Talking wellness: CCH to hold Parkinson’s Disease symposium

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• The road ahead: 2022 January 20, 2022 # # # # The first post at the start of each year on the SoPD website tries to provide an overview of where things are in the search for ‘disease modifying’ therapies for Parkinson’s.  It is an exercise in managing expectations as well as discussing what research events are scheduled for the next year so that we can keep…
• The road ahead: 2021 January 25, 2021 # # # # At the start of each year, it is a useful practise to layout what is planned over the next 12 months. The events that are scheduled for the year to come, so that we can keep an eye out for them. Obviously, where 2021 will end actually is unpredictable, but an outline of what is scheduled…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• The What, Why, and How of Community Action Committees (CACs) January 20, 2021 In our post announcing our Healthy Parkinson’s Communities initiative, we outlined our three goals:  Ensure Parkinson’s community leaders have the knowledge and resources they need to make a positive and sustainable change in their community  Encourage and support data-informed initiatives designed to increase access to and engagement with resources that improve the quality of life for people with Parkinson’s Work with communities to raise awareness…
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• Wellness Checklist for Life in the Presence of Parkinson’s December 27, 2020 “Today is the first day of the rest of your life.” Abbie Hoffman “Your life is a work of art that you will work on the rest of your life.” Richard Blanco Introduction: The year is closing in on us, one for the record books; a year like no other, it would seem. The Pandemic of 2020 has been real,…
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• Speech, Voice & Parkinson’s Q&A with John Dean January 28, 2021 We recently hosted a webinar with speech-language pathologist John Dean. You can get access to the recording here. We received so many questions during the session that we weren’t able to answer them all; so, John was kind enough to do some written Q&A for us. “When is a good time to start speech therapy?” It’s much better to maintain…
• APDA’s Grassroots Network: APDA Chapters April 13, 2021 Get to know the American Parkinson Disease Association Chapters American Parkinson Disease Association (APDA) is the largest grassroots network serving the Parkinson’s disease (PD) community. This network is comprised of APDA Chapters and APDA Information & Referral (I&R) Centers across the country, through which we provide critical resources, programs and services to people living with PD and their families. Our…
• Meet the Leaders of The Victory Summit® Virtual Event: How to Live Well with Parkinson’s March 13, 2021 Over the past 15 years, our greatest joy has been getting to know people living with Parkinson’s. They are our greatest teachers, sources of inspiration, and the people we reach out to when we want to hear the real deal. That’s why we’re handing over our next The Victory Summit® Virtual Event to them. Join these speakers and the Foundation on April 2 as we celebrate Parkinson’s Awareness…
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• Tikvah for Parkinson Breaks Barriers in Jerusalem March 17, 2021 When Debbie Shapiro was diagnosed with Parkinson’s, her doctor’s advice was to take her medications, take it easy, and come back for another appointment in six months. Her response: “No way.”    Instead, she read everything she could about Parkinson’s and what steps she could take to feel her best. She learned, first through literature and then through real-life experience, that…
• Voces Unidas Unites, Amplifies, and Showcases the Voices of a Parkinson’s Community in Phoenix January 20, 2021 Lea esta relato en español aquí. “Music is such a bright aspect of culture. It’s a way to communicate. To celebrate. To express your culture. It’s part of who we are.”    With this sentiment in mind, Dr. Claudia Martinez, MD, set out in 2007 to build a program that would not only help Hispanics living with Parkinson’s communicate and…
• What to know about hospital stays and Parkinson’s March 16, 2021 When you’re living with Parkinson’s, hospital stays—planned or unplanned—require special consideration. Here, we’ll share how to prepare for a hospital stay, where to find helpful worksheets, checklists, and kits to take with you, and additional information that can keep you feeling your best during and after your stay.    Prepare Yourself for Changing Symptoms   Your motor symptoms can worsen when you…
• Journey With Parkinson’s: (Part 2) A Different Side of Life November 2, 2020 “Yesterday is but today’s memory, and tomorrow is today’s dream.” Khalil Gibran “Time is free, but it’s priceless. You can’t own it, but you can use it. You can’t keep it, but you can spend it. Once you’ve lost it you can never get it back.” Harvey Mackay Introduction: I am a scientist, trained as a protein chemist with expertise…
• Journey With Parkinson’s: (Part 2) A Different Side of Life November 2, 2020 “Yesterday is but today’s memory, and tomorrow is today’s dream.” Khalil Gibran “Time is free, but it’s priceless. You can’t own it, but you can use it. You can’t keep it, but you can spend it. Once you’ve lost it you can never get it back.” Harvey Mackay Introduction: I am a scientist, trained as a protein chemist with expertise…
• I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that.    To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
• Giving Back & Living Well with Parkinson’s April 2, 2020 “The best way to find yourself is to lose yourself in the service of others.” – Gandhi When we ask people in our community what they do to live well, the vast majority say that giving back is at the top of their list. Whether they give back by leading support groups, participating in clinical trials, educating themselves so they…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…
• Moments of Victory® – Parkinson Pete Embraces the Lessons of Parkinson’s August 24, 2020 Each month, we spotlight someone in our community who has an inspiring story to tell. Today, we are happy to feature Pete Beidler from Seattle, WA. What has your journey been like since your Parkinson’s diagnosis? In 2006, when I was sixty-six, I signed the papers signaling my intention to retire after forty years of teaching English at Lehigh University…