The Lockdown Showed How the Economy Exploits Women. She Already Knew. – The New York Times

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• Follow my blog with Bloglovin A Final Update on Women and PD TALK November 28, 2019 If you have been following Twitchy Woman for the last few years, you have seen numerous updates on “Women and PD TALK”, the project that I co-chaired for the Parkinson’s Foundation that looked at the unmet needs of women with PD. Last Friday, the Patient-Centered Outcomes Research Institute (PCORI), which gave a grant to the Parkinsons Foundation for the study,…
• Webinar Recording: Women and Parkinson’s with Dr. Michelle Fullard August 19, 2019 Men and women experience Parkinson’s at different rates and in many different ways, including symptom presentation, sleep problems, cognitive impact, responses to surgery, medication side effects, emotional health, the care partner experience and more.  We recently hosted a webinar about women and Parkinson’s with Dr. Michelle Fullard. In this webinar, we discussed reasons why rates of diagnosis and symptom presentation are different,…
• ‘Women and PD’ Project by Parkinson’s Foundation Urges Changes in Research and Care August 27, 2019 Leading the first national effort to address long-standing gender disparities in Parkinson’s (PD) research and care, the Parkinson’s Foundation has developed patient-centered recommendations to promote the needs women in the U.S. living with the disease. Drawn from the foundation’s two-year Women and PD Teams to Advance Learning and Knowledge (Women and PD Talk) project, the recommendations identify research and healthcare…
• Parkinson’s Foundation Promotes Better Research and Care Initiative for Women April 24, 2019 An initiative led by the Parkinson’s Foundation has culminated with a report that aims to make sure women in the U.S. receive the same attention as men in studies and treatments for the physical and mental effects of Parkinson’s disease (PD). The landmark 56-page report — “Women and Parkinson’s: Closing the Gender Gap in Research and Care, A patient-centered agenda for change”— came…
• Center of Excellence Series: University of Pennsylvania Movement Disorder Center Is a Leader in Women’s Parkinson’s Research May 16, 2018 In addition to being a movement disorder specialist at the University of Pennsylvania Movement Disorder Center, a Parkinson’s Foundation Center of Excellence, Allison Willis, MD, is also one of the few researchers to conduct much-needed Parkinson’s disease (PD) research on one of the most vulnerable populations within the Parkinson’s community: women. Vulnerable: underserved populations that are not accessing or cannot…
• “We still have some way to go” March 5, 2020 To mark International Women’s Day, we share the highlights of our Women and Parkinson’s campaign – from accounts of how pregnancy and menopause can affect Parkinson’s symptoms, to a look at the ‘data gap’ in research into gender differences 1. “My medication only works three weeks out of four” UK campaigner and blogger Omotola Thomas, who was diagnosed at the…
• 5 Reasons to Join (or start) a Women’s Only Parkinson’s Support Group May 15, 2018 More men than women are diagnosed with Parkinson’s by a ratio of nearly 2:1. Several studies have looked into why this is the case and some evidence suggests that estrogen exposure in women could be one of the primary reasons. But the rate of diagnosis is not the only difference. Women and men diagnosed with Parkinson’s experience differences when it…
• “Helping women with Parkinson’s know they are not alone” February 18, 2021 ‘Con P de Párkinson’ – a blog created by campaigners in Spain – has been illuminating the stories of women living with Parkinson’s disease. Its co-founder, Francisca Ruiz González, shares her experience of diagnosis and her mission to make other young women with the condition visible to the world I was diagnosed with Parkinson’s disease in 2012, at the age…
• Women and Parkinson’s: “We are not just variants of men” October 31, 2019 It is estimated that three million women worldwide are living with Parkinson’s, yet their specific needs and experiences are often ignored. In a new series, launched today, we will be exploring the specific ways the condition affects women – from delayed diagnoses and higher rates of levodopa-related dyskinesia to poorer care and higher rates of depression – and pressing for…
• Women and Parkinson’s: “Recognising gender difference is essential for Parkinson’s research” December 5, 2019 In the sixth in our Women and Parkinson’s series, Italian neurologist Marina Picillo shares her findings from studies focussing on gender differences in Parkinson’s, highlights the role cultural bias plays in the results – and reflects on how research into such differences is a relatively “new phenomenon” I started working in Parkinson’s research when I was in medical school, and…
• Women and Parkinson’s: Closing the Gender Gap in Research and Care March 23, 2019 When I first experienced PD symptoms, they were explained away as the stress of a working mom. I was prescribed medication for anxiety and the eventual diagnosis of Parkinson’s was not made for another two years. – Carol Clupny, MS, Women and Parkinson’s Advocate Five years ago, a question was posed to the Parkinson’s Disease Foundation (now the Parkinson’s Foundation)…
