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• The road ahead: 2022 January 20, 2022 # # # # The first post at the start of each year on the SoPD website tries to provide an overview of where things are in the search for ‘disease modifying’ therapies for Parkinson’s.  It is an exercise in managing expectations as well as discussing what research events are scheduled for the next year so that we can keep…
• The road ahead: 2021 January 25, 2021 # # # # At the start of each year, it is a useful practise to layout what is planned over the next 12 months. The events that are scheduled for the year to come, so that we can keep an eye out for them. Obviously, where 2021 will end actually is unpredictable, but an outline of what is scheduled…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• Speech, Voice & Parkinson’s Q&A with John Dean January 28, 2021 We recently hosted a webinar with speech-language pathologist John Dean. You can get access to the recording here. We received so many questions during the session that we weren’t able to answer them all; so, John was kind enough to do some written Q&A for us. “When is a good time to start speech therapy?” It’s much better to maintain…
• Monthly research review: February 2020 February 29, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during February 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• 'Sunday Morning Futures' on Biden's mental capacity, Jill Biden comparing Latinos to tacos August 1, 2022 This is a rush transcript from "Sunday Morning Futures" July 17, 2022. This copy may not be in its final form and may be updated.MARIA BARTIROMO, FOX NEWS ANCHOR: Good Sunday morning, everyone. Welcome to "Sunday Morning Futures." Thanks so much for joining us. I'm Maria Bartiromo. Today: weakness on the world stage. President Biden coming home from the Middle East…
• Monthly Research Review: Jaunary 2020 January 31, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during January 2020. The post is divided into seven parts based on the type of research: Basic biology, Disease mechanism, Clinical research, New clinical trials, Clinical trial news, Other news, and…
• Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say April 28, 2020 While there are few silver linings to the cloud created by COVID-19, the pandemic that has killed tens of thousands, hobbled economies worldwide and drove millions to quarantine in their homes, one may be a new appreciation of telemedicine. “If something good could come out of this crisis, it’s that we would learn how valuable telehealth could be to our community,”…
• Treating Parkinson’s with Carbidopa/Levodopa November 27, 2020 “If you are always trying to be normal you will never know how amazing you can be.” Maya Angelou “Hope and fear cannot occupy the same space. Invite one to stay.” Maya Angelou Précis: This blog post’s primary goal is to present an overview of Carbidopa/Levodopa (originally named Sinemet) for treating Parkinson’s. A secondary objective was to describe the change in…
• Life with Parkinson’s in the Time of COVID-19: April is Parkinson’s Awareness Month April 1, 2020 “The measure of who we are is what we do with what we have.” Vince Lombardi “When you have exhausted all possibilities, remember this: you haven’t.” Thomas Edison Précis: A different world exists today than it did just a few weeks ago, all driven by the COVID-19 pandemic. The virus seemingly favors the elderly who have a pre-existing disease(s); however,…
• How Telemedicine Can Help You Live Well with Parkinson’s November 28, 2020 Telemedicine is the practice of healthcare in an online format. As video conferencing technology has developed and become more reliable and secure (including being HIPAA-compliant), many physicians and specialists have begun offering their services through video calls in addition to or instead of in-person appointments. Although telemedicine has traditionally been beneficial for people who live in rural areas or for…
• How to Work Full Time & Live Well with Parkinson’s September 17, 2020 One of the most common challenges people with Parkinson’s face is balancing treatment with everyday activities and responsibilities. Exercising, going to medical appointments, attending support groups, focusing on your mental health, and all the other necessities that help you live well with Parkinson’s require a lot of time and energy. For people working when diagnosed, finding a way to balance these demands with their career responsibilities can seem impossible.    A member of our community…
• Giving Back & Living Well with Parkinson’s April 2, 2020 “The best way to find yourself is to lose yourself in the service of others.” – Gandhi When we ask people in our community what they do to live well, the vast majority say that giving back is at the top of their list. Whether they give back by leading support groups, participating in clinical trials, educating themselves so they…
• Words with Hope December 8, 2021 “There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something better tomorrow.” Orison Swett Marden “Hope is a waking dream.” Aristotle Introduction: Over the years, I have used blog posts about a specific word, feeling, or emotion. A frequent word used a lot here is the word ‘hope’. To some, hope may…
• How to Understand and Manage OFF Times as a Parkinson’s Care Partner November 18, 2020 As Parkinson’s care partners know well, everyone living with Parkinson’s experiences OFF times differently. (OFF times occur when the medication wears off, hasn’t kicked in, or just isn’t providing symptom relief.) For some, especially those who have been diagnosed for only a few years, OFF periods may be rare and a minor concern. For others, OFF can be a frequent…
• The many variations of carbidopa/levodopa – the mainstay of Parkinson’s disease treatment March 9, 2021 How carbidopa/levodopa is used to treat Parkinson’s disease symptoms Loss of neurons in the brain that use dopamine to communicate is one of the hallmark features of Parkinson’s disease (PD), causing slowness, stiffness, tremor and balance problems. Replacing the brain’s dopamine is therefore one of the key treatment strategies to help improve the motor symptoms of PD. Dopamine itself does…
• 5 Misconceptions about Living with Parkinson’s May 29, 2020 Written by Kelsey Phinney Misconception #1: “Every person living with Parkinson’s has the same symptoms.”  My dad, Davis, told me that there’s a common saying in the Parkinson’s community: “When you know one person living with Parkinson’s, you know ONE person living with Parkinson’s.”  Each person with Parkinson’s is on a journey all their own. And while people with Parkinson’s may have…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• Treating Parkinson’s with Carbidopa/Levodopa November 27, 2020 “If you are always trying to be normal you will never know how amazing you can be.” Maya Angelou “Hope and fear cannot occupy the same space. Invite one to stay.” Maya Angelou Précis: This blog post’s primary goal is to present an overview of Carbidopa/Levodopa (originally named Sinemet) for treating Parkinson’s. A secondary objective was to describe the change in…
• The Brilliant 10: The top up-and-coming minds in science October 19, 2022 Popular Science There’s a phrase that rings loudly in the heads of Popular Science editors any time we bring together a new Brilliant 10 class: “They’ve only just begun.” Our annual list of early-career scientists and engineers is as much a celebration of what our honorees have already accomplished as it is a forecast for what they’ll do next. To…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…