Friday 8 May 2019I suspect I’m going to regret saying this, but right now I’m loving the lockdown.I do, of course, acknowledge I’m one of the lucky ones (with the caveat that we often make our own luck – see previous post Lucky or unlucky?). I still have a well-paid white-collar job, a job that I can perform reasonably well ... read more
Source: Shaking Steven – Living with YOPDPublished on 2020-05-08By Unknown
Related Articles:
- The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
- Loving the lockdown May 8, 2020 Friday 8 May 2019I suspect I’m going to regret saying this, but right now I’m loving the lockdown.I do, of course, acknowledge I’m one of the lucky ones (with the caveat that we often make our own luck – see previous post Lucky or unlucky?). I still have a well-paid white-collar job, a job that I can perform reasonably well…
- 2019: Year in review December 31, 2019 In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
- Lucky or unlucky? October 26, 2019 Sunday 27 October 2019Am I lucky or unlucky? It’s a question I was pondering on holiday recently as I waited for my online opponents to make their Scrabblemoves.On face value I’m pretty unlucky, right?In my mid-forties, when I should have been in the prime of my career and my contribution to society, my life was turned upside down by the…
- Lucky or unlucky? October 26, 2019 Sunday 27 October 2019Am I lucky or unlucky? It’s a question I was pondering on holiday recently as I waited for my online opponents to make their Scrabblemoves.On face value I’m pretty unlucky, right?In my mid-forties, when I should have been in the prime of my career and my contribution to society, my life was turned upside down by the…
- Lucky or unlucky? October 26, 2019 Sunday 27 October 2019Am I lucky or unlucky? It’s a question I was pondering on holiday recently as I waited for my online opponents to make their Scrabblemoves.On face value I’m pretty unlucky, right?In my mid-forties, when I should have been in the prime of my career and my contribution to society, my life was turned upside down by the…
- Lucky or unlucky? October 26, 2019 Sunday 27 October 2019Am I lucky or unlucky? It’s a question I was pondering on holiday recently as I waited for my online opponents to make their Scrabblemoves.On face value I’m pretty unlucky, right?In my mid-forties, when I should have been in the prime of my career and my contribution to society, my life was turned upside down by the…
- Shining a light on Parkinson’s November 7, 2019 NOTE: The information in today’s post should not be considered an endorsement of PhotoPharmics or the treatment they are proposing. The author of this blog has had no communication with the company. The information in this post is provided because the author has been asked by readers to discuss it. In October 2018, at the annual International Movement Disorders…
- Sleepiness and Fatigue in Parkinson’s & What to Do About Them January 31, 2019 Two of the most common and disabling symptoms we hear about from people with Parkinson’s are fatigue and sleepiness. What we’ve learned, however, is that some people call it fatigue when they really mean sleepiness. Or, they say they’re tired all of the time when what they’re really experiencing is fatigue. Do the words people choose really matter? Yes, because…
- I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that. To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
- Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn- She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46. Mariëtte has a dynamic and vibrant blog…
- Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn- She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46. Mariëtte has a dynamic and vibrant blog…
- Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn- She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46. Mariëtte has a dynamic and vibrant blog…
- My Parkinson's Life Style Eating Plan May 11, 2018 I’ve been on the Keto diet, as well as several other Paleo and plant-based diets in hopes they would help my Parkinson’s symptoms. When my wife and I decided to get serious with our eating life style again, we looked at our options and our focus turned back to doing the Dr. Wahl’s version of the Paleo diet which we…
- You’ve Been Diagnosed with Parkinson’s, Now What? February 20, 2018 Written by Tom Sheppard and Lauren Simmons If you’ve received a diagnosis of Parkinson’s, you may be feeling overwhelmed, devastated, angry, confused or all of the above. We felt the same way when we heard our doctors say, “You have Parkinson’s.” You wake up one day thinking about your grand plans for the future, and the next you realize your…
- Parkinson’s: Reflective Gratitude of Life December 20, 2019 “We don’t need more to be thankful for, we just need to be more thankful.” Carlos Castaneda “Take as a gift whatever the day brings forth.” Horace Introduction: The title of this blog post says it all. At the age of 66 years old, I stand before you thinking I need to be more thankful. Really? Yes, many deserve my gratitude…
- Parkinson’s: Reflective Gratitude of Life December 20, 2019 “We don’t need more to be thankful for, we just need to be more thankful.” Carlos Castaneda “Take as a gift whatever the day brings forth.” Horace Introduction: The title of this blog post says it all. At the age of 66 years old, I stand before you thinking I need to be more thankful. Really? Yes, many deserve my gratitude…
- 5 Ways to Live Well with Parkinson’s in 2019 January 8, 2019 It’s hard to ignore the feeling of newness in the air. The letting go of one year and welcoming in a new one and all of the possibilities it may provide. And, even if you’re not of fan of resolutions, you probably still have ideas of how you can live better in 2019. At the Davis Phinney Foundation, we certainly…
- Monthly research review: February 2020 February 29, 2020 At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during February 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
- Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
- Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
- 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…