Endgame Parkinson’s

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• Endgame Parkinson’s July 18, 2020 Last week I received a mysterious message from Larry Gifford, host of the podcast “When Life Gives You Parkinson’s”. Would I like to join him, along with other luminaries in the Parkinson’s world plotting the ENDGAME for Parkinson’s. This global alliance of advocates have pledged to take united actions towards ending Parkinson’s and they need me to join them. Inspired…
• Ending Parkinson’s Disease: Author Q&A April 4, 2020 Join us for a discussion with authors Bas Bloem, MD, PhD, and Ray Dorsey, MD to discuss Ending Parkinson’s Diseasse. On Thursday, April 30 our Expert Q&A will feature the authors of Ending Parkinson’s Disease, to wrap up our Virtual Book Club throughout the month of April. If you weren’t able to attend the book club but have read the…
• Virtual Book Club April 1, 2020 Get your copy of Ending Parkinson’s Disease and get ready to join our virtual book club! We’ll be hosting weekly virtual meetings every Tuesday in April at 12pm PST for Parkinson’s Awareness Month. Each week we’ll post an assignment on Facebook and Instagram – so be sure to follow us! The first meeting is Tuesday, April 7 at 12 pm…
• When Life Gives You Parkinson’s Podcast Returns for Season 3, Parkinson Canada back as presenting partner September 23, 2020 Parkinson Canada is a proud presenting partner of the When Life Gives You Parkinson’s Podcast hosted by Larry Gifford. The podcast, now entering Season 3, is an always honest and sometimes humourous first person perspective on living with Parkinson’s from the point of view of its host, who was diagnosed with Parkinson’s at age 45 in 2017. The authentic, frank…
• Senator Cory Booker (D-NJ) Tells PD Advocates: “What You Do Matters” March 21, 2018 Yesterday, Senator Cory Booker (D-NJ) joined nearly 300 people with Parkinson’s disease (PD), their families and other community members in Washington, D.C. to deliver a keynote address at the 2018 Parkinson’s Policy Forum. Parkinson’s is an important issue for the senator, whose late father lived with the disease for many years. During his speech, Sen. Booker discussed his family’s experience…
• From Washington, D.C. to Tennessee, Advocates Speak Up for the PD Community April 30, 2018 Judy and Phil Bellenfant were energized to be in Washington, D.C. in March for the 2018 Parkinson’s Policy Forum and to meet with Representative Chuck Fleischmann (R-TN) in his Capitol Hill office.  And then, it snowed. It snowed so much that the federal government closed for the day and Judy and Phil couldn’t make it to the Hill. But there…
• Snow Doesn’t Stop Advocates from Making an Impact in Washington March 26, 2018 Last week, 300 Parkinson’s disease (PD) advocates from nearly all 50 states convened in Washington, D.C. for the 2018 Parkinson’s Policy Forum. This annual event brings people with PD and their loved ones to our nation’s capital for two days of education and training followed by a day of advocacy action and engagement. Despite a snowstorm that closed Congress’ doors…
• Michael J Fox Foundation raises $1m on #GivingTuesday December 7, 2017 The Michael J Fox Foundation for Parkinson’s Research raised $1 million on #GivingTuesday – 28 November – as part of their #1Day1million fundraising campaign. The charity had pledged to match-fund any donation up to the one million dollar mark, with 89 cents from every dollar spent at The Foundation going directly to research programmes. In a statement, the organisation said:…
• Parkinson’s Awareness Month 2016: The Super Cure Games March 21, 2016 Writing Smiles and Tears This time round we’re organising the Parkinson’s Awareness Super Cure Games. The whole world is taking part, so millions of people. We’ve divided the Games across a number of different countries. Every country has its own team of players, its own audience and is vying for the same trophy: The Super Cure Trophy. To make […]…
• Podcast: What’s it like parenting with Parkinson’s? May 16, 2019 In the first episode of our new Parkinson’s Life podcast we were joined by two people living with Parkinson’s who are also parents: Larry Gifford and Allison Toepperwein. We report on their honest and open discussion about the impact of the condition on family life – and how to still find joy in parenting with Parkinson’s “I wish somebody who…
