPN) to be part of the solution to improve lives for those living with Parkinson’s and ultimately to help discover a cure.  Phase one of C-OPN brings together many of Canada’s best in Parkinson’s research with eight sites initially taking…
• The Canadian Open Parkinson Network—National Research Platform Accelerates Parkinson’s Disease Discoveries June 16, 2020 TORONTO, ON — (June 16, 2020)—Parkinson Canada invites people living with Parkinson’s disease to join the Canadian Open Parkinson Network (C-OPN) to be part of the solution to improve lives for those living with Parkinson’s and ultimately to help discover a cure.  Phase one of C-OPN brings together many of Canada’s best in Parkinson’s research with eight sites initially taking…
• The Canadian Open Parkinson Network—National Research Platform Accelerates Parkinson’s Disease Discoveries June 16, 2020 TORONTO, ON — (June 16, 2020)—Parkinson Canada invites people living with Parkinson’s disease to join the Canadian Open Parkinson Network (C-OPN) to be part of the solution to improve lives for those living with Parkinson’s and ultimately to help discover a cure.  Phase one of C-OPN brings together many of Canada’s best in Parkinson’s research with eight sites initially taking…
• The Canadian Open Parkinson Network—National Research Platform Accelerates Parkinson’s Disease Discoveries June 16, 2020 TORONTO, ON — (June 16, 2020)—Parkinson Canada invites people living with Parkinson’s disease to join the Canadian Open Parkinson Network (C-OPN) to be part of the solution to improve lives for those living with Parkinson’s and ultimately to help discover a cure.  Phase one of C-OPN brings together many of Canada’s best in Parkinson’s research with eight sites initially taking…
• The Canadian Open Parkinson Network—National Research Platform Accelerates Parkinson’s Disease Discoveries June 16, 2020 TORONTO, ON — (June 16, 2020)—Parkinson Canada invites people living with Parkinson’s disease to join the Canadian Open Parkinson Network (C-OPN) to be part of the solution to improve lives for those living with Parkinson’s and ultimately to help discover a cure.  Phase one of C-OPN brings together many of Canada’s best in Parkinson’s research with eight sites initially taking…
• CEO Listening Tour identifies key themes among Parkinson Community November 10, 2020 In April 2020, Parkinson Canada welcomed new President and CEO, Dr. Karen Lee, just weeks after the global outbreak of COVID-19. Throughout the summer Karen embarked on an 8-session virtual listening tour with participants from across Canada. The purpose of the CEO Listening Tour was for Karen to meet stakeholders who are integral to the Parkinson’s community and who have…
• Parkinson Canada and McKesson Canada to Bring Personal Touch to SuperWalk Supporters September 11, 2020 TORONTO, September 11, 2020 – This year marks the 30th anniversary of Parkinson Canada SuperWalk, an annual event that allows thousands of Canadians to come together and walk in support of people living with Parkinson’s disease. Due to the new social and fundraising landscape shaped by Covid-19, the 30th anniversary will be different this year. Since the campaign launched in…
• Parkinson Canada and McKesson Canada to Bring Personal Touch to SuperWalk Supporters September 11, 2020 TORONTO, September 11, 2020 – This year marks the 30th anniversary of Parkinson Canada SuperWalk, an annual event that allows thousands of Canadians to come together and walk in support of people living with Parkinson’s disease. Due to the new social and fundraising landscape shaped by Covid-19, the 30th anniversary will be different this year. Since the campaign launched in…
• Parkinson Canada Showcases Excellence through Continued Accreditation from Imagine Canada June 20, 2019 (Toronto, June 20, 2019) Parkinson Canada is pleased to announce that it is accredited since 2013 under the rigorous Imagine Canada Standards Program for demonstrating excellence in five areas of operations. “Parkinson Canada is proud of our continued accreditation as one of 240 organizations in good standing in the Imagine Canada Standards Program,” says Joyce Gordon, CEO of Parkinson Canada. “We…
• Parkinson Canada Showcases Excellence through Continued Accreditation from Imagine Canada June 20, 2019 (Toronto, June 20, 2019) Parkinson Canada is pleased to announce that it is accredited since 2013 under the rigorous Imagine Canada Standards Program for demonstrating excellence in five areas of operations. “Parkinson Canada is proud of our continued accreditation as one of 240 organizations in good standing in the Imagine Canada Standards Program,” says Joyce Gordon, CEO of Parkinson Canada. “We…
• Technology and Parkinson’s Disease September 20, 2019 I watched the Apple September 2019 Keynote Presentation live this year. You can watch it here. It’s long so be prepared if you plan to watch it. Normally I just wait until it’s done and then go to their website and see whats new. During the Apple Watch – Series 5 presentation something caught my eye – Fall Detection. This…
• Technology and Parkinson’s Disease September 20, 2019 I watched the Apple September 2019 Keynote Presentation live this year. You can watch it here. It’s long so be prepared if you plan to watch it. Normally I just wait until it’s done and then go to their website and see whats new. During the Apple Watch – Series 5 presentation something caught my eye – Fall Detection. This…
• Technology and Parkinson’s Disease September 20, 2019 I watched the Apple September 2019 Keynote Presentation live this year. You can watch it here. It’s long so be prepared if you plan to watch it. Normally I just wait until it’s done and then go to their website and see whats new. During the Apple Watch – Series 5 presentation something caught my eye – Fall Detection. This…
• Fall Detection with the Apple Watch September 20, 2019 During the recent Apple product update announcements, something caught my eye and might be of interest to others with Parkinson's – Fall Detection. This watch can now detect if you have fallen and, in reaction, call 911 and an emergency contact if needed. Here is how it works...
• Newly established Parkinson Advisory Council (PAC) prioritizes raising the voice of people affected by Parkinson’s December 15, 2020 Raising the voice of people affected by Parkinson’s has always been an important priority of Parkinson Canada and was one of the guiding principles behind Karen Lee’s CEO Listening Tour this summer, hosted just months after joining the organization. What became clear there is the priority for a greater inclusion of the Parkinson Voice – your voice – in the…
• Parkinson Canada targets gaps in services and treatments March 26, 2019 TORONTO, ON, March 26, 2019—Whether you are newly diagnosed with Parkinson’s or the care partner to someone in their third decade of living with this life-changing disease, timely information, care and treatments makes the difference between living well and experiencing hardship. This April, during Parkinson Awareness Month, Parkinson Canada wants Canadians to know that they can now access tools and resources…
• PAIN: Does Parkinson's Cause Pain, or Does Pain Make Other PD Symptoms Worse? July 17, 2019 Is pain a symptom of Parkinson’s? Or do the motor symptoms of PD directly or indirectly cause pain? Or is pain a symptom of something else? Arthritis? Aging? Or is pain a result of lack of exercise? Over exercise? Improper exercise form? Improper exercise instruction? Some combination of factors? Those are interesting questions, but more importantly does pain contribute to…