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• Speech, Voice & Parkinson’s Q&A with John Dean January 28, 2021 We recently hosted a webinar with speech-language pathologist John Dean. You can get access to the recording here. We received so many questions during the session that we weren’t able to answer them all; so, John was kind enough to do some written Q&A for us. “When is a good time to start speech therapy?” It’s much better to maintain…
• How to Share Your Parkinson’s Diagnosis with Family, Friends, and Co-workers February 5, 2020 You’ve been diagnosed with Parkinson’s. Now what? Do you tell people? If so, how, who, and when? Whether you’ve been recently diagnosed, you’ve known for a while but don’t know how to tell people, or you’ve told people but aren’t satisfied with how it went, we hope this information will be useful. While not all of these situations will apply…
• 'Sunday Morning Futures' on Biden's mental capacity, Jill Biden comparing Latinos to tacos August 1, 2022 This is a rush transcript from "Sunday Morning Futures" July 17, 2022. This copy may not be in its final form and may be updated.MARIA BARTIROMO, FOX NEWS ANCHOR: Good Sunday morning, everyone. Welcome to "Sunday Morning Futures." Thanks so much for joining us. I'm Maria Bartiromo. Today: weakness on the world stage. President Biden coming home from the Middle East…
• I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that.    To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
• Not Why Me?… But Try Me! January 22, 2020 Has the reality of Parkinson’s disease got you feeling down? From the moment you open your eyes in the morning, you can feel the grasp of Parkinson’s pressing down on. Every limb feels heavy and stiff. You struggle to roll over in your bed as you glance at the clock. It seems like time continues marching on without you… as…
• Parkinson’s: You Got To Move January 23, 2023 “Lack of activity destroys the good condition of every human being” Plato “Exercise: you don’t have time not to” George A. Sheehan Introduction: You know what I am getting ready to say? Exercise is medicine. The verdict is out; exercise is especially beneficial for those with Parkinson’s. Some form of exercise is always suitable for older adults, but it is…
• Frank Words on Living With Parkinson’s May 7, 2023 “The smallest deed is better than the greatest intention.” John Burroughs “Words mean nothing. Action is the only thing. Doing. That’s the only thing.” Ernest Gaines Introduction: Some blog posts get written in a single setting, and the flow from start to finish is just effortless. By contrast, some blog posts require extensive reading and background work, then translating the…
• Gone to Maui, Vacation from Parkinson's! February 17, 2020 I went to Maui to stay a week and remained five. I never spent so pleasant a month before, or bade any place goodbye so regretfully. I have not once thought of business, or care or human toil or trouble or sorrow or weariness, and the memory of it will remain with me always. Mark Twain We are on our way home…
• Parkinson’s: Don’t Stop February 11, 2023 “When you can stop you don’t want to, and when you want to stop, you can’t.” Luke Davies “The question isn’t who is going to let me; it’s who is going to stop me.” Ayn Rand Don’t Stop:Attitude determines much in our lives.Looking positively to the future can bolster your goals.Perspective especially matters for someone with Parkinson’s.So staying positive, even…
• Bringing Parkinson’s awareness to the big screen: John’s story January 25, 2022 How John Became an Unlikely Celebrity When John Capone was first diagnosed with Parkinson’s disease (PD) at the young age of 39, he never imagined acting in a movie with A-list celebrities. The news of his diagnosis was tough to handle at first, and he quickly John Caponebecame overwhelmed by depression and anxiety. But this tough guy was determined to…
• Words with Hope December 8, 2021 “There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something better tomorrow.” Orison Swett Marden “Hope is a waking dream.” Aristotle Introduction: Over the years, I have used blog posts about a specific word, feeling, or emotion. A frequent word used a lot here is the word ‘hope’. To some, hope may…
• If the Shoe Fits: How Proper Footwear Is Beneficial in Parkinson’s February 9, 2022 The other day, when I was shopping for sandals, I thought about my sister Bev, who has stage 3 Parkinson’s disease. I pondered how Parkinson’s might affect her footwear options. For example, I thought about how sandals and flip-flops may be trendy, but they typically aren’t good for people with Parkinson’s who experience balance, walking, and gait problems. Bev has…
• A Parkinson’s Diagnosis: You Still Control Your Life March 10, 2020 “Your life is a work of art that you will work on the rest of your life.” Richard Blanco “Today is the first day of the rest of your life, and if you screw that up, you can start again tomorrow.” Ingrid Weir A Not So Typical “Anniversary” Blog Post:Six years ago this week, I received my diagnosis from my…
• Living Better with Parkinson’s November 13, 2022 “Life is a journey, not a destination. Happiness is not “there” but here, not “tomorrow” but today.” Sidney Greenberg “The moment in between what you once were, and who you are now becoming, is where the dance of life really takes place.” Barbara De Angelis Précis: This post reminds the Person (People)-with-Parkinson’s disease (PwP) that you are neither crazy nor…
• Parkinson's Caregiver Tips - Laying the Groundwork Early After Diagnosis November 15, 2018 Has someone you care about recently been diagnosed with Parkinson’s disease? Are you wondering how you - as a spouse, partner, or family member - can step into the caregiver role and what you should expect in the days, months, and years ahead? What kinds of things should you consider, as a caregiver, to make sure you and your loved…
• Parkinson’s Disease Advice From Those Who Have “Been There” May 31, 2022 Dr. Gilbert Hosts episode features advice on how to live with Parkinson’s On a recent episode of APDA’s Dr. Gilbert Hosts, I was joined by four exceptional people with Parkinson’s disease who shared their personal experiences with PD and answered your questions live. Collectively, they have been living with Parkinson’s for more than 60 years. We covered a lot of…
• How to Facilitate a Discussion about Health Disparities and Parkinson’s February 3, 2021 In our first webinar about health disparities and Parkinson’s, moderator David Leventhal reminded us that we see people at events, classes, clinics, support groups, and programs who do not fully represent the diversity of our nation. We noticed this for a long time and wondered why, but we moved on. We now recognize that this absence is not an accident.…
• What You Need to Know about Cycling with Parkinson’s September 15, 2020 So, you want to ride a bike? That’s fabulous! We’re behind you all the way. But we also want to make sure you stay safe and healthy while doing so. So, whether you’re about to take your first or fiftieth ride since your Parkinson’s diagnosis, here’s what you need to know.  #1 – Cycling is good for you  Research shows that people with Parkinson’s experience significant benefits from pushing pedals on…
• Rock Steady Boxing and Parkinson's - Is it enough? September 10, 2018 There are a lot of Parkinson's fitness programs out there, including Rock Steady Boxing, and there are a lot of reasons why I love them.This isn't a post about why you shouldn't be doing a group fitness class.Instead, we'll walk through 3 questions to ask yourself about the group fitness classes you're taking in order to identify where there may…
• Building Your Parkinson’s Care Team April 7, 2021 Living well with Parkinson’s means living well in all aspects of your life—physical, mental, social, spiritual. One provider can’t possibly treat every part of your life, so, ideally, over time, you will build a holistic, integrated care team and plan that is personalized to YOUR symptoms, needs, and goals.  In the beginning, your primary care physician and neurologist or movement disorder specialist may be the only two people you need on…
• Questions to ask your doctor when you are first diagnosed with Parkinson’s disease August 30, 2022 Questions to Ask Your Doctor About Parkinson’s Disease Your doctor just told you that you have Parkinson’s disease (PD). You might feel sad, nervous, or terrified. You might be shocked, or maybe you’re not that surprised because you had a feeling the diagnosis would be PD. No matter what emotions you’re experiencing: there is a very good chance you have…