• Parkinson’s Foundation Identifies First Woman-Focused Parkinson’s Research Agenda March 22, 2019 1.Women and PD Research NeedsWomen experience Parkinson’s disease (PD) differently than men. They experience unique symptoms, medical side effects, challenges with access to healthcare and a lack of social support. Research often does not include or account for women with Parkinson’s, which is why the Parkinson’s Foundation Women and PD initiative is addressing the issue. “Historically, Parkinson’s care has been…
• For Women with Parkinson’s: Hormones and PD Meds November 3, 2020 On Sunday, November 1, Twitchy Women hosted a panel discussion on how changing hormones can interfere with Parkinson’s medications for Women with PD. We began with an overview of the few studies that have been done on this topic. Unfortunately there has not been very much research on this. Estrogen may provide some level of neuro-protection First, there have been…
• “Life isn’t easy”: how coronavirus is affecting women with Parkinson’s May 21, 2020 From home-schooling children to dealing with loneliness, four women with Parkinson’s share how the coronavirus pandemic is impacting their everyday lives  We asked four women living with Parkinson’s to share their experience of Covid-19 so far. From feeling the pressure to ‘do it all’ by juggling work and caring for children, to fearing for their health and keeping up with…
• “Life isn’t easy”: how coronavirus is affecting women with Parkinson’s May 21, 2020 From home-schooling children to dealing with loneliness, four women with Parkinson’s share how the coronavirus pandemic is impacting their everyday lives  We asked four women living with Parkinson’s to share their experience of Covid-19 so far. From feeling the pressure to ‘do it all’ by juggling work and caring for children, to fearing for their health and keeping up with…
• “Life isn’t easy”: how coronavirus is affecting women with Parkinson’s May 21, 2020 From home-schooling children to dealing with loneliness, four women with Parkinson’s share how the coronavirus pandemic is impacting their everyday lives  We asked four women living with Parkinson’s to share their experience of Covid-19 so far. From feeling the pressure to ‘do it all’ by juggling work and caring for children, to fearing for their health and keeping up with…
• “Life isn’t easy”: how coronavirus is affecting women with Parkinson’s May 21, 2020 From home-schooling children to dealing with loneliness, four women with Parkinson’s share how the coronavirus pandemic is impacting their everyday lives  We asked four women living with Parkinson’s to share their experience of Covid-19 so far. From feeling the pressure to ‘do it all’ by juggling work and caring for children, to fearing for their health and keeping up with…
• “Life isn’t easy”: how coronavirus is affecting women with Parkinson’s May 21, 2020 From home-schooling children to dealing with loneliness, four women with Parkinson’s share how the coronavirus pandemic is impacting their everyday lives  We asked four women living with Parkinson’s to share their experience of Covid-19 so far. From feeling the pressure to ‘do it all’ by juggling work and caring for children, to fearing for their health and keeping up with…
• No Link Between Drinking Alcohol and Increased Parkinson’s Risk in Women, Large UK Study Finds December 3, 2019 Drinking alcohol does not increase the risk of developing Parkinson’s disease in women in the United Kingdom, nor are there increased risks linked to the consumption of different types of alcohol, a large study has concluded.  The study, “Alcohol intake and Parkinson’s disease risk in the million women study,” was published in the journal Movement Disorders. Several studies have investigated…
• [Video] YOPD Women’s Council: Diagnosis and Symptoms February 8, 2021 Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough. Being a woman with a Parkinson’s diagnosis adds an additional layer of complexities and challenges. In this panel discussion, the first of our new YOPD Women series, our YOPD Women’s Council and special guest Kathleen Reardon discussed: The road to their Parkinson’s diagnosis The differences between men and women when…
• Changes in Motor, Cognitive, and Behavioral Symptoms in Parkinson's Disease and Mild Cognitive Impairment During the COVID-19 Lockdown. January 1, 2021 Related ArticlesChanges in Motor, Cognitive, and Behavioral Symptoms in Parkinson's Disease and Mild Cognitive Impairment During the COVID-19 Lockdown. Front Psychiatry. 2020;11:590134 Authors: Baschi R, Luca A, Nicoletti A, Caccamo M, Cicero CE, D'Agate C, Di Giorgi L, La Bianca G, Lo Castro T, Zappia M, Monastero R Abstract Objective: The effects of the COVID-19 lockdown on subjects with prodromal…
• How and Why Does Parkinson’s Disease Effect Women and Men Differently? September 25, 2019 PD is a slowly progressive disorder that affects movement, muscle control, and balance. It is the second most common age-related, neurodegenerative disorder, affecting about 3% of the population by the age of 65 and up to 5% of individuals over 85 years of age. The risk of developing PD is twice as high in men than women, but women experience…