Carol J. Kobus | Deaths | ehextra.com – EH Extra

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• Grit and determination can help you get ahead when you have Parkinson's February 3, 2020 “Singing a happy tune stops you from thinking bad thoughts. Next time you feel a panic attack coming, try singing, humming or whistling, or even just smiling” Carol Clupny That was just one of the insightful comments that author Carol Clupny shared with us today at a meeting for women with Parkinson’s. Carol was diagnosed with Parkinson’s 12 years ago.…
• Giving Back & Living Well with Parkinson’s April 2, 2020 “The best way to find yourself is to lose yourself in the service of others.” – Gandhi When we ask people in our community what they do to live well, the vast majority say that giving back is at the top of their list. Whether they give back by leading support groups, participating in clinical trials, educating themselves so they…
• Life with Parkinson’s in the Time of COVID-19: April is Parkinson’s Awareness Month April 1, 2020 “The measure of who we are is what we do with what we have.” Vince Lombardi “When you have exhausted all possibilities, remember this: you haven’t.” Thomas Edison Précis: A different world exists today than it did just a few weeks ago, all driven by the COVID-19 pandemic. The virus seemingly favors the elderly who have a pre-existing disease(s); however,…
• Life with Parkinson’s in the Time of COVID-19: April is Parkinson’s Awareness Month April 1, 2020 “The measure of who we are is what we do with what we have.” Vince Lombardi “When you have exhausted all possibilities, remember this: you haven’t.” Thomas Edison Précis: A different world exists today than it did just a few weeks ago, all driven by the COVID-19 pandemic. The virus seemingly favors the elderly who have a pre-existing disease(s); however,…
• How to turn your book about Parkinson’s into an audiobook (Or, How I’m growing into Parkinson’s) February 14, 2021 Written by Carol Clupny, Davis Phinney Foundation Ambassador  I remember as a child being asked, “What do you want to be when you grow up?” The answer remained much the same from grade school through high school: “I want to be a veterinarian.”    But a funny thing happened on the way to vet school. I became a speech-language pathologist. And after that, I…
• Moments of Victory® – Carol Clupney Doesn’t Let Parkinson’s Slow Her Down March 16, 2019 What has your journey been like since your Parkinson’s diagnosis? After being diagnosed in 2008, I continued to work as a Speech-Language Pathologist. When I retired at age 52, I took to the road, literally. In the following years, I walked over 1000 miles on ancient pilgrimage trails in France and Spain. My husband, Charlie, and I started cycling and…
• Moments of Victory® – Carol Clupny Doesn’t Let Parkinson’s Slow Her Down March 16, 2019 What has your journey been like since your Parkinson’s diagnosis? After being diagnosed in 2008, I continued to work as a Speech-Language Pathologist. When I retired at age 52, I took to the road, literally. In the following years, I walked over 1000 miles on ancient pilgrimage trails in France and Spain. My husband, Charlie, and I started cycling and…
• Go FAR and Be ADEPT With Exercises For Parkinson’s November 21, 2019 “You can’t get much done in life if you only work on the days when you feel good.” Jerry West “Always make a total effort, even when the odds are against you.” Arnold Palmer Précis: By now, everyone knows the importance of exercise. However, in my opinion, you cannot hear it enough. Exercise is Medicine, especially for Parkinson’s. This post suggests…
• Go FAR and Be ADEPT With Exercises For Parkinson’s November 21, 2019 “You can’t get much done in life if you only work on the days when you feel good.” Jerry West “Always make a total effort, even when the odds are against you.” Arnold Palmer Précis: By now, everyone knows the importance of exercise. However, in my opinion, you cannot hear it enough. Exercise is Medicine, especially for Parkinson’s. This post suggests…
• Reaching a Milestone and an Inspiring New Book to Read May 3, 2019 Look at you.  You’re in Spain.  You’re walking out here on the Meseta.  How many people are doing this?  How many people with a chronic disease do you see out here today?……Do something good, Carol.  Find something good to do with it.”    From The Ribbon of Road Ahead   Twitchy Woman has reached a milestone.  This is post #201…
• People with White Collar Jobs More Likely to Die from ALS or Parkinson’s, CDC Study Finds July 19, 2017 A Centers for Disease Control and Prevention (CDC) study of more than 12 million people who died in the U.S. between 1985 and 2011 found that deaths from Parkinson’s disease and ALS (amyotrophic lateral sclerosis) occurred more often in people in higher socioeconomic status (SES) occupations. Findings from the study were reported in the article, “Mortality from Amyotrophic Lateral Sclerosis…
