Helen Pike’s Summer of Running

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• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• Helen Pike's Summer of Running September 13, 2018 This summer The Cure Parkinson’s Trust (CPT) supporter Helen Pike took on an incredible ‘Summer of Running’ challenge covering over 400 miles in a bid to raise awareness and funds for Parkinson’s research. Helen said:  “Parkinson's has affected my family, including my lovely Mum over the decades and I wish to do everything I can to prevent this cruel disease…
• Life with Parkinson’s in the Time of COVID-19: April is Parkinson’s Awareness Month April 1, 2020 “The measure of who we are is what we do with what we have.” Vince Lombardi “When you have exhausted all possibilities, remember this: you haven’t.” Thomas Edison Précis: A different world exists today than it did just a few weeks ago, all driven by the COVID-19 pandemic. The virus seemingly favors the elderly who have a pre-existing disease(s); however,…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• Life with Parkinson’s in the Time of COVID-19: April is Parkinson’s Awareness Month April 1, 2020 “The measure of who we are is what we do with what we have.” Vince Lombardi “When you have exhausted all possibilities, remember this: you haven’t.” Thomas Edison Précis: A different world exists today than it did just a few weeks ago, all driven by the COVID-19 pandemic. The virus seemingly favors the elderly who have a pre-existing disease(s); however,…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• “The injustice of Parkinson’s motivates me” July 16, 2020 Since his Parkinson’s diagnosis 12 years ago, Alex Flynn has completed a staggering number of adventures – from finishing a 160-mile run in the Bavarian Alps in Germany, to cycling, climbing, kayaking and running his way across 3,256 miles of America. He tells us about his approach to fundraising for the condition – and what motivates him to keep moving…
• Monthly Research Review: Jaunary 2020 January 31, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during January 2020. The post is divided into seven parts based on the type of research: Basic biology, Disease mechanism, Clinical research, New clinical trials, Clinical trial news, Other news, and…
• Giving Back & Living Well with Parkinson’s April 2, 2020 “The best way to find yourself is to lose yourself in the service of others.” – Gandhi When we ask people in our community what they do to live well, the vast majority say that giving back is at the top of their list. Whether they give back by leading support groups, participating in clinical trials, educating themselves so they…
• Monthly research review: February 2020 February 29, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during February 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• The 2019 Linked Clinical Trials meeting October 16, 2019   Things were a bit quiet on the SoPD over the summer, but for good reasons. There was a short hiatus for a family break, but the rest of the time I was rather occupied with the day job. Tremendous efforts were being made at the Cure Parkinson’s Trust, as we were gearing up for our main event of the…
• The Source to Salt – Six Marathons in Six Days June 6, 2019 Andrew “Pegs” Pengelly is an inspiring story of courage in the face of adversity. After learning of his diagnosis in his early fifties, Andrew set about constructing a new vision for his life. Part of that vision was a plan of exercise and this year he decided to run over 300km along the River Thames in London. Recently, we asked…
• Parkinson’s Awareness Month is a time to look outward, not inward March 30, 2019 Who decides which disease or cause can lay claim to a month as an awareness month? I’m just curious, because we’re about to enter April, which for some reason is Parkinson’s Disease Awareness Month. It's not that I don't believe that PD deserves an awareness month. My issue is that I feel like a hypocrite. I am so aware of…
• Run for Parkinson’s: campaigners raise £321,000 at London marathon May 4, 2017 A record number of runners took part in the gruelling 26.2-mile London marathon and many – including celebrities and bloggers – were raising money for Parkinson’s research. Here, we round up a social media snapshot of their epic efforts all the way to the finish line Most people need a charitable reason to inspire them to run a marathon. For 235 out…
• Comedian Rob Deering on raising nearly £100,000 for Parkinson’s charities December 14, 2017 After his dad’s Parkinson’s diagnosis in 2001, comedian Rob Deering began running marathons to raise money for Parkinson’s causes. He has now run nine, is currently in training for his tenth – and has raised almost £100,000 along the way When and how did your family notice that your dad had Parkinson’s? I remember him having the tremor and us not…
• Davis Phinney Foundation Staff Fundraise to Help People Live Well with Parkinson’s April 9, 2020 We often hear from people who like the idea of fundraising but feel funny asking for money. We get it. We get it so much that we wrote a post a while back called, “I Hate Asking for Money (Even for a Cause).”  But, as our Team DPF Program Manager, Lauren “Peachy” Kehn, will tell you, just like training, the…
• Running with Parkinson's Disease - Dreams of Flight February 12, 2017 There was a recurring theme in some of my dreams when I was younger...I'd try to run, but despite my best efforts, I was unable to make any forward progress. It was never a situation where I was running away from something, more like I was trying to run toward something. I'd get frustrated, trying to move my legs faster,…
• Monthy research review – December 2019 December 30, 2019   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during December 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• Parkinson’s Disease Summer School 2019 (Lifestyle & Nutrition Secrets of the Positive Deviants) August 25, 2019 Last week, I spent the week at PD Summer School, a full week of Parkinson’s wellness education. Dr. Laurie Mischley has spent the last 2 decades studying lifestyle and nutrition factors associated with either slower (better) or faster (worse) progression of Parkinson’s disease. The goal is to identify and implement positive deviance strategies that can be used to slow Parkinson’s…