• Moments of Victory® – Miller Sigmon Celebrates His Birthday with a Fundraiser for Parkinson’s May 15, 2020 Each month, we spotlight an inspiring story from someone in our Team DPF® community who is helping to improve the quality of life of people living with Parkinson’s by raising funds. Today, we are happy to feature Miller Sigmon from North Carolina. Which event did you participate in? I did a Facebook fundraiser for my birthday. Why did you decide to…
• “It is time for us to act more aggressively to end Parkinson’s” April 2, 2020 Parkinson’s is the world’s fastest growing brain disorder and it’s predicted that one in 37 people alive today will be diagnosed with the condition in their lifetime. In a new book, ‘Ending Parkinson’s Disease: A Prescription for Action’, four leading experts present a bold plan to “prevent, advocate, care and treat” the condition How can we prevent the rise of…
• Advocacy Is All in the Family for the Hotts March 12, 2018 In this blog, Angie Hott discusses her work as a Parkinson’s advocate and her participation in the upcoming 2018 Parkinson’s Policy Forum, co-sponsored this year by the Parkinson’s Foundation and The Michael J. Fox Foundation. The event will take place March 19 to 21 in Washington, D.C. You can view a live stream of the Forum’s educational panels on March…
• Sept 12 at 11AM ET: Larry Gifford hosts SuperWalk Opening Ceremony September 2, 2020 ANNOUNCING YOUR OPENING CEREMONY HOST Larry Gifford hosts the podcast “When Life Gives You Parkinson’s” which details his journey with the disease as a guy in his mid-40’s with a family and a career. He was diagnosed with Young Onset Parkinson’s Disease in August 2017. The show was named “Best Podcast” by RTDNA West Region in 2020 and listed on…
• Sept 12 at 11AM ET: Larry Gifford hosts SuperWalk Opening Ceremony September 2, 2020 ANNOUNCING YOUR OPENING CEREMONY HOST Larry Gifford hosts the podcast “When Life Gives You Parkinson’s” which details his journey with the disease as a guy in his mid-40’s with a family and a career. He was diagnosed with Young Onset Parkinson’s Disease in August 2017. The show was named “Best Podcast” by RTDNA West Region in 2020 and listed on…
• Woman ‘Sniffs Out’ Husband’s Parkinson’s Decades Before Diagnosis: What is a Super Smeller or - LatestLY March 28, 2019 Woman ‘Sniffs Out’ Husband’s Parkinson’s Decades Before Diagnosis: What is a Super Smeller or  LatestLYA “Super Smeller” can be described as someone with a heightened sense of smell known or Hyperosmia. Woman 'Sniffs Out' Husband's Parkinson's Decades ...
• We CAN end Parkinson’s Disease in the future August 27, 2020 Parkinson’s Disease is not inevitable. Parkinson’s Disease is rather preventable.Ray Dorsey MD Can we prevent Parkinson’s Disease in the future? Dr. Ray Dorsey, one of the co-authors of the book “Ending Parkinson’s Disease“, says that we can. On Sunday, August 23, Dr. Dorsey spoke to our Sunday Mornings with Twitchy Women group on Zoom. He said that the major premise…
• We CAN end Parkinson’s Disease in the future August 27, 2020 Parkinson’s Disease is not inevitable. Parkinson’s Disease is rather preventable.Ray Dorsey MD Can we prevent Parkinson’s Disease in the future? Dr. Ray Dorsey, one of the co-authors of the book “Ending Parkinson’s Disease“, says that we can. On Sunday, August 23, Dr. Dorsey spoke to our Sunday Mornings with Twitchy Women group on Zoom. He said that the major premise…
• #UNITED for Parkinson’s: the race is on March 21, 2019 As part of a new campaign, United for Parkinson’s, Parkinson’s advocates are in a ‘hashtag race’ to spread their message as far and wide as possible Parkinson’s campaigners from around the world are taking part in a global “United Hashtag Race” which aims to spread an unprecedented amount of awareness about the condition. As part of the race – which…
• Three Parkinson’s books to watch out for in 2020 January 30, 2020 From an expert plan to preventing a Parkinson’s pandemic to a need-to-know guide on living well with the condition – we’ve picked out three books to add to your reading list this year 1. Ending Parkinson’s Disease: A Prescription for Action Release date: March 2020 (US), April 2020 (UK) As the number of people with Parkinson’s is expected to double…