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• Monitoring an Apple in motion June 16, 2021 # # # # Wearable technology offers the potential to more accurately monitor the symptoms of Parkinson’s in real time. Such information could allow for better and more precise management of the condition, as well as providing objective measures for clinical trials exploring novel therapies. Assessing some of the features of Parkinson’s, however, is not easy. Differentiating jerky involuntary movements…
• Fall Detection with the Apple Watch September 20, 2019 During the recent Apple product update announcements, something caught my eye and might be of interest to others with Parkinson's – Fall Detection. This watch can now detect if you have fallen and, in reaction, call 911 and an emergency contact if needed. Here is how it works...
• Back to the Future's Doc and Marty Reunite at NYCC - CBR - Comic Book Resources October 8, 2022 Back to the Future's Doc and Marty Reunite at NYCC  CBR - Comic Book Resources
• 10 Most Anticipated Movie & TV Releases Of December 2022 - CBR - Comic Book Resources November 27, 2022 10 Most Anticipated Movie & TV Releases Of December 2022  CBR - Comic Book Resources
• Superman's Valerie Perrine Launches GoFundMe for Parkinson's ... - CBR - Comic Book Resources January 2, 2023 Superman's Valerie Perrine Launches GoFundMe for Parkinson's ...  CBR - Comic Book Resources
• How to turn your book about Parkinson’s into an audiobook (Or, How I’m growing into Parkinson’s) February 14, 2021 Written by Carol Clupny, Davis Phinney Foundation Ambassador  I remember as a child being asked, “What do you want to be when you grow up?” The answer remained much the same from grade school through high school: “I want to be a veterinarian.”    But a funny thing happened on the way to vet school. I became a speech-language pathologist. And after that, I…
• September 28, 2019 - Parkinson FIT Weekend Update September 28, 2019 This Week’s Highlights: PD vs. Sleep (Sleeping with the enemy); smart watch fall detection; Every Day is Opening Day; Could an existing prostrate drug really slow down PD progression?; Can exergaming really motivate couch potatoes or is it an excuse for overpriced exercise equipment that gets used for only a few months before it becomes a dust collecting eyesore in…
• Healthy Parkinson’s Communities™: March Resource Roundup March 26, 2021 In January and February, we shared resources we found meaningful in introducing collective impact, cross-sector collaborations, developing a Community Action Committee, managing effective teams, and building powerful partnerships.   This month, we’re sharing resources to help you get started creating change in your community. Creating change can mean a lot of things; we focus here on determining where to start your…
• What’s New in the Parkinson’s World This Month August 29, 2021 In the end, this book is an empowering exploration of exquisite women. Facing the battle of our lives with strength, grace and dignity. 26 women fighting fate, facing facts, conquering fear.Laura Russell, author There has been some remarkable news in the Parkinson’s world in the last few weeks: (1) The EPA has banned the pesticide Chlorpyrifos, (2) a molecule called…
• High School Student Writes Children’s Book in Support of Parkinson’s Awareness January 19, 2022 The first time most children hear about Parkinson’s is when a relative is diagnosed with it. When that happens, children will have questions about the disease and, likely, fears. They may even have heard misinformation from outside sources, all of which can be a challenge for parents and family to address. One high school student whose grandfather lived with Parkinson’s…
• Photobiomodulation, Low-Level Laser Therapy (LLLT) and Neuroplasticity June 27, 2019 I first read about red light therapy for the brain in the Norman Doidge book from 2015, “The Brain's Way of Healing: Remarkable Discoveries and Recoveries from the Frontiers of Neuroplasticity”. Neuroplasticity refers to the ability of the brain to change continuously throughout an individual's life, and the book explores different factors that may promote positive changes, particularly in the…
• Our approach to failure February 14, 2021 # # # # Recently the results of two large clinical trials in Parkinson’s were announced. Both indicated that the therapies involved had not demonstrated any impact on the progression of Parkinson’s. This disappointing news resulted in the usual headlines (“Epic failure” & “Clinical trial tanks”) from news outlets whose editors have obviously never lost anyone they cared about. In…
