Podcast: What’s it like caring for someone with Parkinson’s?

Related Articles:

• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• Monthly Research Review – September 2019 September 30, 2019   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during September 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• The Big 16: What to Say (and What Not to Say) to Someone Who Has Parkinson’s March 13, 2018 What would you say to a friend or family members who just told you they have Parkinson’s? If you’re like most people who are faced with that news, your hope is that you’d have the right reaction, say the right thing and be the exact kind of support they need at that moment. However, as a human being, you’d be…
• I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that.    To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
• Monthly research review: February 2020 February 29, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during February 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• You’ve Been Diagnosed with Parkinson’s, Now What? February 20, 2018 Written by Tom Sheppard and Lauren Simmons If you’ve received a diagnosis of Parkinson’s, you may be feeling overwhelmed, devastated, angry, confused or all of the above. We felt the same way when we heard our doctors say, “You have Parkinson’s.” You wake up one day thinking about your grand plans for the future, and the next you realize your…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…
• My paper at WPC 5 – What the guinea pigs really want June 7, 2019 Here is the text for my recent presentation at the 5th World Parkinson Congress in Japan. WHAT DO THE GUINEA PIGS REALLY WANT? INTRODUCTION My job is to give the patient view of clinical trials. In fact, there is one word that sums up the patient’s view. That word is not treatment. It’s not doctors. It’s not alpha-synuclein. In fact…