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• How Telemedicine Can Help You Live Well with Parkinson’s November 28, 2020 Telemedicine is the practice of healthcare in an online format. As video conferencing technology has developed and become more reliable and secure (including being HIPAA-compliant), many physicians and specialists have begun offering their services through video calls in addition to or instead of in-person appointments. Although telemedicine has traditionally been beneficial for people who live in rural areas or for…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• The Big 16: What to Say (and What Not to Say) to Someone Who Has Parkinson’s March 13, 2018 What would you say to a friend or family members who just told you they have Parkinson’s? If you’re like most people who are faced with that news, your hope is that you’d have the right reaction, say the right thing and be the exact kind of support they need at that moment. However, as a human being, you’d be…
• New Bioelectronic Devices May Aid in Monitoring, Treating Parkinson’s April 30, 2020 Special bioelectronic devices that can be placed inside a person to diagnose, monitor, and treat neurological disorders, including Parkinson’s disease and epilepsy, may have taken a major step forward with the design of soft and flexible devices that are also biocompatible. Dion Khodagholy, PhD, assistant professor of electrical engineering at Columbia University, recently published two studies on such new devices that…
• I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that.    To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
• Virtual Reality Games May Improve Time Perception in Parkinson’s Patients, Study Reports April 9, 2019 Virtual reality gaming may improve the ability of Parkinson’s disease patients to perceive time, a skill that is often impaired in these individuals, a study suggests. Playing these virtual reality games may also benefit people with autism, schizophrenia, or attention-deficit hyperactivity disorder (ADHD), conditions that can also affect time perception, according to the study’s researchers from the University of Waterloo in Canada. The study, “Movement-Contingent Time Flow…
• A Resource Guide of 18 Complementary Therapies for People with Parkinson’s August 7, 2018 Conventional medicine has come a long way when it comes to helping people with Parkinson’s live well. Between the many varieties and combinations of medications and deep brain stimulation (DBS), many people with Parkinson’s have been able to find conventional treatment regimens that work well for them. However, the options to help people with Parkinson’s live well doesn’t stop there.…
• You’ve Been Diagnosed with Parkinson’s, Now What? February 20, 2018 Written by Tom Sheppard and Lauren Simmons If you’ve received a diagnosis of Parkinson’s, you may be feeling overwhelmed, devastated, angry, confused or all of the above. We felt the same way when we heard our doctors say, “You have Parkinson’s.” You wake up one day thinking about your grand plans for the future, and the next you realize your…
• Effect of Forgiveness on Health September 24, 2017 “When you forgive, you in no way change the past – but you sure do change the future.”  Bernard Meltzer “The first step in forgiveness is the willingness to forgive.” Marianne Williamson Précis: Recently had a friend go through a difficult break-up from a marriage. The notion of getting past the failed relationship, achieving forgiveness, and moving on without causing…
• How to Bring Light to the Darker Side of Parkinson’s: A Primer on Hallucinations and Delusions and How to Manage Them July 18, 2018 When most people think of Parkinson’s, they think of the motor symptoms that often come with it: tremor, rigidity, slowness, shuffling. However, they are often unaware that Parkinson’s comes with a wide variety of non-motor symptoms that can affect thinking, mood and behavior as well. Parkinson’s disease psychosis is a non-motor symptom of Parkinson’s that causes people to experience hallucinations…
• What do you give someone who has Parkinson's? January 18, 2020 Saturday 18 January 2020“Alexa, what’s the weather going to be like today?”“Right now in London it’s 5 degrees Celsius with clear skies and sun. Today’s forecast is cloud with a chance of showers, with a high of 7 degrees and a low of 0 degrees.”Her voice is mellifluous, already starting to put me a good mood for the day. I…
