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• The road ahead: 2021 January 25, 2021 # # # # At the start of each year, it is a useful practise to layout what is planned over the next 12 months. The events that are scheduled for the year to come, so that we can keep an eye out for them. Obviously, where 2021 will end actually is unpredictable, but an outline of what is scheduled…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• Parkinson's Caregiver Burnout: Handling Grief, Anxiety, and Depression November 8, 2018 One of the biggest myths about grief is that it only follows a death. The truth is that grief can show up long before death arrives and can often be triggered the moment a Parkinson’s diagnosis is delivered. This concept, called Anticipatory Grief, can affect everyone - the person diagnosed, their spouse, their children, their close friends - yet often…
• Parkinson's Caregiver Burnout: Handling Grief, Anxiety, and Depression November 8, 2018 One of the biggest myths about grief is that it only follows a death. The truth is that grief can show up long before death arrives and can often be triggered the moment a Parkinson’s diagnosis is delivered. This concept, called Anticipatory Grief, can affect everyone - the person diagnosed, their spouse, their children, their close friends - yet often…
• Parkinson's Caregiver Burnout: Handling Grief, Anxiety, and Depression November 8, 2018 One of the biggest myths about grief is that it only follows a death. The truth is that grief can show up long before death arrives and can often be triggered the moment a Parkinson’s diagnosis is delivered. This concept, called Anticipatory Grief, can affect everyone - the person diagnosed, their spouse, their children, their close friends - yet often…
• Parkinson's Caregiver Burnout: Handling Grief, Anxiety, and Depression November 8, 2018 One of the biggest myths about grief is that it only follows a death. The truth is that grief can show up long before death arrives and can often be triggered the moment a Parkinson’s diagnosis is delivered. This concept, called Anticipatory Grief, can affect everyone - the person diagnosed, their spouse, their children, their close friends - yet often…
• Parkinson's Caregiver Burnout: Handling Grief, Anxiety, and Depression November 8, 2018 One of the biggest myths about grief is that it only follows a death. The truth is that grief can show up long before death arrives and can often be triggered the moment a Parkinson’s diagnosis is delivered. This concept, called Anticipatory Grief, can affect everyone - the person diagnosed, their spouse, their children, their close friends - yet often…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• Monthly Research Review – September 2019 September 30, 2019   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during September 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• The What, Why, and How of Community Action Committees (CACs) January 20, 2021 In our post announcing our Healthy Parkinson’s Communities initiative, we outlined our three goals:  Ensure Parkinson’s community leaders have the knowledge and resources they need to make a positive and sustainable change in their community  Encourage and support data-informed initiatives designed to increase access to and engagement with resources that improve the quality of life for people with Parkinson’s Work with communities to raise awareness…
• Fan Fiction: The Joke Machine February 19, 2021 Parking Suns reader David Schneider contributed this amusing-but-still-kinda-scary short story about a man dealing with Parkinson’s on a typical day. Thank you, David! The Joke Machine – – David Schneider Once a friend had come for a weekend visit and ended up staying for two years. The “guest” paid half the rent and slept with a single blanket on the…
• Speech, Voice & Parkinson’s Q&A with John Dean January 28, 2021 We recently hosted a webinar with speech-language pathologist John Dean. You can get access to the recording here. We received so many questions during the session that we weren’t able to answer them all; so, John was kind enough to do some written Q&A for us. “When is a good time to start speech therapy?” It’s much better to maintain…
• Reader Response: “Grief” January 26, 2020 One of my New Year’s Resolutions for 2020 is to explore death at an intellectual level by reading what greater and more articulate minds than mine have written on the subject.  Thus, I recently read the first-person narrative, “Grief,” written by V.S. Naipaul, and published in The New Yorker on January 6. To review this article, I will follow the…
• The Big 16: What to Say (and What Not to Say) to Someone Who Has Parkinson’s March 13, 2018 What would you say to a friend or family members who just told you they have Parkinson’s? If you’re like most people who are faced with that news, your hope is that you’d have the right reaction, say the right thing and be the exact kind of support they need at that moment. However, as a human being, you’d be…
• Daily Inspiration (Mantra) from the 2018 PWR! (Parkinson Wellness Recovery) Retreat June 7, 2018 “One of the hardest things in life is having words in your heart that you can’t utter.” James Earl Jones “Good actions are a guard against the blows of adversity.” Abu Bakr Introduction:  A new part of the recently completed PWR! (Parkinson Wellness Recovery) retreat for 2018 in Scottsdale, AZ was something termed “Daily Inspiration or Daily Mantra”.  At the…
• Daily Inspiration (Mantra) from the 2018 PWR! (Parkinson Wellness Recovery) Retreat June 7, 2018 “One of the hardest things in life is having words in your heart that you can’t utter.” James Earl Jones “Good actions are a guard against the blows of adversity.” Abu Bakr Introduction:  A new part of the recently completed PWR! (Parkinson Wellness Recovery) retreat for 2018 in Scottsdale, AZ was something termed “Daily Inspiration or Daily Mantra”.  At the…
• Daily Inspiration (Mantra) from the 2018 PWR! (Parkinson Wellness Recovery) Retreat June 7, 2018 “One of the hardest things in life is having words in your heart that you can’t utter.” James Earl Jones “Good actions are a guard against the blows of adversity.” Abu Bakr Introduction:  A new part of the recently completed PWR! (Parkinson Wellness Recovery) retreat for 2018 in Scottsdale, AZ was something termed “Daily Inspiration or Daily Mantra”.  At the…
• Monthly Research Review – August 2019 August 31, 2019   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during August 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• My Parkinson's Life Style Eating Plan May 11, 2018 I’ve been on the Keto diet, as well as several other Paleo and plant-based diets in hopes they would help my Parkinson’s symptoms. When my wife and I decided to get serious with our eating life style again, we looked at our options and our focus turned back to doing the Dr. Wahl’s version of the Paleo diet which we…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…