“Just put one foot in front of the other.” Austin Peck “Coming together is a beginning; keeping together is progress; working together is success.” Henry Ford Introduction to Part 1: From May 28-June 3, >100 people came to Scottsdale, Arizona for the PWR! Retreat. The final tally had >50 people-with-Parkinson’s, more than 30 care partners and ~20 physical therapists/fitness professionals, ... read more
Source: Frank Church – Journey wIth Parkinson’sPublished on 2017-07-23By Frank Church
Related Articles:
- The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
- The road ahead: 2021 January 25, 2021 # # # # At the start of each year, it is a useful practise to layout what is planned over the next 12 months. The events that are scheduled for the year to come, so that we can keep an eye out for them. Obviously, where 2021 will end actually is unpredictable, but an outline of what is scheduled…
- Daily Inspiration (Mantra) from the 2018 PWR! (Parkinson Wellness Recovery) Retreat June 7, 2018 “One of the hardest things in life is having words in your heart that you can’t utter.” James Earl Jones “Good actions are a guard against the blows of adversity.” Abu Bakr Introduction: A new part of the recently completed PWR! (Parkinson Wellness Recovery) retreat for 2018 in Scottsdale, AZ was something termed “Daily Inspiration or Daily Mantra”. At the…
- Daily Inspiration (Mantra) from the 2018 PWR! (Parkinson Wellness Recovery) Retreat June 7, 2018 “One of the hardest things in life is having words in your heart that you can’t utter.” James Earl Jones “Good actions are a guard against the blows of adversity.” Abu Bakr Introduction: A new part of the recently completed PWR! (Parkinson Wellness Recovery) retreat for 2018 in Scottsdale, AZ was something termed “Daily Inspiration or Daily Mantra”. At the…
- Daily Inspiration (Mantra) from the 2018 PWR! (Parkinson Wellness Recovery) Retreat June 7, 2018 “One of the hardest things in life is having words in your heart that you can’t utter.” James Earl Jones “Good actions are a guard against the blows of adversity.” Abu Bakr Introduction: A new part of the recently completed PWR! (Parkinson Wellness Recovery) retreat for 2018 in Scottsdale, AZ was something termed “Daily Inspiration or Daily Mantra”. At the…
- 2019: Year in review December 31, 2019 In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
- I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that. To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
- Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn- She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46. Mariëtte has a dynamic and vibrant blog…
- Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn- She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46. Mariëtte has a dynamic and vibrant blog…
- Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn- She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46. Mariëtte has a dynamic and vibrant blog…
- 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
- Monthly research review: February 2020 February 29, 2020 At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during February 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
- Speech, Voice & Parkinson’s Q&A with John Dean January 28, 2021 We recently hosted a webinar with speech-language pathologist John Dean. You can get access to the recording here. We received so many questions during the session that we weren’t able to answer them all; so, John was kind enough to do some written Q&A for us. “When is a good time to start speech therapy?” It’s much better to maintain…
- My Parkinson's Life Style Eating Plan May 11, 2018 I’ve been on the Keto diet, as well as several other Paleo and plant-based diets in hopes they would help my Parkinson’s symptoms. When my wife and I decided to get serious with our eating life style again, we looked at our options and our focus turned back to doing the Dr. Wahl’s version of the Paleo diet which we…
- Monthly Research Review – September 2019 September 30, 2019 At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during September 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
- You’ve Been Diagnosed with Parkinson’s, Now What? February 20, 2018 Written by Tom Sheppard and Lauren Simmons If you’ve received a diagnosis of Parkinson’s, you may be feeling overwhelmed, devastated, angry, confused or all of the above. We felt the same way when we heard our doctors say, “You have Parkinson’s.” You wake up one day thinking about your grand plans for the future, and the next you realize your…
- Monthly Research Review: Jaunary 2020 January 31, 2020 At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during January 2020. The post is divided into seven parts based on the type of research: Basic biology, Disease mechanism, Clinical research, New clinical trials, Clinical trial news, Other news, and…
- Shining a light on Parkinson’s November 7, 2019 NOTE: The information in today’s post should not be considered an endorsement of PhotoPharmics or the treatment they are proposing. The author of this blog has had no communication with the company. The information in this post is provided because the author has been asked by readers to discuss it. In October 2018, at the annual International Movement Disorders…
- Monthy research review – December 2019 December 30, 2019 At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during December 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
- 2018 Parkinson’s Awareness Month and 65 Quotes to Support Your Life With Parkinson’s April 9, 2018 “Don’t give up. Don’t ever give up.” Jim Valvano “Courage starts with showing up and letting ourselves be seen.” Brené Brown Parkinson’s disease Awareness Month: Parkinson’s awareness month is exactly that. You simply start by making people around you familiar with this disorder. And you can help others learn more about this neurodegenerative disease. Description of Parkinson’s disease: Instead of…
- 2018 Parkinson’s Awareness Month and 65 Quotes to Support Your Life With Parkinson’s April 9, 2018 “Don’t give up. Don’t ever give up.” Jim Valvano “Courage starts with showing up and letting ourselves be seen.” Brené Brown Parkinson’s disease Awareness Month: Parkinson’s awareness month is exactly that. You simply start by making people around you familiar with this disorder. And you can help others learn more about this neurodegenerative disease. Description of Parkinson’s disease: Instead of…
- Monthly Research Review – November 2019 November 30, 2019 At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during November 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…