Times letters: End of life care and poll on assisted suicide – The Times

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• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• Risk of Suicide Among Patients With Parkinson Disease. December 17, 2020 Related ArticlesRisk of Suicide Among Patients With Parkinson Disease. JAMA Psychiatry. 2020 Dec 16;: Authors: Chen YY, Yu S, Hu YH, Li CY, Artaud F, Carcaillon-Bentata L, Elbaz A, Lee PC Abstract Importance: Parkinson disease (PD) is an increasingly common neurodegenerative disorder in many aging societies. Although comorbidities with mental disorders are common in PD, whether PD is associated with…
• Suicide in Parkinson's disease: A systematic review. July 5, 2019 Related ArticlesSuicide in Parkinson's disease: A systematic review. CNS Neurol Disord Drug Targets. 2019 Jul 02;: Authors: Berardelli I, Belvisi D, Nardella A, Falcone G, Lamis DA, Fabbrini G, Berardelli A, Girardi P, Pompili M Abstract BACKGROUND: Psychiatric disorders and suicide have been reported in patients suffering from Parkinson's disease. The aims of the present paper were to determine whether…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• Suicide and suicide attempts after subthalamic nucleus stimulation in Parkinson disease. May 19, 2019 Related ArticlesSuicide and suicide attempts after subthalamic nucleus stimulation in Parkinson disease. Neurology. 2019 May 17;: Authors: Giannini G, Francois M, Lhommée E, Polosan M, Schmitt E, Fraix V, Castrioto A, Ardouin C, Bichon A, Pollak P, Benabid AL, Seigneuret E, Chabardes S, Wack M, Krack P, Moro E Abstract OBJECTIVE: To determine the postoperative attempted and completed suicide rates…
• Differentiating PD from MSA February 20, 2020   There is a lot of clinical and biological similarities between the neurodegenerative conditions of Parkinson’s and multiple systems atrophy (or MSA). Recently, however, researchers have published a report suggesting that these two conditions may be differentiated from each other using a technique analysing protein in the cerebrospinal fluid – the liquid surrounding the brain, that can be accessed via…
• Suicidal Behavior Seen After Deep Brain Stimulation for Parkinson Disease July 11, 2019 In patients with Parkinson disease (PD) who receive subthalamic nucleus deep brain stimulation (STN-DBS), suicide behaviors tend to occur during the first 3 years after the procedure, according to a study published in Neurology. Patients with PD who underwent bilateral STN-DBS at a single center in France between 1993 and 2016 were included in the retrospective study (n=534). Medical records…
• How Telemedicine Can Help You Live Well with Parkinson’s November 28, 2020 Telemedicine is the practice of healthcare in an online format. As video conferencing technology has developed and become more reliable and secure (including being HIPAA-compliant), many physicians and specialists have begun offering their services through video calls in addition to or instead of in-person appointments. Although telemedicine has traditionally been beneficial for people who live in rural areas or for…
• Let’s Talk About Palliative Care and Parkinson’s disease January 12, 2021 People with Parkinson’s disease (PD) and their care partners are always searching for ways to make their lives easier, healthier and fuller. Using the principles of palliative care to enhance PD-specific care is one way to do that. Palliative care is a medical approach for those with complex illnesses, in which the focus is on maximizing quality of life. This…
• Association of Restless Legs Syndrome With Risk of Suicide and Self-harm. August 24, 2019 Association of Restless Legs Syndrome With Risk of Suicide and Self-harm. JAMA Netw Open. 2019 Aug 02;2(8):e199966 Authors: Zhuang S, Na M, Winkelman JW, Ba D, Liu CF, Liu G, Gao X Abstract Importance: Restless legs syndrome (RLS) is a common neurologic disorder that has been previously found to be associated with higher odds of suicidal ideation. In the context…
• 2020: Year in Review January 1, 2021 # # # # In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2020. Month-by-month we will briefly discuss some of the major pieces of research/ announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies…
• Monthly Research Review – December 2020 December 31, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during December 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Conferences/lectures Other news…
• Care Planning for a Parent Living with Parkinson’s August 1, 2019 We recently sat down with a good friend of the Foundation, Bud Rockhill, to talk about his experience caring for his mom who had Parkinson’s. He had so many great tips and insights into nearly every aspect of her care that we asked if we could share them with our community. Please note that these were Bud’s experiences, and this…
• Study Highlights Disparities in Patient and Physician Perceptions Of Parkinson’s June 4, 2019 A new study highlights some of the differences in perspective on disease management between people living with Parkinson’s disease and doctors treating them. The study looks at non-motor symptoms, method of medication delivery, and awareness of support services as places where doctors’ and patients’ perceptions don’t line up, and suggests that getting these perceptions in better alignment could help improve…
• Parkinson’s: Reflective Gratitude of Life December 20, 2019 “We don’t need more to be thankful for, we just need to be more thankful.” Carlos Castaneda “Take as a gift whatever the day brings forth.” Horace Introduction: The title of this blog post says it all. At the age of 66 years old, I stand before you thinking I need to be more thankful. Really? Yes, many deserve my gratitude…
• Parkinson’s: Reflective Gratitude of Life December 20, 2019 “We don’t need more to be thankful for, we just need to be more thankful.” Carlos Castaneda “Take as a gift whatever the day brings forth.” Horace Introduction: The title of this blog post says it all. At the age of 66 years old, I stand before you thinking I need to be more thankful. Really? Yes, many deserve my gratitude…
• Other Things Lewy Bodies Might Do to Our Brains November 2, 2018 Editor’s note: This column discusses suicide. Pivotal events in my life have piqued my interest in Lewy bodies. The first event was on March 15, 2015, when my life partner, Steve, killed himself. The second was my diagnosis of Parkinson’s disease in November 2015. My fascination with Lewy bodies (I’ll define them in a bit) began in August 2016 when I watched a documentary…
• Monthly research review: February 2020 February 29, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during February 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• Bridging the Gap: Insights & Strategies From Doctors Who are Patients October 1, 2018 The World Parkinson Congress is about sharing information across boundaries – geographical, scientific, professional and cultural. The exchange is critical to moving understanding of Parkinson’s forward for all stakeholders in the global PD community: researchers, physicians and therapists, and patients themselves. Dialogue spurs innovation, and two groups who can most benefit from more dialogue are doctors and patients.Over the past…
• Shining a light on Parkinson’s November 7, 2019   NOTE: The information in today’s post should not be considered an endorsement of PhotoPharmics or the treatment they are proposing. The author of this blog has had no communication with the company. The information in this post is provided because the author has been asked by readers to discuss it. In October 2018, at the annual International Movement Disorders…
• Etiopathogenesis of Suicide: A Conceptual Analysis of Risk and Prevention Within a Comprehensive, Deterministic Model. October 2, 2019 Etiopathogenesis of Suicide: A Conceptual Analysis of Risk and Prevention Within a Comprehensive, Deterministic Model. Front Psychol. 2019;10:2087 Authors: Lennon JC Abstract Suicide is a rising global health concern receiving disproportionate attention in comparison to other health conditions. In spite of substantial technological and scientific advancements, suicide research has continued to move slowly in terms of clinical translation due to…
• Monthly Research Review – November 2019 November 30, 2019   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during November 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…