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• Journey With Parkinson’s: (Part 2) A Different Side of Life November 2, 2020 “Yesterday is but today’s memory, and tomorrow is today’s dream.” Khalil Gibran “Time is free, but it’s priceless. You can’t own it, but you can use it. You can’t keep it, but you can spend it. Once you’ve lost it you can never get it back.” Harvey Mackay Introduction: I am a scientist, trained as a protein chemist with expertise…
• Parkinson’s Foundation’s Centers of Excellence Expands Network September 5, 2018 Offering specialized teams of health-care professionals, and the latest treatments, three centers have been added to the Centers of Excellence in Parkinson’s Care, increasing the number of facilities globally to 45, the Parkinson’s Foundation announced. The new centers include the Cleveland Clinic, the Medical University of South Carolina, and the University of Iowa Hospitals and Clinics. The Cleveland Clinic designation includes…
• Center of Excellence Series: The Fresco Institute at NYU Langone Medical Center’s Social Work for Parkinson’s Program June 29, 2017 “The experience of living with Parkinson’s disease (PD) is unique to each individual. We really strive to listen to our patients, caregivers, families, providers and the community in creating an all-encompassing supportive services program that helps people to adapt and live well with Parkinson’s across the continuum and at all stages of the disease,” said Amy Lemen, MA, LCSW. “One…
• Center of Excellence Series: University of Miami September 14, 2017 “I realized each Center of Excellence across the country was doing something different,” said Angela P. Russell, PhD, NP, program administrator and clinical coordinator for the University of Miami (UM) Parkinson's Disease & Movement Disorders Center, a Parkinson’s Foundation Center of Excellence. When Dr. Russell started working at UM under Carlos Singer, MD, the Medical Director, she traveled to multiple…
• 2018 Parkinson’s Advocacy Awards Presented to Community Leaders March 30, 2018 1.Social Media Advocacy Award2.3.Year-round Advocacy Award4.Milly Kondracke Award for Outstanding Advocacy5.Morris K. Udall Award for Public ServiceLast week, the Parkinson’s Foundation and The Michael J. Fox Foundation presented the 2018 Parkinson’s Advocacy Awards to six individuals. The awards shine a spotlight on efforts to further policies that benefit people with Parkinson's, their families and care partners. During the ceremony, which took…
• Parkinson’s Partners: Introducing Medical Students to Parkinson’s disease December 1, 2020 As all of you know very well, Parkinson’s disease (PD) is a complex disorder that affects so many parts of a person’s life. In order for physicians to fully understand the impact the disease has on people with PD, it is not enough to learn the science and medicine of the condition. But how is it possible to teach a…
• Parkinson’s Foundation Adds 3 Centers of Excellence to Its Network September 27, 2018 Ohio’s Cleveland Clinic will officially become a Parkinson’s Foundation Center of Excellence on Oct. 2, followed by the Medical University of South Carolina in Charleston on Oct. 4, and the Cleveland Clinic Nevada in Las Vegas on Oct. 19. Next month’s three plaque unveiling ceremonies will bring the number of U.S. and overseas facilities bearing the designation to 48, said John Lehr, CEO of…
• The What, Why, and How of Community Action Committees (CACs) January 20, 2021 In our post announcing our Healthy Parkinson’s Communities initiative, we outlined our three goals:  Ensure Parkinson’s community leaders have the knowledge and resources they need to make a positive and sustainable change in their community  Encourage and support data-informed initiatives designed to increase access to and engagement with resources that improve the quality of life for people with Parkinson’s Work with communities to raise awareness…
• Healthy Parkinson’s Communities™: March Resource Roundup March 26, 2021 In January and February, we shared resources we found meaningful in introducing collective impact, cross-sector collaborations, developing a Community Action Committee, managing effective teams, and building powerful partnerships.   This month, we’re sharing resources to help you get started creating change in your community. Creating change can mean a lot of things; we focus here on determining where to start your…
• Center of Excellence Series: The Fresco Institute at NYU Langone Medical Center’s Social Work for Parkinson’s Program June 29, 2017 “The experience of living with Parkinson’s disease (PD) is unique to each individual. We really strive to listen to our patients, caregivers, families, providers and the community in creating an all-encompassing supportive services program that helps people to adapt and live well with Parkinson’s across the continuum and at all stages of the disease,” said Amy Lemen, MA, LCSW. “One…
