Speech, Voice & Parkinson’s Q&A with John Dean

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• The road ahead: 2022 January 20, 2022 # # # # The first post at the start of each year on the SoPD website tries to provide an overview of where things are in the search for ‘disease modifying’ therapies for Parkinson’s.  It is an exercise in managing expectations as well as discussing what research events are scheduled for the next year so that we can keep…
• The road ahead: 2021 January 25, 2021 # # # # At the start of each year, it is a useful practise to layout what is planned over the next 12 months. The events that are scheduled for the year to come, so that we can keep an eye out for them. Obviously, where 2021 will end actually is unpredictable, but an outline of what is scheduled…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
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• I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that.    To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
• My Parkinson's Life Style Eating Plan May 11, 2018 I’ve been on the Keto diet, as well as several other Paleo and plant-based diets in hopes they would help my Parkinson’s symptoms. When my wife and I decided to get serious with our eating life style again, we looked at our options and our focus turned back to doing the Dr. Wahl’s version of the Paleo diet which we…
• A Resource Guide of 18 Complementary Therapies for People with Parkinson’s August 7, 2018 Conventional medicine has come a long way when it comes to helping people with Parkinson’s live well. Between the many varieties and combinations of medications and deep brain stimulation (DBS), many people with Parkinson’s have been able to find conventional treatment regimens that work well for them. However, the options to help people with Parkinson’s live well doesn’t stop there.…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
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• The “What would I do” post? Part 2 January 22, 2022 # # # # I am very regularly asked “what would you do if you were diagnosed with Parkinson’s tomorrow?” As a research scientist I don’t really feel comfortable answering it, but I can see how it is a fair question. I have previously attempted to address it (Click here to read that post), and I point folks who do…
• How to Share Your Parkinson’s Diagnosis with Family, Friends, and Co-workers February 5, 2020 You’ve been diagnosed with Parkinson’s. Now what? Do you tell people? If so, how, who, and when? Whether you’ve been recently diagnosed, you’ve known for a while but don’t know how to tell people, or you’ve told people but aren’t satisfied with how it went, we hope this information will be useful. While not all of these situations will apply…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• Building Your Parkinson’s Care Team April 7, 2021 Living well with Parkinson’s means living well in all aspects of your life—physical, mental, social, spiritual. One provider can’t possibly treat every part of your life, so, ideally, over time, you will build a holistic, integrated care team and plan that is personalized to YOUR symptoms, needs, and goals.  In the beginning, your primary care physician and neurologist or movement disorder specialist may be the only two people you need on…
• The 17 Most Commonly Asked Questions about Parkinson’s Nutrition December 19, 2018 One of the topics our community members consistently ask us about is nutrition. It’s not an easy topic to address, though, because it has so many layers and there’s no one size fits all nutritional plan. Still, leaving it at that is not enough. So, we opened up our inbox and pulled together the 17 most common questions we’ve received…
• Fan Fiction: The Joke Machine February 19, 2021 Parking Suns reader David Schneider contributed this amusing-but-still-kinda-scary short story about a man dealing with Parkinson’s on a typical day. Thank you, David! The Joke Machine – – David Schneider Once a friend had come for a weekend visit and ended up staying for two years. The “guest” paid half the rent and slept with a single blanket on the…
• Monthy research review – December 2019 December 30, 2019   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during December 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• Monthly Research Review – July 2021 July 31, 2021 # # # # At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during July 2021. The post is divided into 10 parts based on the type of research: Top 5 pieces of Parkinson’s news Articles of general interest Basic biology…
• Let’s talk about talking with Parkinson’s disease August 13, 2019 Let’s talk about talking with Parkinson’s disease Communication issues (such as soft voice, imprecise speech, lack of inflection, and others) can become a problem for people living with Parkinson’s disease (PD). Recently APDA published a new booklet entitled Make Your Voice Heard! Healthy Communication and Parkinson’s Disease which can be downloaded from our website for free or ordered by mail…
• The Big 16: What to Say (and What Not to Say) to Someone Who Has Parkinson’s March 13, 2018 What would you say to a friend or family members who just told you they have Parkinson’s? If you’re like most people who are faced with that news, your hope is that you’d have the right reaction, say the right thing and be the exact kind of support they need at that moment. However, as a human being, you’d be…