The Parkinson’s Doctor Will “See” You Now

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• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• Medicare Coverage and Parkinson’s February 7, 2019 Written by Danielle Kunkle Roberts, Forbes Finance Council member and co-owner of Boomer Benefits No one plans to spend their retirement battling a chronic illness, yet people on Medicare are diagnosed with such illnesses all the time. Dealing with a progressive chronic condition like Parkinson’s can be particularly devastating and also expensive. Parkinson’s affects more than one million people in…
• How Does Medicare Cover Parkinson's Disease? February 20, 2019 Guest post by Danielle K. Roberts of Boomer BenefitsAs far as chronic illnesses go, Parkinson’s Disease can be an expensive health condition to manage.  Parkinson’s News Today reported that yearly drug expenses for a person with PD can exceed $2,500 and costs of surgery may exceed $100K. The combined direct and indirect costs in the U.S. is estimated to be…
• How Does Medicare Cover Parkinson's Disease? February 20, 2019 Guest post by Danielle K. Roberts of Boomer BenefitsAs far as chronic illnesses go, Parkinson’s Disease can be an expensive health condition to manage.  Parkinson’s News Today reported that yearly drug expenses for a person with PD can exceed $2,500 and costs of surgery may exceed $100K. The combined direct and indirect costs in the U.S. is estimated to be…
• How Does Medicare Cover Parkinson's Disease? February 20, 2019 Guest post by Danielle K. Roberts of Boomer BenefitsAs far as chronic illnesses go, Parkinson’s Disease can be an expensive health condition to manage.  Parkinson’s News Today reported that yearly drug expenses for a person with PD can exceed $2,500 and costs of surgery may exceed $100K. The combined direct and indirect costs in the U.S. is estimated to be…
• How Does Medicare Cover Parkinson's Disease? February 20, 2019 Guest post by Danielle K. Roberts of Boomer BenefitsAs far as chronic illnesses go, Parkinson’s Disease can be an expensive health condition to manage.  Parkinson’s News Today reported that yearly drug expenses for a person with PD can exceed $2,500 and costs of surgery may exceed $100K. The combined direct and indirect costs in the U.S. is estimated to be…
• How Does Medicare Cover Parkinson's Disease? February 20, 2019 Guest post by Danielle K. Roberts of Boomer BenefitsAs far as chronic illnesses go, Parkinson’s Disease can be an expensive health condition to manage.  Parkinson’s News Today reported that yearly drug expenses for a person with PD can exceed $2,500 and costs of surgery may exceed $100K. The combined direct and indirect costs in the U.S. is estimated to be…
• How Telemedicine Can Help You Live Well with Parkinson’s November 28, 2020 Telemedicine is the practice of healthcare in an online format. As video conferencing technology has developed and become more reliable and secure (including being HIPAA-compliant), many physicians and specialists have begun offering their services through video calls in addition to or instead of in-person appointments. Although telemedicine has traditionally been beneficial for people who live in rural areas or for…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• Monthly Research Review – November 2020 November 30, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during November 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Conferences/lectures Other news…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• Monthly research review: February 2020 February 29, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during February 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• Monthly Research Review – December 2020 December 31, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during December 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Conferences/lectures Other news…
• You’ve Been Diagnosed with Parkinson’s, Now What? February 20, 2018 Written by Tom Sheppard and Lauren Simmons If you’ve received a diagnosis of Parkinson’s, you may be feeling overwhelmed, devastated, angry, confused or all of the above. We felt the same way when we heard our doctors say, “You have Parkinson’s.” You wake up one day thinking about your grand plans for the future, and the next you realize your…
• I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that.    To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
• Answering Your Questions about Parkinson’s disease and Coronavirus Disease 2019 (COVID-19) December 21, 2020 Answering Your Questions about Parkinson’s disease and Coronavirus Disease 2019 (COVID-19) – Updated People with Parkinson’s disease (PD) have been asking a lot of questions about COVID-19 since the pandemic began and APDA has been here with the answers you need. As such, we have updated our blog post again with additional questions that have come in, along with some new information…
• Update on COVID-19 and Parkinson’s disease October 27, 2020 Latest Research on COVID-19 & Parkinson’s disease UPDATE: This post (originally published in June) has been updated with the latest information available. We will continue to keep this post up-to-date as new information develops. As citizens of the world, we all continue to grapple with the COVID-19 pandemic. And as members of the Parkinson’s disease (PD) community, we continue to have…
• Update on COVID-19 and Parkinson’s disease October 27, 2020 Latest Research on COVID-19 & Parkinson’s disease UPDATE: This post (originally published in June) has been updated with the latest information available. We will continue to keep this post up-to-date as new information develops. As citizens of the world, we all continue to grapple with the COVID-19 pandemic. And as members of the Parkinson’s disease (PD) community, we continue to have…
• Life with Parkinson’s in the Time of COVID-19: April is Parkinson’s Awareness Month April 1, 2020 “The measure of who we are is what we do with what we have.” Vince Lombardi “When you have exhausted all possibilities, remember this: you haven’t.” Thomas Edison Précis: A different world exists today than it did just a few weeks ago, all driven by the COVID-19 pandemic. The virus seemingly favors the elderly who have a pre-existing disease(s); however,…
• Life with Parkinson’s in the Time of COVID-19: April is Parkinson’s Awareness Month April 1, 2020 “The measure of who we are is what we do with what we have.” Vince Lombardi “When you have exhausted all possibilities, remember this: you haven’t.” Thomas Edison Précis: A different world exists today than it did just a few weeks ago, all driven by the COVID-19 pandemic. The virus seemingly favors the elderly who have a pre-existing disease(s); however,…
• Monthly Research Review: Jaunary 2020 January 31, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during January 2020. The post is divided into seven parts based on the type of research: Basic biology, Disease mechanism, Clinical research, New clinical trials, Clinical trial news, Other news, and…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…