Michael J. Fox Foundation teams up with H1 to drive PD research engagement – Clinical Trials Arena

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• The road ahead: 2022 January 20, 2022 # # # # The first post at the start of each year on the SoPD website tries to provide an overview of where things are in the search for ‘disease modifying’ therapies for Parkinson’s.  It is an exercise in managing expectations as well as discussing what research events are scheduled for the next year so that we can keep…
• The road ahead: 2021 January 25, 2021 # # # # At the start of each year, it is a useful practise to layout what is planned over the next 12 months. The events that are scheduled for the year to come, so that we can keep an eye out for them. Obviously, where 2021 will end actually is unpredictable, but an outline of what is scheduled…
• Michael J. Fox: From 'Family Ties' sitcom star to Parkinson's activist bringing hope to millions May 11, 2023 Michael J. Fox has been a household name for decades, and he's earned that status by working relentlessly for most of his life. His career experienced a massive shift as the Parkinson's disease he was diagnosed with at 29 began to make acting difficult. In 2000, he founded the Michael J. Fox Foundation in hopes of funding research that would…
• Welcome to our new 2020 Parkinson’s Ambassadors! February 23, 2020 Ambassadors are an important link between the Davis Phinney Foundation and local communities. The Ambassador program was founded in 2015 to support the change-makers and community leaders who help people with Parkinson’s live well today. Our ambassadors are Parkinson’s advocates who love discussing tools and strategies for improving quality of life with support groups, individuals, families, and healthcare professionals. This…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• Monthly Research Review: January 2022 January 31, 2022 # # # # At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during January 2022. The post is divided into 10 parts based on the type of research: Top 6 pieces of Parkinson’s news Articles of general interest Basic biology…
• EJS-ACT PD June 26, 2021 # # # # This week an announcement was made regarding The Edmond J. Safra Accelerating Clinical Treatments for Parkinson’s Disease (EJS-ACT PD) Initiative. It is hoping to revolutionise the way clinical trials for potentially disease-modifying drugs for Parkinson’s are conducted. The project is focused on the setting up a multi-arm, multi-stage (MAMS) platform for evaluating new therapies for PD.…
• Monthly research review: February 2020 February 29, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during February 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• The drug development pipeline for Parkinson’s December 2, 2020 # # # # For a long time a regular request from SoPD readers has been to provide an overview of the clinical trial landscape for Parkinson’s, particularly in the area of drug development. Such projects are difficult, however, as the landscape is broad and dynamic – lots of different approaches being applied and new entrants continually entering the arena.…
• Monthly Research Review – October 2021 October 31, 2021 # # # # At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during October 2021. The post is divided into 10 parts based on the type of research: Top 5 pieces of Parkinson’s news Articles of general interest Basic biology…
• Michael J. Fox speculates whether his partying could have led to Parkinson's disease May 2, 2023 Michael J. Fox has been an advocate for Parkinson's disease for over two decades following his diagnosis in 1991, when he was just 29 years old. As the founder of the Michael J. Fox Foundation, an organization dedicated to finding a cure for the disease, Fox has helped doctors and researchers find a better understanding of how the disease progresses,…
• Michael J. Fox reveals wife's reaction to his Parkinson's disease diagnosis April 6, 2023 Michael J. Fox is revealing his wife's reaction to his Parkinson's disease diagnosis.  In the trailer for his upcoming documentary, "Still: A Michael J. Fox Movie," Fox takes viewers down memory lane as he previews the "story of me." "I told Tracy the news. 'In sickness and in health,' I remember her whispering," Fox recalled of wife Tracy Pollan in…
• Parkinson's Disease News - Editor's Picks (Archive 2016.11) March 17, 2017 Newsfeed: PD News PD Research News PD Fitness News PD Boxing News PD Web Articles PD Blogs PD Editor's Picks PD Twitter Newsfeed Neurons Paralyze Us During REM SleepIt will also be most useful in the study of Parkinson’s disease, since these pathologies are related. This work was published on December 12, 2016 on the website of the journal Brain.…
• Michael J. Fox says he doesn’t feel sorry for himself because of Parkinson’s disease: 'No regrets' March 15, 2023 Michael J. Fox is redefining what a diagnosis with Parkinson's disease looks like – not dwelling on the disorder that effects his nervous system. While in Austin at the SXSW festival where he is showcasing his documentary "Still: A Michael J. Fox Movie," Fox was asked how he "mobilized" people to be passionate about the cause so close to his…
• Monthly Research Review – July 2021 July 31, 2021 # # # # At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during July 2021. The post is divided into 10 parts based on the type of research: Top 5 pieces of Parkinson’s news Articles of general interest Basic biology…
• A Primer on Young Onset Parkinson’s Disease (YOPD) and What’s Coming Next July 6, 2020 If you do a quick search for images of Parkinson’s online, most of the ones you’ll see are of seniors in stooped positions. But even though many believe that Parkinson’s only occurs in older people (the lack of age diversity in pictures is one reason for that), 4-10% of people who are diagnosed with Parkinson’s are under the age of…
• Gleanings from AARP’s Cover Story on Michael J. Fox January 6, 2022 ************ Gleanings from AARP’s Cover Story on Michael J. Fox AARP Magazine just published a cover story on Michael J. Fox, the famed actor perhaps best known for his “Back to the Future” flicks – and who is now probably the most famous Parkie in the world.  He was diagnosed with Parkinson’s some 30 years ago, when he was about…
• Davis Phinney Foundation Staff Fundraise to Help People Live Well with Parkinson’s April 9, 2020 We often hear from people who like the idea of fundraising but feel funny asking for money. We get it. We get it so much that we wrote a post a while back called, “I Hate Asking for Money (Even for a Cause).”  But, as our Team DPF Program Manager, Lauren “Peachy” Kehn, will tell you, just like training, the…
• ‘No Time Like the Future’: Michael J Fox announces new book March 12, 2020 US actor and Parkinson’s campaigner Michael J Fox shares “a moving account of resilience, hope, fear and mortality” in his new book set for release this November Michael J Fox, the ‘Back to the Future’ star who was diagnosed with Parkinson’s in 1991, has announced his fourth book: ‘No Time Like the Future: An Optimist Considers Mortality’. Described by publisher…
• Michael J. Fox says 'I'm not going to be 80' amid ongoing battle with Parkinson’s disease April 29, 2023 Michael J. Fox is candidly speaking out about his ongoing battle with Parkinson's disease.  Fox, 61, addressed the challenges he faces daily with the incurable disease and said he doesn’t believe he’ll live to be 80 years old. "My life is set up so ... I can pack Parkinson's along with me if I have to," Fox said during an…
• Michael J. Fox reveals he has suffered multiple broken bones over the past year: 'It's been a struggle' October 27, 2022 Michael J. Fox opened up about his struggles over the past year, in which he suffered multiple painful injuries and mourned the loss of his mother Phyllis, who died in September at 92.  The 61-year-old actor, who has battled Parkinson's disease for more than 30 years, told People magazine that his health challenges have worsened with age. The "Back to…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…