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• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• Karl Robb Found a New Purpose Through Parkinson’s January 15, 2018 Written by Karl Robb for the Davis Phinney Foundation Dream Big series – Photo by Erick Gibson What does “dreaming big” mean to you? Dreams come and go as we age and mature. Some of our dreams are merely passing whims, while others we never forget. When I was seventeen and on the tennis team, I dreamed about playing tennis competitively…
• The Gifts of Parkinson’s September 14, 2018 Written by Karl Robb  I didn’t choose to get Parkinson’s in my teens. Nor did I expect to spend so much of my life trying to counteract many of the symptoms which accompany it. Now, in my early fifties, I realize more than ever that there are lessons from this illness that can easily be missed. If we allow emotions,…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• A Resource Guide of 18 Complementary Therapies for People with Parkinson’s August 7, 2018 Conventional medicine has come a long way when it comes to helping people with Parkinson’s live well. Between the many varieties and combinations of medications and deep brain stimulation (DBS), many people with Parkinson’s have been able to find conventional treatment regimens that work well for them. However, the options to help people with Parkinson’s live well doesn’t stop there.…
• How to Build Resiliency & Live Well with Parkinson’s July 16, 2018 I can be changed by what happens to me. But I refuse to be reduced by it. – Maya Angelou One of the most profound gifts that comes from working at the Davis Phinney Foundation is a chance to interact with the remarkable members of our Parkinson’s community. Despite the often frustrating diagnosis processes, physical setbacks and significant emotional ups…
• Care Partner Support: Learning to Find What You Need September 24, 2017 Written by Angela Robb Settling into Life with Parkinson’s My relationship with Parkinson’s began with a mouse click. I met my husband, Karl, in an America Online chat room 21 years ago. Our first discussions were mostly comprised of getting to know one another and playing 20 questions. Our conversations were easy, and his dry sense of humor came shining…
• Welcome to “Dream Big” Week January 15, 2018 In honor of Martin Luther King Jr. Day, we at the Davis Phinney Foundation wanted to take this opportunity to honor the values of dreaming big, courage, truth, compassion, dignity and service that were the hallmarks of his life. We asked some of our most influential friends of the Foundation to share their ideas on what it means to dream…
• World Parkinson Congress - Day One October 28, 2016 Our first full day of the World Parkinson Congress started late because we both overslept. I guess all the travel caught up with us. Our hotel, the Quality Inn, had a free breakfast buffet included, and we managed to get there right before they closed. As we were eating, a lady with a WPC badge (I think the entire hotel…
• Life-Journey with Parkinson’s Blog (2016-2017): Recap of Quotes, Service, and Research April 21, 2017 “Give your life a destination.” Debasish Mridha “We’re all a beautiful, wonderful work in progress….Embrace the process!” Nanette Mathews Précis: This post is a review of my public journey and life-steps with Parkinson’s in the 2nd year of the blog: i) rationale for the blog; ii) quotes/highlights from selected posts between March 2016-March 2017; iii) overview of service activities/events; iv)…
• Staying Positive With Parkinson’s November 15, 2019 “Every day may not be good, but there is something good in every day.” Alice Morse Earle “When there is no turning back, we should concern ourselves only with the best way of going forward.” Paulo Coelho *Introduction: A few readers have recently asked (i) if I go back and re-read previously posted blogs? And (ii) have I considered updating and…
• Staying Positive With Parkinson’s November 15, 2019 “Every day may not be good, but there is something good in every day.” Alice Morse Earle “When there is no turning back, we should concern ourselves only with the best way of going forward.” Paulo Coelho *Introduction: A few readers have recently asked (i) if I go back and re-read previously posted blogs? And (ii) have I considered updating and…
• The drug development pipeline for Parkinson’s December 2, 2020 # # # # For a long time a regular request from SoPD readers has been to provide an overview of the clinical trial landscape for Parkinson’s, particularly in the area of drug development. Such projects are difficult, however, as the landscape is broad and dynamic – lots of different approaches being applied and new entrants continually entering the arena.…
• Monthy research review – December 2019 December 30, 2019   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during December 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• The 17 Most Commonly Asked Questions about Parkinson’s Nutrition December 19, 2018 One of the topics our community members consistently ask us about is nutrition. It’s not an easy topic to address, though, because it has so many layers and there’s no one size fits all nutritional plan. Still, leaving it at that is not enough. So, we opened up our inbox and pulled together the 17 most common questions we’ve received…
• Podcast: How do women experience Parkinson’s differently from men? November 21, 2019 In the fifth episode of our Parkinson’s Life podcast, we bring together three Parkinson’s campaigners to discuss the different challenges facing women with the condition. From waiting for years to be diagnosed to the prevailing image of people with Parkinson’s as “old, grey, dusty men”, their heartfelt conversation sheds light on how a gender gap in knowledge and research affects…
• You’ve Been Diagnosed with Parkinson’s, Now What? February 20, 2018 Written by Tom Sheppard and Lauren Simmons If you’ve received a diagnosis of Parkinson’s, you may be feeling overwhelmed, devastated, angry, confused or all of the above. We felt the same way when we heard our doctors say, “You have Parkinson’s.” You wake up one day thinking about your grand plans for the future, and the next you realize your…
• Tips for dealing with a Parkinson’s diagnosis January 31, 2019 We asked Parkinson’s campaigners from across the globe to share their best tips for dealing with a diagnosis When we reached out to Parkinson’s bloggers and campaigners around the world for their advice on dealing with a Parkinson’s diagnosis, they were only too happy to share their insights. From telling friends and family to adjusting the way you live, here are…
• The Wim Hof method February 6, 2020   A regular theme of the SoPD website is the reviewing of novel phamarcological treatments that are being tested on models of Parkinson’s. And while the breadth of the research is exciting and encouraging, the average reader may feel distant to the results of those studies as the experimental drug being tested is still a long way from possible regulatory…
• Season’s Greetings from Karl Robb at asoftvoice.com December 22, 2019 Wishing all ASoftVoice.com readers a very Happy Holiday Season!   From Karl Robb:  
• “The beginning of a wonderful collaboration between countries, organisations and people” October 18, 2018 Young onset Parkinson’s campaigners and politicians and policymakers from across Europe came together last week for ‘This is Parkinson’s: a focus on young onset’ – a series of events held over two days by the European Parkinson’s Disease Association at the European Parliament Young onset Parkinson’s campaigners and bloggers from across Europe were at the European Parliament last week for…