Jane Willis’ Freedom from Parkinson’s Trail

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• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• Jane Willis' Freedom from Parkinson's Trail July 17, 2018 On Saturday 7th July The Cure Parkinson’s Trust (CPT) supporter Jane Willis and her team set off on an incredible fundraising challenge: to hike 40 miles over the Chemin de la Liberte in the Pyrenees Mountains. Renamed temporarily by Jane and her team as the ‘Freedom from Parkinson’s Trail,’ this iconic passage which runs from France into Spain was used…
• A Primer on Sleep and Parkinson’s August 14, 2019 For many years, the benefits and causes of sleep remained a mystery. However, in the past few years, sleep science has grown significantly. We now have a deeper understanding of the importance of sleep, why it is so essential to sleep consistently and properly, the effects of sleep medicine and how people with Parkinson’s are specifically affected. Matthew Walker, PhD…
• Larapinta Trek for Parkinson’s 2019 August 27, 2019 Shake It up Founder and CEO Clyde Campbell will join 16 other passionate Shake It Up Supporters to trek the Larapinta Trail.  The team have departed on this amazing adventure and you can stay up to date with their travels by reading their daily blog below:Learn more about the team and find out how you can show your support.   Day 1 - Arrive Alice Springs…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• The 2019 Linked Clinical Trials meeting October 16, 2019   Things were a bit quiet on the SoPD over the summer, but for good reasons. There was a short hiatus for a family break, but the rest of the time I was rather occupied with the day job. Tremendous efforts were being made at the Cure Parkinson’s Trust, as we were gearing up for our main event of the…
• I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that.    To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
• Milestones in Parkinson’s Disease Research and Discovery April 11, 2017 “The real voyage of discovery consists not in seeking new landscapes, but in having new eyes.” Marcel Proust “The process of scientific discovery is, in effect, a continual flight from wonder.” Albert Einstein Preface:  Happy birthday to James Parkinson (neurologist, geologist, scientist, activist),  born April 11, 1755 and died December 21, 1824.  World Parkinson’s Day April 11, 2017. Introduction to…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…