More States Integrating Palliative Care Into Medicaid Programs – Hospice News

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• Let’s Talk About Palliative Care and Parkinson’s disease January 12, 2021 People with Parkinson’s disease (PD) and their care partners are always searching for ways to make their lives easier, healthier and fuller. Using the principles of palliative care to enhance PD-specific care is one way to do that. Palliative care is a medical approach for those with complex illnesses, in which the focus is on maximizing quality of life. This…
• Palliative Care Leads to Better Quality of Life than Standard Care for PDRD Patients, Study Finds February 12, 2020 Palliative care — focusing on physical, psychosocial and spiritual treatment — for people with Parkinson’s disease and related disorders (PDRD) led to a significantly better quality of life (QoL) than standard care alone, a study finds. Easing of both non-motor and motor symptom severity was linked to palliative care intervention — and those with the greatest needs benefited the most,…
• [Webinar Recording] Holistic and Supportive Care for People Living with Parkinson’s November 12, 2020 If you’ve been living with Parkinson’s for any length of time, you’ve probably heard the terms holistic care, supportive care, or palliative care. But you may not know what they mean when it comes to your care, now and in the future. Dr. Christopher Tarolli recently joined us to talk about palliative care and how it is ideal for people living…
• [Webinar Recording] Holistic and Supportive Care for People Living with Parkinson’s November 12, 2020 If you’ve been living with Parkinson’s for any length of time, you’ve probably heard the terms holistic care, supportive care, or palliative care. But you may not know what they mean when it comes to your care, now and in the future. Dr. Christopher Tarolli recently joined us to talk about palliative care and how it is ideal for people living…
• Holistic and Supportive Care for People Living with Parkinson’s November 11, 2020 If you’ve been living with Parkinson’s for any length of time, you’ve probably heard the terms holistic care, supportive care, or palliative care. But you may not know what they mean when it comes to your care, now and in the future. Dr. Christopher Tarolli recently joined us to talk about palliative care and how it is ideal for people living…
• Holistic and Supportive Care for People Living with Parkinson’s November 12, 2020 If you’ve been living with Parkinson’s for any length of time, you’ve probably heard the terms holistic care, supportive care, or palliative care. But you may not know what they mean when it comes to your care, now and in the future. Dr. Christopher Tarolli recently joined us to talk about palliative care and how it is ideal for people living…
• Holistic and Supportive Care for People Living with Parkinson’s November 12, 2020 If you’ve been living with Parkinson’s for any length of time, you’ve probably heard the terms holistic care, supportive care, or palliative care. But you may not know what they mean when it comes to your care, now and in the future. Dr. Christopher Tarolli recently joined us to talk about palliative care and how it is ideal for people living…
• Tool Can Help Guide Palliative Care Decisions in Parkinson’s, Study Says April 28, 2020 A new tool, based on multiple signs of disease progression, can help guide healthcare professionals in decisions on when to start palliative care for people with Parkinson’s, researchers report. Their study,”RADPAC-PD: A tool to support healthcare professionals in timely identifying palliative care needs of people with Parkinson’s disease,” was published in PLOS ONE. Palliative care broadly refers to medical care…
• But Wait, I’m Not Dying! Why Palliative Care Is For Living Now March 4, 2021 This is typically the first sentence I hear when offering our Neuropalliative Care service to patients.  In fact, physicians and nurses sometimes make the statement on behalf of their patients.  Despite talking about palliative care for people with Parkinson Disease (PwP) since 2005, I am faced with this statement on a weekly basis.  I want to be clear: “Palliative care…
• Palliative Care vs. Hospice: What’s the Difference? July 8, 2022 ********** Palliative Care vs. Hospice:  What’s the Difference? I recently attended an online seminar for people with Parkinson’s disease, which discussed the differences between palliative care and hospice.  In many ways, they are vastly different, yet there’s some overlap, too. Let’s dig in! Palliative care involves aiding people with serious illnesses to improve their quality of life as they themselves…
• Chronic Illness Shouldn’t Mean Chronic Poverty February 2, 2021 Each day, Emmett Burns, aged 21, counts the number of bandages and medicine left in his supply. A full time college student in Connecticut, Emmett is unable to work due to Mast Cell Activation Syndrome (MCAS). He currently has $3 in his checking account and no savings or emergency fund. With the $850 a month he spends on medical supplies…
• Planning for the What Ifs: Navigating the Future March 30, 2021 Navigating the Future with Advanced Parkinson’s Disease Dr. Gilbert interviews Eleanora Tornatore-Mikesh for her insights on planning for the future with advanced Parkinson’s Today we continue Parkinson’s Disease: Planning for the What Ifs, a special series of posts that discuss the issues of advanced Parkinson’s disease (PD). Additional background about advanced PD and the full introduction to the series is available if you need…
