Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s

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• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• Don’t leave me dopamine…… July 22, 2018 Dear dopamine, I’m writing this to you because I miss you. I miss you so much! I’m sorry you felt the need to leave me. I have gone over our years together many times and I can’t pinpoint any one thing that I did that would have caused you to up and go one day. Did I take you for…
• Moments of Victory® – Kerry Boxes with Parkinson’s November 29, 2017 Briefly describe your journey since diagnosis: I remember the day my right pinkie finger started to twitch. It was unusual for me, but small, so I ignored it. A year later when my finger (and now my hand) had a tremor, I sought a diagnosis. I was referred to a movement disorders specialist in Seattle. I remember being given the…
• Paul Mayhew-Archer: 'I want to show people with Parkinson's can do comedy July 20, 2018 The writer of The Vicar of Dibley and Mrs Brown’s Boys discusses the funny side of living with the illness and his new Edinburgh show, Incurable Optimist“Good news,” the comedy writer Paul Mayhew-Archer likes to say of the moment he learned he had Parkinson’s disease. “The neurologist said I could expect five good years.” There is, of course, some bad…
• Paul Mayhew-Archer: 'I want to show people with Parkinson's can do comedy July 20, 2018 The writer of The Vicar of Dibley and Mrs Brown’s Boys discusses the funny side of living with the illness and his new Edinburgh show, Incurable Optimist“Good news,” the comedy writer Paul Mayhew-Archer likes to say of the moment he learned he had Parkinson’s disease. “The neurologist said I could expect five good years.” There is, of course, some bad…
• “You’re superhuman up there”: Parkinson’s in space June 25, 2020 Former NASA astronaut Rich Clifford completed his third space shuttle journey after being diagnosed with Parkinson’s. Twenty-four years later, he shares memories of the mission, talks about his exposure to pesticides – and highlights why he decided to reveal his diagnosis Journeying into space is an incredible feat – it’s even more impressive when you’ve been diagnosed with Parkinson’s. Michael…
• “You’re superhuman up there”: Parkinson’s in space June 25, 2020 Former NASA astronaut Rich Clifford completed his third space shuttle journey after being diagnosed with Parkinson’s. Twenty-four years later, he shares memories of the mission, talks about his exposure to pesticides – and highlights why he decided to reveal his diagnosis Journeying into space is an incredible feat – it’s even more impressive when you’ve been diagnosed with Parkinson’s. Michael…
• The Boxing Story Begins! March 24, 2019 Me and Denise, Vice Chairman, LDBF - Boxing for Parkinson’s. This woman was sent to me for a reason…. I have to start the boxing story somewhere. This story will take more than one post.The story begins on February 2018, a few days after getting diagnosed and after being told I needed to box. (And, everyone knows that I am…
• The Boxing Story Begins! March 24, 2019 Me and Denise, Vice Chairman, LDBF - Boxing for Parkinson’s. This woman was sent to me for a reason…. I have to start the boxing story somewhere. This story will take more than one post.The story begins on February 2018, a few days after getting diagnosed and after being told I needed to box. (And, everyone knows that I am…
• Broadcasting legend David ‘Kid’ Jensen told to not “tell anybody” about Parkinson’s May 28, 2020 David ‘Kid’ Jensen, the former Radio 1 DJ, reveals that he was warned by a neurologist to keep his Parkinson’s a secret – and shares why he ignored the advice  David ‘Kid’ Jensen, a UK-based radio DJ who was diagnosed with Parkinson’s in 2013, has revealed that his neurologist told him to keep his condition a secret, even from his…
