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  • Research, clinical and other emerging trends in Parkinson’s meeting
    On March 26 and 27, 2020, we are hosting a virtual meeting with leading Canadian researchers, clinicians and patients to discuss the state of Parkinson’s research in Canada, and the Parkinson Canada Research Program’s role in the international research landscape. We’ll be joined by key international research programs to discuss emerging trends in research, and what subjects are the biggest ... read more
    Source: Parkinson CanadaPublished on 2021-03-05By ansunyan
  • Julie Wysocki speaks at University of Manitoba Café Scientifique
    Julie Wysocki, Director Research Program and Partnerships who leads Parkinson Canada’s National Research Program will be moderating UM’s Café Scientifique which brings together experts with non-researchers (you, me, neighbours and friends) in a relaxed atmosphere, to learn about their research and the questions it raises. Join her as she leads a panel entitled “Research in Motion: The Latest Advances in ... read more
    Source: Parkinson CanadaPublished on 2021-03-04By ansunyan
  • Removing Barriers to Deep Brain Stimulation (DBS) Surgery for Women with Parkinson’s Disease
    REMOVING BARRIERS TO DEEP BRAIN STIMULATION SURGERY FOR WOMEN WITH PARKINSON’S DISEASE Dr. Michelle Fullard, Dr. Megan Morris, and Dr. Drew Kern at the University of Colorado are examining how to remove barriers to DBS surgery for women living with Parkinson’s. With this Davis Phinney Foundation research grant, the team will ... read more
    Source: Davis Phinney FoundationPublished on 2021-03-04By Lua Franklin
  • Give a Dime about Parkinson’s: A Red Letter Campaign
    This month, join Parkinson’s advocates around the country in showing that you “Give a Dime” about Parkinson’s. Inspired by the 1938 March of Dimes to End Polio, the “Give a Dime about Parkinson’s” founders international Parkinson’s experts Dr. Michael Okun, Dr. Bas Bloem, Dr. Ray Dorsey, and Dr. Todd Sherer are building a movement to end Parkinson’s. And ... read more
    Source: Davis Phinney FoundationPublished on 2021-03-04By Leigh Cocanougher
  • But Wait, I’m Not Dying! Why Palliative Care Is For Living Now
    This is typically the first sentence I hear when offering our Neuropalliative Care service to patients.  In fact, physicians and nurses sometimes make the statement on behalf of their patients.  Despite talking about palliative care for people with Parkinson Disease (PwP) since 2005, I am faced with this statement on a weekly basis.  I want to be clear: “Palliative care ... read more
    Source: World Parkinson CongressPublished on 2021-03-04By Janis M. Miyasaki, MD, MEd, FRCPC
  • On Stage in Kyoto – WPC 2019
    I am greeted by sky highconcrete walls that appear at anglesunlike any walls I’ve ever seen.Olive green carpet, mid-century furnishings tucked into corners ofvast spaces and cloaked walkways outside cathedral like shapes of grey, so different than anything I’ve known. It feels cold, stark, light but not warm.A vast space waiting to be filled, such contrast to the cozy textures ... read more
    Source: World Parkinson CongressPublished on 2021-03-04By Kat Hill, RN
  • [Webinar] LIVING WELL WITH CHRONIC PAIN AND ILLNESS

    A Parkinson’s diagnosis can bring with it a wide array of challenges. It is life-disrupting and can feel like the life you once knew and the one you dreamed about are gone forever. This can leave you feeling stressed, fearful, uncertain, and overwhelmed. In the book How to Live Well with Chronic Pain and Illness: A Mindful Guide, author ... read more