• What do you give someone who has Parkinson's? January 18, 2020 Saturday 18 January 2020“Alexa, what’s the weather going to be like today?”“Right now in London it’s 5 degrees Celsius with clear skies and sun. Today’s forecast is cloud with a chance of showers, with a high of 7 degrees and a low of 0 degrees.”Her voice is mellifluous, already starting to put me a good mood for the day. I…
• What do you give someone who has Parkinson's? January 18, 2020 Saturday 18 January 2020“Alexa, what’s the weather going to be like today?”“Right now in London it’s 5 degrees Celsius with clear skies and sun. Today’s forecast is cloud with a chance of showers, with a high of 7 degrees and a low of 0 degrees.”Her voice is mellifluous, already starting to put me a good mood for the day. I…
• Internet Visits with Parkinson’s Specialist Can Be as Effective as In-person Visits, Trial Finds August 22, 2017 Virtual house calls with a neurologist can be as effective as in-person visits for Parkinson’s disease patients, offering convenience and comfort, a clinical trial indicates. The study, “National randomized controlled trial of virtual house calls for Parkinson disease,” was published in the journal Neurology. The internet has led to what is known as telemedicine, or virtual house calls between physicians…
• How to Share Your Parkinson’s Diagnosis with Family, Friends, and Co-workers February 5, 2020 You’ve been diagnosed with Parkinson’s. Now what? Do you tell people? If so, how, who, and when? Whether you’ve been recently diagnosed, you’ve known for a while but don’t know how to tell people, or you’ve told people but aren’t satisfied with how it went, we hope this information will be useful. While not all of these situations will apply…
• 5 Ways to Maximize Your Next 15 Minutes with Your Doctor April 19, 2018 Written by Tom Sheppard I’m not an expert in dealing with doctors; however in 2017 I:   Saw 13 different doctors Had 68 doctor’s appointments Had 22 days of radiation treatments Had 22 appointments for physical therapy Had 3 MRIs Had 12 days of various medical related treatments Spent 1 night in the hospital As a result, I learned to…
• 5 Ways to Live Well with Parkinson’s in 2019 January 8, 2019 It’s hard to ignore the feeling of newness in the air. The letting go of one year and welcoming in a new one and all of the possibilities it may provide. And, even if you’re not of fan of resolutions, you probably still have ideas of how you can live better in 2019. At the Davis Phinney Foundation, we certainly…
• Doctor Alexa Will See You Now: Is Amazon Primed To Come To Your Rescue? - HealthLeaders Media July 29, 2019 Doctor Alexa Will See You Now: Is Amazon Primed To Come To Your Rescue?  HealthLeaders MediaAlexa could help doctors diagnose mental illness, autism, concussions and Parkinson's disease, or even detect when you're having a heart attack.
• Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say April 28, 2020 While there are few silver linings to the cloud created by COVID-19, the pandemic that has killed tens of thousands, hobbled economies worldwide and drove millions to quarantine in their homes, one may be a new appreciation of telemedicine. “If something good could come out of this crisis, it’s that we would learn how valuable telehealth could be to our community,”…
• Answering Your Questions about Parkinson’s disease and Coronavirus Disease 2019 (COVID-19) December 21, 2020 Answering Your Questions about Parkinson’s disease and Coronavirus Disease 2019 (COVID-19) – Updated People with Parkinson’s disease (PD) have been asking a lot of questions about COVID-19 since the pandemic began and APDA has been here with the answers you need. As such, we have updated our blog post again with additional questions that have come in, along with some new information…
• What do you give someone who has Parkinson's? January 18, 2020 Saturday 18 January 2020“Alexa, what’s the weather going to be like today?”“Right now in London it’s 5 degrees Celsius with clear skies and sun. Today’s forecast is cloud with a chance of showers, with a high of 7 degrees and a low of 0 degrees.”Her voice is mellifluous, already starting to put me a good mood for the day. I…
• Virtual Reality Game by Engineering Students May Help Parkinson’s Patients with Walking August 8, 2019 A virtual reality game being created by engineering students, called “Overcome,” aims to offer Parkinson’s patients safe and fun ways of taking part in rehabilitation sessions that might preserve walking and mobility skills. Though players of all ages may find the game entertaining, “Overcome” is intended for adults with walking difficulties due to this disease. People with Parkinson’s are at…