Climbing for a Cure

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• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• My Parkinson's Life Style Eating Plan May 11, 2018 I’ve been on the Keto diet, as well as several other Paleo and plant-based diets in hopes they would help my Parkinson’s symptoms. When my wife and I decided to get serious with our eating life style again, we looked at our options and our focus turned back to doing the Dr. Wahl’s version of the Paleo diet which we…
• You’ve Been Diagnosed with Parkinson’s, Now What? February 20, 2018 Written by Tom Sheppard and Lauren Simmons If you’ve received a diagnosis of Parkinson’s, you may be feeling overwhelmed, devastated, angry, confused or all of the above. We felt the same way when we heard our doctors say, “You have Parkinson’s.” You wake up one day thinking about your grand plans for the future, and the next you realize your…
• I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that.    To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
• Natural (born) killers January 28, 2020   Today’s post starts with more of a biology lesson than usual, but it is important to understand where in the grand scheme of things a certain type of blood cell sits. That type of blood cell has a really cool name: Natural killer cells. Recently researchers at the University of Georgia (USA) published a report suggesting that natural killer…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• Tenacity and Parkinson’s July 9, 2018 “Let me tell you the secret that has led me to my goal. My strength lies solely in my tenacity.” Louis Pasteur To succeed in life in today’s world, you must have the will and tenacity to finish the job.” Chin-Ning Chu Definition of Tenacity: <noun te·nac·i·ty tə-ˈna-sə-tē >  Tenacity can be defined as “persistent determination”. Paul June defines tenacity…
• Tenacity and Parkinson’s July 9, 2018 “Let me tell you the secret that has led me to my goal. My strength lies solely in my tenacity.” Louis Pasteur To succeed in life in today’s world, you must have the will and tenacity to finish the job.” Chin-Ning Chu Definition of Tenacity: <noun te·nac·i·ty tə-ˈna-sə-tē >  Tenacity can be defined as “persistent determination”. Paul June defines tenacity…
• Tenacity and Parkinson’s July 9, 2018 “Let me tell you the secret that has led me to my goal. My strength lies solely in my tenacity.” Louis Pasteur To succeed in life in today’s world, you must have the will and tenacity to finish the job.” Chin-Ning Chu Definition of Tenacity: <noun te·nac·i·ty tə-ˈna-sə-tē >  Tenacity can be defined as “persistent determination”. Paul June defines tenacity…
• Part 1 of 2017 PWR! (Parkinson Wellness Recovery) Retreat: Pictures With Great Memories July 23, 2017 “Just put one foot in front of the other.”  Austin Peck “Coming together is a beginning; keeping together is progress; working together is success.”  Henry Ford Introduction to Part 1: From May 28-June 3, >100 people came to Scottsdale, Arizona for the PWR! Retreat. The final tally had >50 people-with-Parkinson’s, more than 30 care partners and ~20 physical therapists/fitness professionals,…
• Shining a light on Parkinson’s November 7, 2019   NOTE: The information in today’s post should not be considered an endorsement of PhotoPharmics or the treatment they are proposing. The author of this blog has had no communication with the company. The information in this post is provided because the author has been asked by readers to discuss it. In October 2018, at the annual International Movement Disorders…
• 4-Part Exercise Mini-Series: Core Strengthening Exercises for Parkinson’s April 8, 2019 Written by Dr. Sarah King, PT, DPT “You need to focus on your core!” This buzz word – “the core” – exploded in the late 80s (anyone remember the Abdominizer?) and infomercials have taken the term and run with it, making billions of dollars in the process. Contrary to popular belief, and to the detriment of ab products everywhere, you…
• Monthly research review: February 2020 February 29, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during February 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• 5 Ways to Live Well with Parkinson’s in 2019 January 8, 2019 It’s hard to ignore the feeling of newness in the air. The letting go of one year and welcoming in a new one and all of the possibilities it may provide. And, even if you’re not of fan of resolutions, you probably still have ideas of how you can live better in 2019. At the Davis Phinney Foundation, we certainly…
• How to Bring Light to the Darker Side of Parkinson’s: A Primer on Hallucinations and Delusions and How to Manage Them July 18, 2018 When most people think of Parkinson’s, they think of the motor symptoms that often come with it: tremor, rigidity, slowness, shuffling. However, they are often unaware that Parkinson’s comes with a wide variety of non-motor symptoms that can affect thinking, mood and behavior as well. Parkinson’s disease psychosis is a non-motor symptom of Parkinson’s that causes people to experience hallucinations…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• A Primer on Sleep and Parkinson’s August 14, 2019 For many years, the benefits and causes of sleep remained a mystery. However, in the past few years, sleep science has grown significantly. We now have a deeper understanding of the importance of sleep, why it is so essential to sleep consistently and properly, the effects of sleep medicine and how people with Parkinson’s are specifically affected. Matthew Walker, PhD…
• The 17 Most Commonly Asked Questions about Parkinson’s Nutrition December 19, 2018 One of the topics our community members consistently ask us about is nutrition. It’s not an easy topic to address, though, because it has so many layers and there’s no one size fits all nutritional plan. Still, leaving it at that is not enough. So, we opened up our inbox and pulled together the 17 most common questions we’ve received…
• A Resource Guide of 18 Complementary Therapies for People with Parkinson’s August 7, 2018 Conventional medicine has come a long way when it comes to helping people with Parkinson’s live well. Between the many varieties and combinations of medications and deep brain stimulation (DBS), many people with Parkinson’s have been able to find conventional treatment regimens that work well for them. However, the options to help people with Parkinson’s live well doesn’t stop there.…