February 24, 2019 at 6:56 am #98953Brett WarthenKeymaster
Apparently this is neither a joke nor a fashion statement. Wearing a red light bucket on your head for Parkinson’s is literally turning heads in Tasmania.
ABC News Australia reports on a clinical trial of photobiomodulation treatment for Parkinson’s Disease.
Grace Winiecki spends 40 minutes each day with a red light bucket on her head — a device she claims is making a significant difference to her life.
March 13, 2019 at 2:00 pm #104296Brett WarthenKeymaster
It seems that people with Parkinson’s know a good fashion trend when they see one. The story about the group of Parkinson’s patients in Tasmania (Australia) is consistently one of the most sought after stories on this website.
Wearing a red light bucket on your head for Parkinson’s is literally turning heads in Tasmania. The treatment is known as photobiomodulation. It is experimental and unproven. It does not claim to cure Parkinson’s. The people who have been experimenting with this technology claim to see slow and subtle improvements in PD symptoms over time.
The original news coverage from ABC News Australia is here: http://www.abc.net.au/news/2019-02-24/clinical-trials-for-wearing-led-helmets-treatment-parkinsons/10836906
ABC News in Adelaide has since posted a news video, featuring Max Burr, the trendsetter who apparently started this fashion trend, wearing the first red light hat, designed by his friend, retired physician Catherine Hamilton. They enlisted the help of a local “Men’s Shed” to create different prototypes, and experimented with hard hats, bicycle helmets, hairdresser beauty shop dryers, and a timeless classic, the lamp shade, before finally settling on the now iconic red light bucket made famous by the news coverage.
(I had never heard of a Men’s Shed before. It’s a pretty interesting grass roots movement that started in Australia, originally focused on men’s health and well-being. Learn more about the movement here: https://mensshed.org/what-is-a-mens-shed/)
Max and Catherine were inspired by the research of Professor John Mitrofanis of the Department of Anatomy at the University of Sydney, Australia, who is an expert on
photobiomodulation, and has conducted trials on mice. The professor cautioned Max that the treatment was experimental and unproven in humans.
Ever worn a bucket on your head to improve your health? 🤔🤔
Max Burr is a Tasmanian retired federal politician, and he does it every day.
He's trying to keep his Parkinson's symptoms at bay, and he's seeing some surprising results!
Posted by ABC Adelaide on Tuesday, February 26, 2019
Here is a link to the Mitrofanis research piece (mouse study) referenced in the video:
And here is some follow-up research:
Stop the press, we have uncovered more details…
One of the key members of this red light bucket brigade has created a website with more information on the details of this DIY project: https://redlightsonthebrain.blog. I’m guessing that this was created by Catherine Hamilton, the retired physician friend of Max Burr.
Catherine became interested in red and near infrared light after reading “The Brain’s Way of Healing” by Norman Doidge. Initially this interest was directed toward helping with her knee pain, which she successfully treated using an 850nm LED light (designed to be used as part of a security system), which was purchased on eBay.
After doing more research, she asked her friend Max Burr, if he would be interested in trying this type of therapy to help with Parkinson’s Disease. They created a hat using 670nm LED strip lights, and Max wore it daily for 20 minutes. Over the course of 6 months, he saw improvement in the fine motor skills he had lost in his right hand. He enjoyed playing lawn bowls, but had stopped because of problems releasing the bad with his right hand, but after gradual improvement, he was able to resume playing lawn bowls using his right hand.
(Source: https://redlightsonthebrain.blog/2017/04/27/the-beginning/, with more interesting backstory here: https://redlightsonthebrain.blog/about/evolution-of-rednear-infrared-light-hats/)
So, if you want to try this out yourself, what should you do?
Well, start by talking to your doctor. Read the research links above, and share the information with your doctor. Make an informed decision, because let’s be honest, this is weird science, and definitely experimental. Defective lights could even be dangerous!
If you decide to continue, the lights are the most important piece of the puzzle. Red and near infrared lights come in a baffling array of wavelengths.
The Tasmanian group observed the best results with a session using 670nm (dark red) LED lights, followed immediately by a session using 810nm LED lights. They caution that if you have any other kind of brain disease, including Parkinson’s Plus, only 670nm should be used.
The group has published 2 DIY designs, the original is called Eliza: https://redlightsonthebrain.blog/diy-transcranial-light-hat-eliza/
They are now recommending an updated design, called the Cossack: https://redlightsonthebrain.blog/2018/10/18/cossack-instructions-at-last/
Click below to open the DIY instructions:
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