What You Need to Know about Cycling with Parkinson’s

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• Formularies, Insurance, and Parkinson’s  September 11, 2020 Navigating health insurance is challenging even for people in the best of health, but when you need a variety of medications to treat your motor and non-motor Parkinson’s symptoms, it can feel even more overwhelming. Having a basic understanding of how insurance companies cover prescription medications, though, can help you get the care you need. Here, we’ll explore how formularies work, and we’ll share information about how your medications are covered, how you can make the most out…
• The road ahead: 2021 January 25, 2021 # # # # At the start of each year, it is a useful practise to layout what is planned over the next 12 months. The events that are scheduled for the year to come, so that we can keep an eye out for them. Obviously, where 2021 will end actually is unpredictable, but an outline of what is scheduled…
• The road ahead: 2020 January 5, 2020 Here at the SoPD, we are primarily interested in disease modification for Parkinson’s. While there is a great deal of interesting research exploring the causes of the condition, novel symptomatic therapies, and other aspects of Parkinson’s, my focus is generally on the science seeking to slow, stop or reverse the condition. At the start of each year, it is a…
• How to Work Full Time & Live Well with Parkinson’s September 17, 2020 One of the most common challenges people with Parkinson’s face is balancing treatment with everyday activities and responsibilities. Exercising, going to medical appointments, attending support groups, focusing on your mental health, and all the other necessities that help you live well with Parkinson’s require a lot of time and energy. For people working when diagnosed, finding a way to balance these demands with their career responsibilities can seem impossible.    A member of our community…
• 2019: Year in review December 31, 2019   In this end-of-year post, we review the Parkinson’s research that caught our attention at SoPD HQ in 2019. Month-by-month we will briefly discuss some of the major pieces of research/announcements that have defined the year and advanced our understanding of Parkinson’s. The list is based on nothing more than the author’s personal opinion – apologies to any researchers who…
• Coping with life under Covid-19 Quarantine June 12, 2020  This is excerpted from a talk given to the ADPA Iowa Chapter on June 12, 2020. So after a good start in 2020, our lives changed literally overnight when  The Corona Virus – or Covid-19, reared its ugly head in the US.  In the middle of March, the country shut down, and we were left alone, isolated, rudderless.  The gyms…
• I have Parkinson’s and am experiencing X. Who should I see? February 10, 2020 We receive emails every day from people wondering who they should see for a wide variety of issues that often go hand-in-hand with Parkinson’s. Since it comes up often enough, we decided to create a guide that answers exactly that.    To put this piece together, we gathered up the 15 most frequently asked questions we’ve received from our community members…
• Speech, Voice & Parkinson’s Q&A with John Dean January 28, 2021 We recently hosted a webinar with speech-language pathologist John Dean. You can get access to the recording here. We received so many questions during the session that we weren’t able to answer them all; so, John was kind enough to do some written Q&A for us. “When is a good time to start speech therapy?” It’s much better to maintain…
• Monthly research review: February 2020 February 29, 2020   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during February 2020. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• Parkinson’s: Reflective Gratitude of Life December 20, 2019 “We don’t need more to be thankful for, we just need to be more thankful.” Carlos Castaneda “Take as a gift whatever the day brings forth.” Horace Introduction: The title of this blog post says it all. At the age of 66 years old, I stand before you thinking I need to be more thankful. Really? Yes, many deserve my gratitude…
• Parkinson’s: Reflective Gratitude of Life December 20, 2019 “We don’t need more to be thankful for, we just need to be more thankful.” Carlos Castaneda “Take as a gift whatever the day brings forth.” Horace Introduction: The title of this blog post says it all. At the age of 66 years old, I stand before you thinking I need to be more thankful. Really? Yes, many deserve my gratitude…
• Can Marijuana Reduce Insomnia for People Living with Parkinson’s? August 31, 2018 Written by Tom Sheppard In my  first post, I talked about the research I did about marijuana and Parkinson’s. In my second post, I shared the story of my first trip to a dispensary. Now that I’ve had a chance to  experiment  with it, I’d like to share my results.   Did it work?   Not perfectly and not grandly, but yes it…
• Shining a light on Parkinson’s November 7, 2019   NOTE: The information in today’s post should not be considered an endorsement of PhotoPharmics or the treatment they are proposing. The author of this blog has had no communication with the company. The information in this post is provided because the author has been asked by readers to discuss it. In October 2018, at the annual International Movement Disorders…
• Sun Poem: Death on a Bicycle August 9, 2019 Death on a Bicycle If you train on a road bike during the boiling hot summer in Nakajo, Japan,Your most valuable equipment, more than glovesHelmet or spare tire,Is sunglasses. There are gnats. As you breeze beside the rice paddies and through the mountain forests, They stick to your eyes. When you zoom down the gorge at Tainai, So fast that…
• Monthly Research Review – November 2019 November 30, 2019   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during November 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• Monthly Research Review – September 2019 September 30, 2019   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during September 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• Monthy research review – December 2019 December 30, 2019   At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during December 2019. The post is divided into seven parts based on the type of research: Basic biology Disease mechanism Clinical research New clinical trials Clinical trial news Other news Review…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• Planet Patient vs Planet Researcher: From Both Sides, Now June 27, 2018 “I cannot always control what goes on outside. But I can always control what goes on inside.” Wayne Dyer “Judge a man by his questions rather than his answers.” Voltaire Setting the Stage: This is Mariëtte Robijn-  She lives in the Netherlands and was diagnosed with Parkinson’s at the young age of 46.  Mariëtte has a dynamic and vibrant blog…
• How to Encourage People with Parkinson’s to Exercise July 17, 2019 One of the most common questions we receive from friends and care partners of people with Parkinson’s is this:   “My person with Parkinson’s won’t do anything.  I can’t get them to exercise, and I don’t know what to do.”  With everything we know about exercise and Parkinson’s, it would seem that getting people to exercise would be easy. But it’s far from it.  Here are just…
• Monthly research review – March 2021 March 31, 2021 # # # # At the end of each month the SoPD writes a post which provides an overview of some of the major pieces of Parkinson’s-related research that were made available during March 2021. The post is divided into ten parts based on the type of research: Top 5 pieces of Parkinson’s news Articles of general interest Basic biology…