    Source: Davis Phinney FoundationPublished on 2021-03-04By Leigh Cocanougher
  • “Look at us – we are here”
    Ahead of International Women’s Day, we share the highlights of our Women and Parkinson’s campaign – from eye-opening accounts of how menstruation, pregnancy and menopause can affect symptoms to a look at whether the coronavirus pandemic has disproportionately affected women with the condition 1. “Where are the women with Parkinson’s?” When Francisca Ruiz González from Spain joined an association for ... read more
    Source: Parkinson’s Life EUPublished on 2021-03-04By admin
  • Take part in a virtual Parkinson’s Unity Walk
    The annual Parkinson’s Unity Walk, which unites campaigners around the world, is going virtual this year. We find out about the “totally new experience” that’s on offer – from an online poetry corner to a resource library packed with expert advice For more than 25 years, the annual Parkinson’s Unity Walk has served to raise awareness and funds for Parkinson’s ... read more
    Source: Parkinson’s Life EUPublished on 2021-03-04By admin
  • New biotech to drive forward GDNF treatment for Parkinson’s disease
    UK charity Parkinson’s UK is creating a new company, Vivifi Biotech, to develop a treatment with potential to stop or reverse Parkinson’s disease. The experimental therapy surgically distributes GDNF, a protein that is naturally produced by the brain to protect cells, directly into the brain. The charity previously funded a clinical trial to investigate whether boosting GDNF levels could regenerate ... read more
    Source: Parkinson’s Life EUPublished on 2021-03-04By admin
  • Turning Data into Action
    Your CAC is ready to rollYou have conducted research and completed a community healthy assessment for Parkinson’s (CHAP)Now, what?  The transition from data collection to action can be difficult for some groups. But it’s a crucial transition; it maintains the group’s momentum and engagement and helps the group build self-efficacy. ... read more
    Source: Davis Phinney FoundationPublished on 2021-03-03By Leigh Cocanougher
  • The Victory SUMMIT® Virtual Event – Newly Diagnosed
    On February 20, 2021, our first The Victory Summit® Virtual Event of the year brought together people from all over the world for a day of information, inspiration, and connection. The event featured sessions from experts in neurology, Parkinson’s medications, physical therapy, as well as inspirational and informative breakout sessions led by our very own Ambassadors living well with Parkinson’s ... read more
    Source: Davis Phinney FoundationPublished on 2021-03-02By Leigh Cocanougher
  • Where are they now? APDA’s research success continued
    Q & A with APDA research grant recipients Since 1961, APDA has been a funding partner in many major scientific breakthroughs and has awarded more than $51 million in research grants to date. APDA funds individual research grants and fellowships to scientists performing innovative Parkinson’s disease (PD) research. Grants are awarded through a competitive application process and reviewed by APDA’s ... read more
    Source: American Parkinson Disease AssociationPublished on 2021-03-02By Dr. Rebecca Gilbert
  • 5 Simple Exercises to Train Your Balance & Live Well with Parkinson’s
    Because Parkinson’s can impact the reflexes needed to maintain an upright posture, people with Parkinson’s may feel unstable while standing upright. This postural instability — better known as poor balance and coordination — can make certain physical activities difficult, and it also increases the risk of falling. The good news is that although postural ... read more
    Source: Davis Phinney FoundationPublished on 2021-03-01By Leigh Cocanougher
  • What’s Coming Next Month: March 2021

    Join us in March for our many inspirational, educational, and Team DPF events. You’ll hear from experts and people with Parkinson’s on a variety of topics, but no matter the subject, rest assured that you will walk away feeling hopeful, knowledgable, and inspired. Check out March’s events below.

