Gavin Mogan – Parkinson’s Si Buko

Gavin Mogan has lived with Parkinson’s for 11 years, and finds exercise and a positive attitude essential to maintaining a good quality of life. He is also a certified personal trainer in Richardson, Texas, offering personal and group training, with a particular focus on helping others battling Parkinson’s or other health issues. Gavin’s website is https://yourmove.fitness. [Update: Gavin is also now a contributing author on this website. View his contributions here: https://parkinson.fit/author/gavinmogan]

Gavin recently traveled to Uganda, to learn from, and to offer support to a Parkinson’s advocacy program in that country.  On his blog, he wrote about this experience, sharing the story of Kabugo Hannington, a municipal health inspector who was moved to learn more about Parkinson’s after witnessing his mother suffering from both HIV and Parkinson’s.

In 2017, Hannington began a campaign to dispel the local myth that Parkinson’s is witchcraft, which is the origin of the project name Parkinson’s Si Buko (Parkinson’s is not witchcraft in native Ugandan tongue). Gavin provides a more detailed introduction in part 1 of this series:
https://yourmove.fitness/blog/f/lifting-the-curse-of-parkinsons-in-uganda

Part 2 includes a fascinating story of a roadside encounter where Hannington identities a PD sufferer based upon observing his walk, and an encounter with a witch doctor with Parkinson’s. Ironically, the witch doctor recognizes PD is not witchcraft, because if it was, he could cure it:
https://yourmove.fitness/blog/f/lifting-the-curse-of-parkinsons-in-uganda-1

Part 3 of the series tells us more about Kabugo Hannington, who Gavin concludes must be a superhero, the Parkinson’s batman:
https://yourmove.fitness/blog/f/introducing-the-ugandan-batman-kabugo-hannington

The series concludes (for now) with Gavin heading back home, pondering how he can help, and sharing some insightful commentary on compassion and awareness:
https://yourmove.fitness/blog/f/parkinsons-uganda—concluding-thoughts

Thanks to plentiful access to information and medication, in the developed world, it is possible to maintain a good quality of life with Parkinson’s. Those with PD in many low-income countries have no such opportunity.  In fact, it’s commonly believed among many that Parkinson’s is the result of witchcraft! Thus, a relatively manageable disease, at least early-on, is rendered a crippling, hopeless malady tearing families apart. It doesn’t have to be this way.  Conditions are already changing in Uganda.  Consider donating to Gavin Mogan’s funding campaign to raise money to support Parkinson’s Si Buko in Uganda:
https://www.gofundme.com/raining-threes-for-Ugandans-w-parkinson039s-disease

More by Gavin Mogan

  • Progression of PD or Progression of Me?
    Progression of PD or Progression of Me?

    I used to worry about how much the exercise I did slowed the progression of PD. Not any more. I mostly just want to be the best I can possibly be. I’m more interested in the progression of me. What do I want to do? What can I achieve? And…

  • Every Day is Opening Day
    Every Day is Opening Day

    I decide how I will live life to the fullest despite Parkinson’s disease. I control my thoughts, which in turn control my emotions, which in turn control my actions. Video transcript: This is not a Parkinson’s dance class. There’s not even music. It’s a makeshift medical clinic in Uganda. Many…

  • With Parkinson’s, Outcomes Vary. Right the Ship, Captain. (5 Year Crystal Ball)
    With Parkinson’s, Outcomes Vary. Right the Ship, Captain. (5 Year Crystal Ball)

    “Where do you see me in five years?” I had been waiting a long time to ask that question.  At the top hospitals you don’t just get in next week, next month either. And when your day comes, there are lots of people waiting for their turn to ask important questions.  Doctors…

  • My God, That’s a Lot of Basketball (3,000 3-pointers for Parkinson’s Si Buko Uganda)
    My God, That’s a Lot of Basketball (3,000 3-pointers for Parkinson’s Si Buko Uganda)

    On June, 18, 2019, I spent 21 hours making 3000 3-point baskets to raise money for Parkinson’s Si Buko Uganda, a non-profit creating awareness and serving local community needs. This video provides highlights of the effort.   Basketball Therapy & Self-Discovery The words below convey how it feels when I’m playin’…

  • Buried Treasure (What Parkinson’s Gave Me)
    Buried Treasure (What Parkinson’s Gave Me)

    How Parkinson’s gave me a better long-range jumper, a better baseball throwing arm, and a better outlook on life! I was diagnosed with Parkinson’s disease over a decade ago. I was 38. Parkinson’s is chronic, degenerative, and without a cure. Yet, over the last several years I’ve steadily improved my…

  • My Last 5% Are Giving Me 110%
    My Last 5% Are Giving Me 110%

    Conventional wisdom holds that far more than half of my dopamine-producing neurons were dead by the time of my Parkinson’s diagnosis in 2008. I’m guessing that death toll has risen to about 95% now. The remaining 5% (+/-) of my dopamine neurons probably don’t like me much. I’m not sure…

  • Control You, Control Your Parkinson’s
    Control You, Control Your Parkinson’s

    What if there’s a way to ensure Parkinson’s never has control over us again? Is this possible? The mind is often our biggest enemy. Alternatively, it can be trained to serve… The thing with Parkinson’s is the loss of control – the slow, constant erosion of execution of our will,…

  • Reconnecting Through Rhythm
    Reconnecting Through Rhythm

    Parkinson’s disease disrupts rhythm. And sometimes PD obliterates rhythm, battering it beyond recognition. But, we don’t have to accept it this way. Working to maintain mind-body connections is well worth the effort … if you call music, dance, sports, games, or the like, effort. I’m learning every day, but I’m…

  • Oddities and Opportunities in Movement During Parkinson’s Off Periods
    Oddities and Opportunities in Movement During Parkinson’s Off Periods

    When my PD medication wears off, I struggle. But there are times that I actually enjoy the challenge of moving that I face after 11 years of living with PD. There’s a reason they recommend exercising when your medication is working and you are on. But, I also find satisfaction…

  • Carbidopa/Laughadopa: One Pill to Rule Them All
    Carbidopa/Laughadopa: One Pill to Rule Them All

    Someone once told me that laughter was the best medicine. I think it was the claims reviewer at my health insurance provider. Thanks to carbidopa/laughadopa therapy, I can repurpose so many of my Parkinson's symptoms to treat other symptoms, that the worse my PD gets, the better I feel. ‘Off’…

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