How Twitter Changed My Life….No Seriously!

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• How Twitter Changed My Life....No Seriously! July 31, 2019 Recently I got an email saying that I had been nominated for WEGO Health Awards “Rookie of the Year” https://www.wegohealth.com/wego-health-awards/. I was truly honored to have been nominated by parkinsonshumor.blogspot.com one of my new friends on Twitter. Another new friend is Larry Gifford, 47, whose podcast https://curiouscast.ca/podcast/160/when-life-gives-you-parkinsons/ is the first one I have ever listend to - hooked! I want…
• How Twitter Changed My Life....No Seriously! July 31, 2019 Recently I got an email saying that I had been nominated for WEGO Health Awards “Rookie of the Year” https://www.wegohealth.com/wego-health-awards/. I was truly honored to have been nominated by parkinsonshumor.blogspot.com one of my new friends on Twitter. Another new friend is Larry Gifford, 47, whose podcast https://curiouscast.ca/podcast/160/when-life-gives-you-parkinsons/ is the first one I have ever listend to - hooked! I want…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• A Primer on Young Onset Parkinson’s Disease (YOPD) and What’s Coming Next July 6, 2020 If you do a quick search for images of Parkinson’s online, most of the ones you’ll see are of seniors in stooped positions. But even though many believe that Parkinson’s only occurs in older people (the lack of age diversity in pictures is one reason for that), 4-10% of people who are diagnosed with Parkinson’s are under the age of…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• How to Encourage People with Parkinson’s to Exercise July 17, 2019 One of the most common questions we receive from friends and care partners of people with Parkinson’s is this:   “My person with Parkinson’s won’t do anything.  I can’t get them to exercise, and I don’t know what to do.”  With everything we know about exercise and Parkinson’s, it would seem that getting people to exercise would be easy. But it’s far from it.  Here are just…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• How to Work Full Time & Live Well with Parkinson’s September 17, 2020 One of the most common challenges people with Parkinson’s face is balancing treatment with everyday activities and responsibilities. Exercising, going to medical appointments, attending support groups, focusing on your mental health, and all the other necessities that help you live well with Parkinson’s require a lot of time and energy. For people working when diagnosed, finding a way to balance these demands with their career responsibilities can seem impossible.    A member of our community…
• How to Reduce the Cost of Your Parkinson’s Medications January 21, 2020 One of the most common worries we hear from people living with Parkinson’s is concern about how they’ll be able to pay for their medication over the long term. Since Parkinson’s often causes a multitude of symptoms – both motor and non-motor – that require treatment, it can be stressful to find a way to afford everything you need. However, many pharmaceutical companies now have Patient…
• Core Strengthening Exercises for Parkinson’s Disease – Part 3 of 4 April 10, 2019 Written by Dr. Sarah King, PT, DPT You’re halfway through our Parkinson’s Core Strength Exercise Mini-Series! We’ve used the last two days to practice building flexibility and deep core strength. Today, the focus is on learning how to build strength in your abdominal, lumbar, and hip muscles. CORE STRENGTHENING EXERCISES FOR PARKINSON’S – PART 3 OF 4 Day 3 Focus: Abdominal, Lumbar…
• Resolve to Live Well with Parkinson’s in 2020 January 1, 2020 For many, the new year is a time of reflection, contemplation and resolution. It’s an opportunity for change and a chance to try again to make yourself better and stronger in the year to come. Not everyone makes resolutions at the beginning of the new year, but it’s a great time to reflect on what you can do to live…
• Shining a light on Parkinson’s November 7, 2019   NOTE: The information in today’s post should not be considered an endorsement of PhotoPharmics or the treatment they are proposing. The author of this blog has had no communication with the company. The information in this post is provided because the author has been asked by readers to discuss it. In October 2018, at the annual International Movement Disorders…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• The Pathophysiology of Parkinson’s October 30, 2020 After being diagnosed with Parkinson’s, one of the most common questions is “Why?” We have seen many exciting breakthroughs in recent research, but we still don’t have a clear answer as to exactly what causes Parkinson’s. However, there are several promising advances that suggest various roots of Parkinson’s, as well as new insights that challenge century-old assumptions.  Dopamine  Brain cells, called neurons,…
• Parkinson's Disease News - Editor's Picks (Archive 2016.09) October 15, 2016 Newsfeed: PD News PD Research News PD Fitness News PD Boxing News PD Web Articles PD Blogs PD Editor's Picks PD Twitter Newsfeed ‘The Terrorist Inside My Husband’s Brain’: Robin Williams’ Widow Details His Disease – Live ScienceLive Science'The Terrorist Inside My Husband's Brain': Robin Williams' Widow Details His DiseaseLive ScienceBut Robin Williams was not diagnosed with Lewy body disease…
• The Science of Parkinson’s OFF November 16, 2020 Although the terms ON and OFF have been used to describe responses to levodopa therapy for more than 40 years, there is still no universally agreed-upon definition for the term OFF, and everyone with Parkinson’s experiences it differently. OFF periods occur when your medication isn’t working optimally, and your motor and non-motor symptoms return. OFF is much more nuanced but understanding its scientific causes…
• The Science of Parkinson’s OFF November 16, 2020 Although the terms ON and OFF have been used to describe responses to levodopa therapy for more than 40 years, there is still no universally agreed-upon definition for the term OFF, and everyone with Parkinson’s experiences it differently. OFF periods occur when your medication isn’t working optimally, and your motor and non-motor symptoms return. OFF is much more nuanced but understanding its scientific causes…
• Parkinson’s: Reflective Gratitude of Life December 20, 2019 “We don’t need more to be thankful for, we just need to be more thankful.” Carlos Castaneda “Take as a gift whatever the day brings forth.” Horace Introduction: The title of this blog post says it all. At the age of 66 years old, I stand before you thinking I need to be more thankful. Really? Yes, many deserve my gratitude…
• Parkinson’s: Reflective Gratitude of Life December 20, 2019 “We don’t need more to be thankful for, we just need to be more thankful.” Carlos Castaneda “Take as a gift whatever the day brings forth.” Horace Introduction: The title of this blog post says it all. At the age of 66 years old, I stand before you thinking I need to be more thankful. Really? Yes, many deserve my gratitude…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…