• Broadcasting legend David ‘Kid’ Jensen told to not “tell anybody” about Parkinson’s May 28, 2020 David ‘Kid’ Jensen, the former Radio 1 DJ, reveals that he was warned by a neurologist to keep his Parkinson’s a secret – and shares why he ignored the advice  David ‘Kid’ Jensen, a UK-based radio DJ who was diagnosed with Parkinson’s in 2013, has revealed that his neurologist told him to keep his condition a secret, even from his…
• Broadcasting legend David ‘Kid’ Jensen told to not “tell anybody” about Parkinson’s May 28, 2020 David ‘Kid’ Jensen, the former Radio 1 DJ, reveals that he was warned by a neurologist to keep his Parkinson’s a secret – and shares why he ignored the advice  David ‘Kid’ Jensen, a UK-based radio DJ who was diagnosed with Parkinson’s in 2013, has revealed that his neurologist told him to keep his condition a secret, even from his…
• Broadcasting legend David ‘Kid’ Jensen told to not “tell anybody” about Parkinson’s May 28, 2020 David ‘Kid’ Jensen, the former Radio 1 DJ, reveals that he was warned by a neurologist to keep his Parkinson’s a secret – and shares why he ignored the advice  David ‘Kid’ Jensen, a UK-based radio DJ who was diagnosed with Parkinson’s in 2013, has revealed that his neurologist told him to keep his condition a secret, even from his…
• Broadcasting legend David ‘Kid’ Jensen told to not “tell anybody” about Parkinson’s May 28, 2020 David ‘Kid’ Jensen, the former Radio 1 DJ, reveals that he was warned by a neurologist to keep his Parkinson’s a secret – and shares why he ignored the advice  David ‘Kid’ Jensen, a UK-based radio DJ who was diagnosed with Parkinson’s in 2013, has revealed that his neurologist told him to keep his condition a secret, even from his…
• 3 Years In……. April 21, 2018 On April 22 it will be my 3 year “anniversary” of being diagnosed with Young Onset Parkinson’s Disease. (Gosh, I just don’t know what to get myself) As I think about this date I really don’t know how to feel. Obviously there will not be a party or dinner with friends. I hate having this disease. I don’t know why…
• Women and Parkinson’s: “being pregnant was scary” November 14, 2019 Since her Parkinson’s diagnosis, UK blogger Ellie Finch Hulme has given birth to two children. In the third in our series on women and Parkinson’s, she shares her unique perspective – from a  “scary” lack of information and support to the condition robbing her of the choice to breast feed – and reflects on the issues surrounding Parkinson’s and motherhood…
• MacLean’s: If You Live with Parkinson’s Disease, You are Not Alone September 17, 2020 The following post appeared in a special insert to MacLean’s magazine, published on September 17, 2020. Nobody should have to navigate Parkinson’s disease alone. Blake Bell shares his journey with Parkinson’s, from diagnosis to how he thrives today. Receiving a diagnosis of Parkinson’s disease is tough. I remember when I went to my doctor and he told me, “You need…
• MacLean’s: If You Live with Parkinson’s Disease, You are Not Alone September 17, 2020 The following post appeared in a special insert to MacLean’s magazine, published on September 17, 2020. Nobody should have to navigate Parkinson’s disease alone. Blake Bell shares his journey with Parkinson’s, from diagnosis to how he thrives today. Receiving a diagnosis of Parkinson’s disease is tough. I remember when I went to my doctor and he told me, “You need…
• Podcast: What’s it like caring for someone with Parkinson’s? June 20, 2019 In the second episode of our Parkinson’s podcast, Ola Larsson and Ivona Cudova, who both care for a family member with Parkinson’s, came together to talk about how taking on the role of ‘carer’ impacted their relationships, why seeking support from people in a similar position is a necessity – and the futility of dwelling on the future Ola Larsson’s…
• “My hopes faded. I was desperately trying to provide for my family” September 5, 2019 In this guest post, Parkinson’s campaigner and author Dean G. Parsons has an honest and open conversation with his friend Brendan Quinn (pictured above) about young-onset Parkinson’s. In a revealing interview, Brendan reflects on the shock of being diagnosed with the condition in his late thirties, the pressures he feels to provide for his family – and his experience of…