Facial Masks

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• Facial Masks May 6, 2020 It’s a really weird time in the world today.  With COVID-19, many of us are on “shelter at home” orders.  People are encouraged not to leave their homes unless it’s for essential things like groceries or the pharmacy. If we do go out, we need to wear a facial mask and practice social distancing. I haven’t even heard of that phrase, until…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• How to Work Full Time & Live Well with Parkinson’s September 17, 2020 One of the most common challenges people with Parkinson’s face is balancing treatment with everyday activities and responsibilities. Exercising, going to medical appointments, attending support groups, focusing on your mental health, and all the other necessities that help you live well with Parkinson’s require a lot of time and energy. For people working when diagnosed, finding a way to balance these demands with their career responsibilities can seem impossible.    A member of our community…
• Life with Parkinson’s in the Time of COVID-19: April is Parkinson’s Awareness Month April 1, 2020 “The measure of who we are is what we do with what we have.” Vince Lombardi “When you have exhausted all possibilities, remember this: you haven’t.” Thomas Edison Précis: A different world exists today than it did just a few weeks ago, all driven by the COVID-19 pandemic. The virus seemingly favors the elderly who have a pre-existing disease(s); however,…
• Life with Parkinson’s in the Time of COVID-19: April is Parkinson’s Awareness Month April 1, 2020 “The measure of who we are is what we do with what we have.” Vince Lombardi “When you have exhausted all possibilities, remember this: you haven’t.” Thomas Edison Précis: A different world exists today than it did just a few weeks ago, all driven by the COVID-19 pandemic. The virus seemingly favors the elderly who have a pre-existing disease(s); however,…
• Coping with life under Covid-19 Quarantine June 12, 2020  This is excerpted from a talk given to the ADPA Iowa Chapter on June 12, 2020. So after a good start in 2020, our lives changed literally overnight when  The Corona Virus – or Covid-19, reared its ugly head in the US.  In the middle of March, the country shut down, and we were left alone, isolated, rudderless.  The gyms…
• I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that.    To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
• What You Need to Know about Cycling with Parkinson’s September 15, 2020 So, you want to ride a bike? That’s fabulous! We’re behind you all the way. But we also want to make sure you stay safe and healthy while doing so. So, whether you’re about to take your first or fiftieth ride since your Parkinson’s diagnosis, here’s what you need to know.  #1 – Cycling is good for you  Research shows that people with Parkinson’s experience significant benefits from pushing pedals on…
• Update on COVID-19 and Parkinson’s disease October 27, 2020 Latest Research on COVID-19 & Parkinson’s disease UPDATE: This post (originally published in June) has been updated with the latest information available. We will continue to keep this post up-to-date as new information develops. As citizens of the world, we all continue to grapple with the COVID-19 pandemic. And as members of the Parkinson’s disease (PD) community, we continue to have…
• Update on COVID-19 and Parkinson’s disease October 27, 2020 Latest Research on COVID-19 & Parkinson’s disease UPDATE: This post (originally published in June) has been updated with the latest information available. We will continue to keep this post up-to-date as new information develops. As citizens of the world, we all continue to grapple with the COVID-19 pandemic. And as members of the Parkinson’s disease (PD) community, we continue to have…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Parkinson’s: Reflective Gratitude of Life December 20, 2019 “We don’t need more to be thankful for, we just need to be more thankful.” Carlos Castaneda “Take as a gift whatever the day brings forth.” Horace Introduction: The title of this blog post says it all. At the age of 66 years old, I stand before you thinking I need to be more thankful. Really? Yes, many deserve my gratitude…
• Parkinson’s: Reflective Gratitude of Life December 20, 2019 “We don’t need more to be thankful for, we just need to be more thankful.” Carlos Castaneda “Take as a gift whatever the day brings forth.” Horace Introduction: The title of this blog post says it all. At the age of 66 years old, I stand before you thinking I need to be more thankful. Really? Yes, many deserve my gratitude…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• Sun Poem: Death on a Bicycle August 9, 2019 Death on a Bicycle If you train on a road bike during the boiling hot summer in Nakajo, Japan,Your most valuable equipment, more than glovesHelmet or spare tire,Is sunglasses. There are gnats. As you breeze beside the rice paddies and through the mountain forests, They stick to your eyes. When you zoom down the gorge at Tainai, So fast that…
• How does facial masking affect people with Parkinson’s? August 20, 2020 Hypomimia, or ‘facial masking’ is a common Parkinson’s symptom – but why does it affect people with the condition? Dr Judith Bek, a postdoctoral researcher at the University of Manchester, UK, shares expert insights, and explains how the symptom can be treated What is hypomimia? Hypomimia – also known as “facial masking” – is a loss or reduction of facial…
• Answering Your Questions about Parkinson’s disease and Coronavirus Disease 2019 (COVID-19) December 21, 2020 Answering Your Questions about Parkinson’s disease and Coronavirus Disease 2019 (COVID-19) – Updated People with Parkinson’s disease (PD) have been asking a lot of questions about COVID-19 since the pandemic began and APDA has been here with the answers you need. As such, we have updated our blog post again with additional questions that have come in, along with some new information…
• Nowadays, I Always Wear 2 Masks January 11, 2021 I received an email yesterday from my mother-in-law. It had been forwarded to her from a friend of hers. It was missing the attachment, so I don’t know what the email said apart from the five words found in the subject line. They read: “Why I wear two masks.” It intrigued me and made me think about those of us…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• Parkinson’s Awareness Month is a time to look outward, not inward March 30, 2019 Who decides which disease or cause can lay claim to a month as an awareness month? I’m just curious, because we’re about to enter April, which for some reason is Parkinson’s Disease Awareness Month. It's not that I don't believe that PD deserves an awareness month. My issue is that I feel like a hypocrite. I am so aware of…