• Davis Phinney Foundation at the 2019 Parkinson’s Policy Forum September 30, 2019 The Parkinson’s Policy Forum is an annual educational and advocacy event in Washington, DC for people with Parkinson’s and care advocates. The 2019 forum, held September 9-10, brought together over 150 people from 38 states to participate in a day of education and training followed by a day of visiting 196 Congressional offices. Sara Linn, Ambassador Leadership Program Manager for…
• Gone to Maui, Vacation from Parkinson's! February 17, 2020 I went to Maui to stay a week and remained five. I never spent so pleasant a month before, or bade any place goodbye so regretfully. I have not once thought of business, or care or human toil or trouble or sorrow or weariness, and the memory of it will remain with me always. Mark Twain We are on our way home…
• A Different Kind of Parkinson's Hero February 20, 2020 I think a hero is an ordinary individual who finds strength to persevere and endure in spite of overwhelming obstacles.Christopher Reeve In the last few years, several amazing Parkinson’s heroes have become the face of the Parkinson’s community world-wide. Super heroes like American Ninja Warrior Jimmy Choi, Matt Eagles, diagnosed at 8 years old, who has created Parky Life and…
• Dear Parkinson’s Care Partners November 6, 2019 Dear Parkinson’s Care Partner, Being a care partner to someone with Parkinson’s isn’t easy. It takes time, effort, energy and love, and chances are, it’s not what you signed up for. However, if you’re reading this post, no matter how you found yourself in this position, you stand together with hundreds of thousands of people around the world who identify…
• Experts Propose Ways to Stem Rising Number of Parkinson’s Deaths in England September 14, 2018 Experts are proposing ways to stanch the number of deaths from Parkinson’s disease and related disorders in England, including establishing dedicated nursing homes and giving Parkinson’s patients personal case managers, according to a recent report by Public Health England. According to the study, more than 6.5 million England residents age 20 and older died between 2001 and 2014. Of those deaths, more than…
• Carol A. Kuiken | Obituaries - Rutland Herald March 27, 2019 Carol A. Kuiken | Obituaries  Rutland HeraldCarol A. Kuiken LAKE BOMOSEEN — Carol Ann (Yskamp) Kuiken, 78, of Hawthorne, NJ, and Lake Bomoseen, passed away on March 21, 2019, with her ...
• Using Music Therapy with Parkinson’s Disease December 17, 2020 Music can lift us out of depression or move us to tears – it is a remedy, a tonic, orange juice for the ear. But for many of my neurological patients, music is even more – it can provide access, even when no medication can, to movement, to speech, to life. For them, music is not a luxury, but a…
• Are rises in Electro-Magnetic Field in the human environment, interacting with multiple environmental pollutions, the tripping point for increases in neurological deaths in the Western World? May 16, 2019 Are rises in Electro-Magnetic Field in the human environment, interacting with multiple environmental pollutions, the tripping point for increases in neurological deaths in the Western World? Med Hypotheses. 2019 Jun;127:76-83 Authors: Pritchard C, Silk A, Hansen L Abstract Whilst humans evolved in the earth's Electro-Magnetic-Field (EMF) and sun-light, both being essential to life but too much sun and we burn.…
• Journey With Parkinson’s: (Part 2) A Different Side of Life November 2, 2020 “Yesterday is but today’s memory, and tomorrow is today’s dream.” Khalil Gibran “Time is free, but it’s priceless. You can’t own it, but you can use it. You can’t keep it, but you can spend it. Once you’ve lost it you can never get it back.” Harvey Mackay Introduction: I am a scientist, trained as a protein chemist with expertise…
• Journey With Parkinson’s: (Part 2) A Different Side of Life November 2, 2020 “Yesterday is but today’s memory, and tomorrow is today’s dream.” Khalil Gibran “Time is free, but it’s priceless. You can’t own it, but you can use it. You can’t keep it, but you can spend it. Once you’ve lost it you can never get it back.” Harvey Mackay Introduction: I am a scientist, trained as a protein chemist with expertise…
• Global, regional, and national burden of neurological disorders, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016. March 19, 2019 Related ArticlesGlobal, regional, and national burden of neurological disorders, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016. Lancet Neurol. 2019 Mar 14;: Authors: GBD 2016 Neurology Collaborators Abstract BACKGROUND: Neurological disorders are increasingly recognised as major causes of death and disability worldwide. The aim of this analysis from the Global Burden of Diseases, Injuries, and Risk…