• Parkinson’s Foundation Names Three New Centers of Excellence August 9, 2019 The Parkinson’s Foundation has added three Centers of Excellence to its international network of expert care providers for Parkinson’s disease  patients. The new centers are the University of Colorado Movement Disorders Center, Jefferson Health’s Comprehensive Parkinson’s Disease & Movement Disorder Center, and Indiana University School of Medicine. The addition brings the foundation’s total number of centers to 48, including 34…
• Center of Excellence Series: University of North Carolina at Chapel Hill School of Medicine's Delivers Statewide Parkinson's Training October 18, 2018 North Carolina is home to the University of North Carolina (UNC) at Chapel Hill School of Medicine – one of 45 Parkinson’s Foundation  Centers of Excellence. While their world-class Parkinson’s disease (PD) care is centrally located, UNC is still three to four hours away from most rural towns in the state. Around the time that Nina Browner, MD, UNC associate…
• Six Parkinson’s Community Leaders Receive Advocacy Awards April 4, 2018 Six Parkinson’s community leaders have received 2018 Advocacy Awards for their efforts to push policies that benefit patients, families, caregivers and others. Two of the winners were recognized for their role in establishing the Accelerating Medicines Partnership Program, which in January 2018 announced a new Parkinson’s disease focus. Representatives of the Parkinson’s Foundation and the Michael J. Fox Foundation presented the awards during…
• Parkinson’s Foundation Shares Findings at International Congress of Parkinson’s Disease and Movement Disorders September 19, 2019 Every year, thousands of neurologists, researchers and health professionals gather at the International Congress of Parkinson’s Disease and Movement Disorders to discuss the latest research, treatments and best care practices in the Parkinson’s disease (PD) field. This year, the Parkinson’s Foundation will attend the congress in Nice, France, from September 22 to 26, to share the following scientific poster presentations:…
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• Excellent Choices for Parkinson’s Disease Care September 19, 2018 While searching for a movement disorders doctor, I happened upon a government listing for Parkinson’s Disease (PD) Centers of Excellence, which fascinated me. According to the Parkinson’s Foundation, PD Centers of Excellence deliver care worldwide to more than 127,000 patients. The centers “advance research to improve the lives of everyone with Parkinson’s treated at centers and beyond, and for future generations.” They…
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• Mind blowing modulation of mind October 12, 2021 # # # # Neuromodulation of specific circuits in the brain represents a means of adjusting deficits in neural performance and significantly improving quality of life. Deep brain stimulation has been widely applied to the treatment of Parkinson’s since Alim Benabid first discovered that electrical stimulation of the basal ganglia improves the symptoms of the condition in the late 1980s.…
• 2019 Parkinson’s Advocacy Awards Presented to Community Members September 20, 2019 1.Social Media Advocacy Award 2.Year-round Advocacy Award 3.Milly Kondracke Award for Outstanding Advocacy 4.Morris K. Udall Award for Public Service Last week, the Parkinson's Foundation and The Michael J. Fox Foundation presented the 2019 Parkinson's Advocacy Awards to five people.   These awards shine a spotlight on efforts to further policies that benefit people with Parkinson's, their families and care partners. During the ceremony, which took place at…
• Center of Excellence Series: Toronto Western Hospital’s Parkinson’s Fellowship Program May 11, 2017 There are approximately 3,000 movement disorder specialists in the world. While they are all neurologists, not all of them have experience treating Parkinson’s disease (PD). For every person with Parkinson’s to receive treatment from a specialist, each one of these doctors would have to treat more than 3,000 people with PD. Parkinson’s Foundation estimates that the average movement disorder specialist…
• Center of Excellence Series: Rush University Medical Center Provides Critically Needed Parkinson’s Mental Health Program March 9, 2018 Most people associate Parkinson’s disease (PD) with tremors, a motor symptom. However, non-motor symptoms are common and can be more troublesome and disabling than motor symptoms. They can include cognitive changes, mood and sleep disorders, autonomic symptoms or weight loss. Rush University Medical Center, a Parkinson’s Foundation Center of Excellence, is not only on the front lines of PD-related cognitive…