John Heelas takes on Hadrian’s Wall for CPT

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• John Heelas takes on Hadrian's Wall for CPT July 25, 2018 Pictured above: John Heelas with sons Ludo and Orlando  On the 15th July John Heelas along with a team of family and friends took on the challenge of walking the famous Hadrian’s Wall to raise awareness and funds for The Cure Parkinson’s Trust (CPT). John was diagnosed with Parkinson’s in 2010, aged 47.  John’s core team comprised of his sisters…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• “People out there want to help” August 30, 2018 John Heelas – who was diagnosed with Parkinson’s at the age of 47 – recently walked Hadrian’s Wall, a 73-mile Roman wall in the north-west of the UK, to raise money for The Cure Parkinson’s Trust. We talk to him about the inspiration behind his journey, how he raised more than triple his initial target – and his plan to…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• Flying Foxes May 15, 2018 My Wonderful Husband and I will be flying to Los Angels and then to New York City at the end of April to participate in some Parkinson's disease related events. There's just one small problem. We both hate flying. We are NOT afraid of flying. It's just that whenever one of us gets on a plane, something always goes wrong. I don't…
• Flying Foxes May 15, 2018 My Wonderful Husband and I will be flying to Los Angels and then to New York City at the end of April to participate in some Parkinson's disease related events. There's just one small problem. We both hate flying. We are NOT afraid of flying. It's just that whenever one of us gets on a plane, something always goes wrong. I don't…
• Flying Foxes May 15, 2018 My Wonderful Husband and I will be flying to Los Angels and then to New York City at the end of April to participate in some Parkinson's disease related events. There's just one small problem. We both hate flying. We are NOT afraid of flying. It's just that whenever one of us gets on a plane, something always goes wrong. I don't…
• Flying Foxes May 15, 2018 My Wonderful Husband and I will be flying to Los Angels and then to New York City at the end of April to participate in some Parkinson's disease related events. There's just one small problem. We both hate flying. We are NOT afraid of flying. It's just that whenever one of us gets on a plane, something always goes wrong. I don't…
• Flying Foxes May 15, 2018 My Wonderful Husband and I will be flying to Los Angels and then to New York City at the end of April to participate in some Parkinson's disease related events. There's just one small problem. We both hate flying. We are NOT afraid of flying. It's just that whenever one of us gets on a plane, something always goes wrong. I don't…
• Flying Foxes May 15, 2018 My Wonderful Husband and I will be flying to Los Angels and then to New York City at the end of April to participate in some Parkinson's disease related events. There's just one small problem. We both hate flying. We are NOT afraid of flying. It's just that whenever one of us gets on a plane, something always goes wrong. I don't…
• Life with Parkinson’s in the Time of COVID-19: April is Parkinson’s Awareness Month April 1, 2020 “The measure of who we are is what we do with what we have.” Vince Lombardi “When you have exhausted all possibilities, remember this: you haven’t.” Thomas Edison Précis: A different world exists today than it did just a few weeks ago, all driven by the COVID-19 pandemic. The virus seemingly favors the elderly who have a pre-existing disease(s); however,…
• 4-Part Exercise Mini-Series: Core Strengthening Exercises for Parkinson’s April 8, 2019 Written by Dr. Sarah King, PT, DPT “You need to focus on your core!” This buzz word – “the core” – exploded in the late 80s (anyone remember the Abdominizer?) and infomercials have taken the term and run with it, making billions of dollars in the process. Contrary to popular belief, and to the detriment of ab products everywhere, you…
• The 2019 Linked Clinical Trials meeting October 16, 2019   Things were a bit quiet on the SoPD over the summer, but for good reasons. There was a short hiatus for a family break, but the rest of the time I was rather occupied with the day job. Tremendous efforts were being made at the Cure Parkinson’s Trust, as we were gearing up for our main event of the…
• Parkinson’s Awareness Month is a time to look outward, not inward March 30, 2019 Who decides which disease or cause can lay claim to a month as an awareness month? I’m just curious, because we’re about to enter April, which for some reason is Parkinson’s Disease Awareness Month. It's not that I don't believe that PD deserves an awareness month. My issue is that I feel like a hypocrite. I am so aware of…
• Life with Parkinson’s in the Time of COVID-19: April is Parkinson’s Awareness Month April 1, 2020 “The measure of who we are is what we do with what we have.” Vince Lombardi “When you have exhausted all possibilities, remember this: you haven’t.” Thomas Edison Précis: A different world exists today than it did just a few weeks ago, all driven by the COVID-19 pandemic. The virus seemingly favors the elderly who have a pre-existing disease(s); however,…
• Parkinson’s: Reflective Gratitude of Life December 20, 2019 “We don’t need more to be thankful for, we just need to be more thankful.” Carlos Castaneda “Take as a gift whatever the day brings forth.” Horace Introduction: The title of this blog post says it all. At the age of 66 years old, I stand before you thinking I need to be more thankful. Really? Yes, many deserve my gratitude…
• Parkinson’s: Reflective Gratitude of Life December 20, 2019 “We don’t need more to be thankful for, we just need to be more thankful.” Carlos Castaneda “Take as a gift whatever the day brings forth.” Horace Introduction: The title of this blog post says it all. At the age of 66 years old, I stand before you thinking I need to be more thankful. Really? Yes, many deserve my gratitude…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…