Stay home. Stay safe. But don’t stay weak – tnonline.com

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• The road ahead: 2021 January 25, 2021 # # # # At the start of each year, it is a useful practise to layout what is planned over the next 12 months. The events that are scheduled for the year to come, so that we can keep an eye out for them. Obviously, where 2021 will end actually is unpredictable, but an outline of what is scheduled…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• Is it time for Parkinson’s home healthcare? March 18, 2020 Written in collaboration with Bud Rockhill who was a long-time Parkinson’s care partner to his mother At some point, your Parkinson’s may progress to the point that you need additional help at home. The timing and type of help depend on your medical condition, family situation, and financial resources. Still, it’s worth understanding the types of assistance that are available…
• Is it time for Parkinson’s home healthcare? March 18, 2020 Written in collaboration with Bud Rockhill who was a long-time Parkinson’s care partner to his mother At some point, your Parkinson’s may progress to the point that you need additional help at home. The timing and type of help depend on your medical condition, family situation, and financial resources. Still, it’s worth understanding the types of assistance that are available…
• Monthly Research Review – November 2020 November 30, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during November 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Conferences/lectures Other news…
• Am I being unreasonable? November 16, 2018 Friday 16 November 2018If you’re feeling a bit down and need a quick pick-me-up, you could do worse than browse the discussion threads on mumsnet for a while.I’m not talking about the posts on pregnancy or breast feeding or dealing with toddlers. I’m talking about the “other” section. The most popular category on mumsnet is AIBU, for Am I Being…
• 5 Accessible Home Features that Are Beautiful and Barrier-Free October 8, 2020 I had the pleasure of connecting with Patrick Young who said, “I use a wheelchair so I wanted to find a wheelchair-accessible home. Finding accessible homes or homes that could be easily and inexpensively remodeled to be accessible was challenging.” I think this is an overlooked topic, so Patrick is this week’s guest blogger. Enjoy! Living in an accessible home…
• Must-Have Kitchen Gadgets for People with Parkinson’s December 16, 2019 Navigating the kitchen just got a whole lot easier, thanks to these tips, tricks and tools that will make it easier to prepare, cook and eat your favorite meals. Cooking is a part of our everyday lives, whether we do it out of necessity or as a way to relax or be creative with new ingredients. But for those living…
• How to stay active at home April 10, 2020 Here are seven ways to stay active at home while social distancing during the coronavirus outbreak. Right now, people all over the world are “social distancing” in order to slow the spread of COVID-19. In this time of intentional isolation, we are being asked as good citizens to avoid direct contact with others, remain 6 feet apart and limit our…
• 64 Quotes on Persistence to Help Your Journey With Parkinson’s Disease January 7, 2018 “Kites rise highest against the wind – not with it!” Winston Churchill “Energy and persistence conquer all things.” Benjamin Franklin Introduction: On January 1, LinkedIn announced that I had a work anniversary of 32 years at The University North Carolina at Chapel Hill ( if you include my postdoc at UNC-CH, this is a grand total of 36 years). My…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• Answering Your Questions about Parkinson’s disease and Coronavirus Disease 2019 (COVID-19) December 21, 2020 Answering Your Questions about Parkinson’s disease and Coronavirus Disease 2019 (COVID-19) – Updated People with Parkinson’s disease (PD) have been asking a lot of questions about COVID-19 since the pandemic began and APDA has been here with the answers you need. As such, we have updated our blog post again with additional questions that have come in, along with some new information…
• Keeping the Romance Alive With Stay-at-Home Date Nights February 4, 2021 This New Year’s Eve was, well, different. Our tuxedo, gown, and sparkly shoes were replaced by shorts, T-shirts, comfy pajamas, and slippers. My husband, Mike, and I didn’t have a plan, but ultimately, we spent New Year’s Eve creating our own date night. We cooked dinner, made a fire, played gin rummy, and recorded a silly dance video. I began…
• Ask the expert: How to spot fake Parkinson’s medicines online February 27, 2020 In the third in our expert series, we talk to Mike Isles, Executive Director of the Alliance for Safe Online Pharmacy in the EU, about the growing problem of fake Parkinson’s medicines advertised and sold online – from their shocking prevalence to top tips on how to stay safe Firstly, could you explain to our readers what falsified medicines are?…
• We Are Shut In, Not Shut Out March 24, 2020 My chronic disease has forced me to stay home for a week after an exhausting recent trip to St. Louis. When my symptoms force me to curtail engagement outside the home, I become a “shut-in.” Many are entering voluntary home confinement due to COVID-19. People also are experiencing mandatory lockdowns by decree in several states. Confinement is probably a new…
• The drug development pipeline for Parkinson’s December 2, 2020 # # # # For a long time a regular request from SoPD readers has been to provide an overview of the clinical trial landscape for Parkinson’s, particularly in the area of drug development. Such projects are difficult, however, as the landscape is broad and dynamic – lots of different approaches being applied and new entrants continually entering the arena.…
• A Resource Guide of 18 Complementary Therapies for People with Parkinson’s August 7, 2018 Conventional medicine has come a long way when it comes to helping people with Parkinson’s live well. Between the many varieties and combinations of medications and deep brain stimulation (DBS), many people with Parkinson’s have been able to find conventional treatment regimens that work well for them. However, the options to help people with Parkinson’s live well doesn’t stop there.…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that.    To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
• Celebrating the holidays: tips from the global Parkinson’s community December 22, 2020 Our readers from around the world share how their holiday celebrations have changed in the face of Covid-19 – and offer practical tips for people living with Parkinson’s disease to take care of their wellbeing this winter 1. Dr Soania Mathur, Canada Normally the holiday season is a time for celebrating our close-knit clan surrounded by those that matter most.…