Planning for the What Ifs: Navigating the Future

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• The road ahead: 2022 January 20, 2022 # # # # The first post at the start of each year on the SoPD website tries to provide an overview of where things are in the search for ‘disease modifying’ therapies for Parkinson’s.  It is an exercise in managing expectations as well as discussing what research events are scheduled for the next year so that we can keep…
• The road ahead: 2021 January 25, 2021 # # # # At the start of each year, it is a useful practise to layout what is planned over the next 12 months. The events that are scheduled for the year to come, so that we can keep an eye out for them. Obviously, where 2021 will end actually is unpredictable, but an outline of what is scheduled…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• Speech, Voice & Parkinson’s Q&A with John Dean January 28, 2021 We recently hosted a webinar with speech-language pathologist John Dean. You can get access to the recording here. We received so many questions during the session that we weren’t able to answer them all; so, John was kind enough to do some written Q&A for us. “When is a good time to start speech therapy?” It’s much better to maintain…
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• I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that.    To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
• Parkinson’s Questions on Tremor, Prognosis, & Progression Answered February 14, 2023 Your Questions Answered on Tremor, Prognosis & More On a recent episode of APDA’s Dr. Gilbert Hosts, Dr. Drew Falconer joined me to answer your questions about Parkinson’s disease (PD). We covered a lot of ground during the broadcast and answered many questions from the audience. It was a very informative conversation, and we encourage you to watch the full broadcast of…
• Six Pillars of Parkinson’s December 11, 2022 “In all human affairs there are efforts, and there are results, and the strength of the effort is the measure of the result.” James Allen “Storms make trees take deeper roots.” Dolly Parton NOTE ADDED IN PROOF: Earlier today, I inadvertently published this post’s unfinished and unproofed version. It was titled “6 Pillars of Parkinson’s.” I apologize for pushing the…
• The Parkinson’s Disease Care Team & the Important Role of Social Workers March 28, 2023 March is National Social Work Month APDA honors social workers and explains the vital role they play. Social workers can play a key role in helping people with Parkinson’s disease (PD) and their care partners navigate every stage of the PD journey. But many people do not know how a social worker can help or how to access one. Rosa…
• Parkinson’s Disease Advice From Those Who Have “Been There” May 31, 2022 Dr. Gilbert Hosts episode features advice on how to live with Parkinson’s On a recent episode of APDA’s Dr. Gilbert Hosts, I was joined by four exceptional people with Parkinson’s disease who shared their personal experiences with PD and answered your questions live. Collectively, they have been living with Parkinson’s for more than 60 years. We covered a lot of…
• Slow-wave sleep saves synucleinopathy? December 12, 2021   # # # # Good sleep patterns have important implications for all of us in terms of health and well being, but sleep is often disrupted for people with Parkinson’s. Research suggests that people with Parkinson’s have reduced amounts of slow wave and REM sleep, and increased periods of wakefulness. A new report has found that increasing levels of…
• The Brilliant 10: The top up-and-coming minds in science October 19, 2022 Popular Science There’s a phrase that rings loudly in the heads of Popular Science editors any time we bring together a new Brilliant 10 class: “They’ve only just begun.” Our annual list of early-career scientists and engineers is as much a celebration of what our honorees have already accomplished as it is a forecast for what they’ll do next. To…
• Sleep Issues and Parkinson’s Disease Q&A September 27, 2022 Dr. Gilbert Answers Questions About Parkinson’s Disease and Sleep Issues A recent episode of APDA’s Dr. Gilbert Hosts featured special guest Dr. Maria Ospina, a movement disorders specialist, who spoke to us about sleep issues and Parkinson’s disease (PD), a very common symptom for people with PD. We covered a lot of ground during the broadcast and answered many questions…
• Monthly Research Review – July 2021 July 31, 2021 # # # # At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during July 2021. The post is divided into 10 parts based on the type of research: Top 5 pieces of Parkinson’s news Articles of general interest Basic biology…
• PD 101: Exercise, Medication, Nutrition & Lifestyle December 4, 2016 Since being diagnosed with PD in 2014, I've had the pleasure to meet individuals who have lived with Parkinson's for 10 to 20 years, and even longer. The common theme for living well with PD is regular exercise and staying active. PD may be a life sentence, but it is far from being a death sentence. Think of exercise as…
• Parkinson’s and Nutrition, Exercise & Physical Therapy: Your questions answered! January 31, 2023 On a recent episode of APDA’s Dr. Gilbert Hosts, Dr. Drew Falconer joined me to tackle your unanswered questions about Parkinson’s disease (PD). We covered a lot of ground during the broadcast and answered many questions from the audience. In this blog, we are answering some of the questions we didn’t have time for, specifically about nutrition, exercise, and physical therapy. We…
• Apathy and Parkinson’s August 18, 2021 “Apathy is the acceptance of the unacceptable.” John Stott “I don’t know, I don’t care, and it doesn’t make any difference.” Jack Kerouac Definition: Apathy (ap·a·thy, /ˈapəTHē/) lack of interest, enthusiasm, or concern. Occurrence of Apathy in Parkinson’s: The presence of apathy in Parkinson’s is between 17% to 70%, the wide range is partly due to the imprecise clinical definition…
• Building Your Parkinson’s Care Team April 7, 2021 Living well with Parkinson’s means living well in all aspects of your life—physical, mental, social, spiritual. One provider can’t possibly treat every part of your life, so, ideally, over time, you will build a holistic, integrated care team and plan that is personalized to YOUR symptoms, needs, and goals.  In the beginning, your primary care physician and neurologist or movement disorder specialist may be the only two people you need on…
• Monthly Research Review – November 2020 November 30, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during November 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Conferences/lectures Other news…
• Answering Your Questions about Parkinson’s disease and Coronavirus Disease 2019 (COVID-19) December 21, 2020 Answering Your Questions about Parkinson’s disease and Coronavirus Disease 2019 (COVID-19) – Updated People with Parkinson’s disease (PD) have been asking a lot of questions about COVID-19 since the pandemic began and APDA has been here with the answers you need. As such, we have updated our blog post again with additional questions that have come in, along with some new information…
• Parkinson’s: You Got To Move January 23, 2023 “Lack of activity destroys the good condition of every human being” Plato “Exercise: you don’t have time not to” George A. Sheehan Introduction: You know what I am getting ready to say? Exercise is medicine. The verdict is out; exercise is especially beneficial for those with Parkinson’s. Some form of exercise is always suitable for older adults, but it is…
• Bringing Parkinson’s awareness to the big screen: John’s story January 25, 2022 How John Became an Unlikely Celebrity When John Capone was first diagnosed with Parkinson’s disease (PD) at the young age of 39, he never imagined acting in a movie with A-list celebrities. The news of his diagnosis was tough to handle at first, and he quickly John Caponebecame overwhelmed by depression and anxiety. But this tough guy was determined to…