• Ask the expert: Preparing for end of life June 10, 2021 In the latest in our ‘Ask the expert’ series, Estonia-based neurologist Dr Pille Taba discusses how people can prepare for palliative care – and why she thinks a multidisciplinary approach to treatment is even more crucial near the end of life What is palliative care? Palliative care is defined by the World Health Organization as an approach that improves the…
• Commentary: Neurologists on Palliative Care Communication June 18, 2021 Among the most powerful instruments of healing are patients’ relationships with their doctors or clinicians. Feeling seen and valued by the clinicians they trust helps patients retain a sense of meaning and human connection during a time of fear and uncertainty. This relationship, rooted in trust, is one of the only things that provide comfort for patients. The sudden, life-changing…
• Access and Attitudes Toward Palliative Care Among Movement Disorders Clinicians August 25, 2021 Mov Disord. 2021 Aug 25. doi: 10.1002/mds.28773. Online ahead of print.ABSTRACTBACKGROUND: Neuropalliative care is an emerging field for those with neurodegenerative illnesses, but access to neuropalliative care remains limited.OBJECTIVE: We sought to determine Movement Disorder Society (MDS) members' attitudes and access to palliative care.METHODS: A quantitative and qualitative survey instrument was developed by the MDS Palliative Care Task Force and…
• Access and Attitudes Toward Palliative Care Among Movement Disorders Clinicians August 25, 2021 Mov Disord. 2021 Aug 25. doi: 10.1002/mds.28773. Online ahead of print.ABSTRACTBACKGROUND: Neuropalliative care is an emerging field for those with neurodegenerative illnesses, but access to neuropalliative care remains limited.OBJECTIVE: We sought to determine Movement Disorder Society (MDS) members' attitudes and access to palliative care.METHODS: A quantitative and qualitative survey instrument was developed by the MDS Palliative Care Task Force and…
• Access and Attitudes Toward Palliative Care Among Movement Disorders Clinicians August 25, 2021 Mov Disord. 2021 Aug 25. doi: 10.1002/mds.28773. Online ahead of print.ABSTRACTBACKGROUND: Neuropalliative care is an emerging field for those with neurodegenerative illnesses, but access to neuropalliative care remains limited.OBJECTIVE: We sought to determine Movement Disorder Society (MDS) members' attitudes and access to palliative care.METHODS: A quantitative and qualitative survey instrument was developed by the MDS Palliative Care Task Force and…
• Access and Attitudes Toward Palliative Care Among Movement Disorders Clinicians August 25, 2021 Mov Disord. 2021 Aug 25. doi: 10.1002/mds.28773. Online ahead of print.ABSTRACTBACKGROUND: Neuropalliative care is an emerging field for those with neurodegenerative illnesses, but access to neuropalliative care remains limited.OBJECTIVE: We sought to determine Movement Disorder Society (MDS) members' attitudes and access to palliative care.METHODS: A quantitative and qualitative survey instrument was developed by the MDS Palliative Care Task Force and…
• The road ahead: 2022 January 20, 2022 # # # # The first post at the start of each year on the SoPD website tries to provide an overview of where things are in the search for ‘disease modifying’ therapies for Parkinson’s.  It is an exercise in managing expectations as well as discussing what research events are scheduled for the next year so that we can keep…
• Prognostic predictors relevant to end-of-life palliative care in Parkinson's disease and related disorders: a systematic review April 1, 2021 J Neurol Neurosurg Psychiatry. 2021 Mar 31:jnnp-2020-323939. doi: 10.1136/jnnp-2020-323939. Online ahead of print.ABSTRACTParkinson's disease and related disorders (PDRD) are the second most common neurodegenerative disease and a leading cause of death. However, patients with PDRD receive less end-of-life palliative care (hospice) than other illnesses, including other neurologic illnesses. Identification of predictors of PDRD mortality may aid in increasing appropriate and…
• Prognostic predictors relevant to end-of-life palliative care in Parkinson's disease and related disorders: a systematic review April 1, 2021 J Neurol Neurosurg Psychiatry. 2021 Mar 31:jnnp-2020-323939. doi: 10.1136/jnnp-2020-323939. Online ahead of print.ABSTRACTParkinson's disease and related disorders (PDRD) are the second most common neurodegenerative disease and a leading cause of death. However, patients with PDRD receive less end-of-life palliative care (hospice) than other illnesses, including other neurologic illnesses. Identification of predictors of PDRD mortality may aid in increasing appropriate and…
• Prognostic predictors relevant to end-of-life palliative care in Parkinson's disease and related disorders: a systematic review April 1, 2021 J Neurol Neurosurg Psychiatry. 2021 Mar 31:jnnp-2020-323939. doi: 10.1136/jnnp-2020-323939. Online ahead of print.ABSTRACTParkinson's disease and related disorders (PDRD) are the second most common neurodegenerative disease and a leading cause of death. However, patients with PDRD receive less end-of-life palliative care (hospice) than other illnesses, including other neurologic illnesses. Identification of predictors of PDRD mortality may aid in increasing appropriate and…