    EDUCATIONAL EVENTS and resources ... read more

    Source: Davis Phinney FoundationPublished on 2021-02-28By Leigh Cocanougher
  • Healthy Parkinson’s Communities™: February Resource Roundup
    Last month we focused on sharing resources that introduced crosssector collaboration, its importance, who to get involved, and how to make it happen in your community. If you missed the post last month, you can find it here.    This month, we are highlighting resources that focus on how to develop a Community Action ... read more
    Source: Davis Phinney FoundationPublished on 2021-02-26By Jackie Hanson
  • What’s New in Parkinson’s: February 2021
    From the “Give a Dime for Parkinson’s” campaign to adaptive DBS to an Off-Broadway production of Samuel Beckett’s “Endgame,” this month has brought an array of Parkinson’s news and initiatives. Check out some of the most important Parkinson’s articles, podcasts, research, opportunities, and living well stories happening now, and let us know if we missed anything important. Happy reading! PARKINSON’S ... read more
    Source: Davis Phinney FoundationPublished on 2021-02-26By Leigh Cocanougher
  • Nonmotor Symptoms Treatment
    Ask anyone about Parkinson disease and they will immediately think shaking and perhaps, a shuffling gait.  Rarely, will anyone think of the nonmotor symptoms that frequently precede the onset of motor signs.  Yet, these nonmotor symptoms increase in the number of symptoms and severity throughout the course of PD.  In the past, neurologists also focused on the motor features of ... read more
    Source: World Parkinson CongressPublished on 2021-02-25By Janis M. Miyasaki, MD, MEd, FRCPC
  • Is it time for a new image of Parkinson’s disease?
    Dr Michael J Okun and Dr Melissa Armstrong discuss how updating images portraying Parkinson’s disease could help counter stereotypes and myths about the condition Today, Parkinson’s disease is the fastest growing neurological condition in the world, affecting millions of people – but did you know that many medical publications and teaching slides still use a sketch made in 1886 to ... read more
    Source: Parkinson’s Life EUPublished on 2021-02-25By admin
  • [Video] Poetry as Medicine Cafe – Using Poetry to Live Well with Parkinson’s
    Last summer, a group of Davis Phinney Foundation Ambassadors came together for a Poetry as Medicine workshop with Wayne Gilbert. What began as a one-hour session turned into a monthly poetry jam that has resulted in far more than words on a page.

    At our first ever Poetry as Medicine Cafe, these poets shared with us some pieces of their ... read more

    Source: Davis Phinney FoundationPublished on 2021-02-25By Leigh Cocanougher
  • New wearable medical device for Parkinson’s disease to launch this year
    The Imperial College London Innovation Fund, UK, has invested £205,000 to support UK-based tech company Charco Neurotech in its development of a non-invasive medical device for people with Parkinson’s disease. CUE1, a circular device that attaches to the sternum with medical adhesives, uses specialised vibration to help alleviate physical symptoms of Parkinson’s disease. Initial user testing among people with the ... read more
    Source: Parkinson’s Life EUPublished on 2021-02-25By admin
  • Parkinson’s disease and loneliness: “people are hungry for some connection”
    Dr Indu Subramanian, a movement disorder neurologist based in Los Angeles, US, shares why social engagement is crucial for the wellbeing of people with Parkinson’s disease – and how Covid-19 has “magnified” the challenges caused by loneliness “Humans are social creatures – and we need connection just like we need water and shelter.” Before Covid-19 began to spread in ... read more
    Source: Parkinson’s Life EUPublished on 2021-02-25By admin
  • Parkinson’s: From Diagnosis to Acceptance
    Written by Amy Montemarano, Davis Phinney Foundation Ambassador and YOPD Council Leader living with Parkinson’s. I learned a few things about acceptance on a summer day just a couple of months after my Parkinson’s diagnosis at age 48. It was supposed to have been a fun outing – kayaking with a few friends and, collectively, our six middle-school-aged daughters for ... read more
    Source: Davis Phinney FoundationPublished on 2021-02-24By Jackie Hanson
  • [Video] YOPD Council: Death and Dying

    Death is a universal part of life. But when faced with a Parkinson’s diagnosis, this topic may have an entirely new meaning.

    In this webinar, our YOPD Council leaders discussed: Parkinson’s and its effect on their perspectives of death Strategies for managing feelings of loss How to effectively prepare for end-of-life and live well in the moment NOW ... read more

    Source: Davis Phinney FoundationPublished on 2021-02-22By Jackie Hanson
  • Being an Advocate for your Parent with Parkinson’s
    My mother has lived with her Parkinson’s Disease diagnosis for over 22 years and yet as her child I am still learning new ways every day I can be an advocate for her. Whether it is supporting her career and commitments, helping her evaluate relationships with friends and family, or contributing to the greater PD community. Here I discuss ... read more
    Source: Brian Grant FoundationPublished on 2021-02-22By Iris
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