• Health Disparities and Parkinson’s: Bridging the Gap between Urban and Rural February 16, 2021 When it comes to addressing the needs of a Parkinson’s community, we often talk about an urban/rural divide. It is assumed that the barriers and health disparities that exist for those living in large cities and rural communities are vastly different, but some experts now are suggesting this may not really be the case. In this episode, a panel of…
• The Well of Resources: Managing Chronic Illness March 4, 2022 It’s the hand I have been dealt: Parkinson’s for the rest of my life. The good news is I have lucid days. With the right tools, I can remain a productive member of society and a minimal burden on family. I maintain a mental image, my “well of resources,” throughout the day. It’s my internal fuel tank that I must…
• Rune Labs' Apple Watch tracking for Parkinson's earns FDA green light - STAT June 13, 2022 Rune Labs' Apple Watch tracking for Parkinson's earns FDA green light  STATRune Labs Secures FDA Clearance for Parkinson's Disease Monitoring through StrivePD Ecosystem on Apple Watch  PR NewswireApple Watch Parkinson's monitoring app gets FDA approval for clinical use  9to5MacRune Labs gets FDA clearance to use Apple Watch to track Parkinson's symptoms  Reuters.comThe Apple Watch Has Been Cleared by the FDA to Monitor Parkinson’s Disease…
• Rune Labs' Apple Watch-based Parkinson's disease tracker gets FDA clearance - The Verge June 13, 2022 Rune Labs' Apple Watch-based Parkinson's disease tracker gets FDA clearance  The VergeRune Labs Secures FDA Clearance for Parkinson's Disease Monitoring through StrivePD Ecosystem on Apple Watch  BioSpaceStartup gets green light to use Apple Watch to track Parkinson's symptoms  STATRune Labs gets FDA clearance to use Apple Watch to track Parkinson's symptoms  Reuters.comApple Watch Parkinson's monitoring app gets FDA approval for clinical use  9to5Mac
• ‘No Time Like the Future’: Michael J Fox announces new book March 12, 2020 US actor and Parkinson’s campaigner Michael J Fox shares “a moving account of resilience, hope, fear and mortality” in his new book set for release this November Michael J Fox, the ‘Back to the Future’ star who was diagnosed with Parkinson’s in 1991, has announced his fourth book: ‘No Time Like the Future: An Optimist Considers Mortality’. Described by publisher…
• The Old Well Ain’t What She Used to Be May 7, 2021 I used to bound out of bed, my internal well of resources fully refreshed, ready to tackle anything the day presented. Not anymore. The old well ain’t what she used to be. With Parkinson’s disease, I don’t sleep well. Despite my best efforts, I don’t start the day with a deep well of resources. Every day, I commit a substantial…
• Parkinson Canada and the Davis Phinney Foundation launch the Canadian Edition of Every Victory Counts® July 7, 2022 Parkinson Canada has partnered with the Davis Phinney Foundation to publish the latest edition of the Every Victory Counts® manual, creating a resource brimming with the information Canadians need to live well with Parkinson’s. The Canadian Edition is now available! This world-renowned resource has reflected the state of Parkinson’s in the USA since its release in 2010. For the first…
• Community Resources for staying home April 5, 2020 Thanks to the Parkinson’s community, there are many ways to learn and connect while you’re safe at home. We’ve been contacted by organizations across the country with resources to keep you meaningfully engaged from the safety of your home. Below are some resources to learn and connect. BGF Resources Our online exercise videos and cooking videos are great ways to…
• Finding the Best Things During the Worst Times December 14, 2020 It’s hard to look back on this past year without finding some sort of grief, anger, confusion, heartache, or other emotion that gives us pause. We stop and ask ourselves if anything good has come of this year or if we took unwelcome steps, one after another, that led us to sorrow upon sorrow.  Is it possible to look back…
• Monthly Research Review – October 2021 October 31, 2021 # # # # At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during October 2021. The post is divided into 10 parts based on the type of research: Top 5 pieces of Parkinson’s news Articles of general interest Basic biology…