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  • 7 Ways to Help Fatigue in Parkinson’s Disease
    Fatigue is a common, frustrating Parkinson’s disease symptom. It can feel both physical and mental, from lack of sleep as well as from apathy, another common symptom.Pain from symptoms like rigidity can make falling asleep more difficult. Insomnia is also common with Parkinson’s, which ... read more
    Source: Shake It Up AustraliaPublished on 2019-06-13By admin
  • Economic Burden of Parkinson’s
    A new study finds the economic burden of Parkinson’s is double previous estimates. The results of a study released today show the total cost of Parkinson’s in the United States is $52 billion a year. This figure takes into account direct medical costs of $25.4 billion annually and non-medical costs of $26.5 billion annually. Non-medical costs include missed work, ... read more
    Source: Brian Grant FoundationPublished on 2019-06-13By Katrina Kahl
  • $52 billion per year is spent on PD-related expenses, according to results of the Economic Burden of Parkinson’s Disease Study
    $52 billion per year is spent on PD-related expenses, according to results of the Economic Burden of Parkinson’s Disease Study In October 2018, APDA asked our constituents to consider participating in a new study called The Economic Burden of Parkinson’s Disease (PD), with the goal of estimating the economic burden of PD in the United States. An online survey collected ... read more
    Source: American Parkinson Disease AssociationPublished on 2019-06-13By Dr. Rebecca Gilbert
  • How to Design Your Life with Parkinson’s
    If you’re like many of the people in our community, your road to diagnosis wasn’t easy. It was a time of uncertainty, of going from doctor to doctor and of fear about what was to come. Now that it’s real, how do you move forward? One of the ways we’ve found to be helpful is to apply a design approach ... read more
    Source: Davis Phinney FoundationPublished on 2019-06-13By Melani Dizon
  • How to Design Your Life with Parkinson’s
    If you’re like many of the people in our community, your road to diagnosis wasn’t easy. It was a time of uncertainty, of going from doctor to doctor and of fear about what was to come. Now that it’s real, how do you move forward? One of the ways we’ve found to be helpful is to apply a design approach ... read more
    Source: Davis Phinney FoundationPublished on 2019-06-13By Melani Dizon
  • Providing free speech therapy for New York’s Parkinson’s community
    We spoke to student clinician Beata Royzman about working with the Parkinson’s community in the Bronx, New York City, US, why ‘speaking with intent’ can help improve vocal symptoms – and what inspired her to “change people’s lives” How did you first start working with individuals with Parkinson’s? I was fascinated with the voice from a very young age. I ... read more
    Source: Parkinson’s Life EUPublished on 2019-06-13By admin
  • World Parkinson Congress 2019: an Irishman in Japan
    In the first in our new World Parkinson Congress series, we share the diary of Parkinson’s blogger Joe Lacy who attended the event in Kyoto, Japan. Joe reflects on an action-packed week which saw him try out exciting wearable technology products, rub shoulders with fellow campaigners and enjoy a performance from geishas Day one: Monday 3 June  As a World Parkinson ... read more
    Source: Parkinson’s Life EUPublished on 2019-06-13By admin
  • New survey highlights challenges facing Parkinson’s carers
    The EPDA is launching a survey that hopes to highlight the difficulties and consequences of caring for someone with Parkinson’s The European Parkinson’s Disease Association (EPDA) is releasing a new survey that seeks to shine a light on the physical, emotional and financial challenges of caring for someone with Parkinson’s. The survey, which is being conducted with support from healthcare ... read more
    Source: Parkinson’s Life EUPublished on 2019-06-13By admin
  • Breaking News: Economic Burden of Parkinson’s Disease is $52 Billion
    1.Why Is this Study Important?2.How Was the Study Performed?3.How Can I Get Involved in Parkinson’s Research?4.Learn MoreA new study resulting from a partnership of Parkinson’s organizations and industry partners reveals that the economic burden of Parkinson’s disease (PD) in the U.S. is $51.9 billion – nearly double previous estimates. Highlights from the Study: $25.4 billion is attributable to direct medical ... read more
    Source: National Parkinson FoundationPublished on 2019-06-12By cwhitlock
  • How tennis helps Parkinson’s symptoms
    Tennis is the ideal sport for people with Parkinson’s disease because it requires fancy footwork, hand-eye coordination, sudden movements and cognitive thinking. If you haven’t taken up tennis or if your racket has collected some dust over the years, it’s never too late to get into the game. Tennis is a lifetime sport, meaning it can be played at ... read more
    Source: Brian Grant FoundationPublished on 2019-06-11By Katrina Kahl
  • Moments of Victory® – Zach Guza Knows the Power of Exercise in Living Well with Parkinson’s
    What was it like when your father was diagnosed with Parkinson’s? My dad was originally diagnosed with Alzheimer’s. He was visiting us in Spokane, Washington while I was in the Air Force.  I was 32 and he was 63. We tried to play a word game earlier that day and he kept answering “Art Linkletter” for every answer.  He said ... read more
    Source: Davis Phinney FoundationPublished on 2019-06-11By Melani Dizon
  • Menopause & PD: An Interview with APDA Researcher Dr. Roberta Marongiu
    Menopause & PD: An Interview with APDA Researcher Dr. Roberta Marongiu As part of our A Closer Look blog, the Ask the Researcher series is designed to give you some insight (a closer look, if you will) into some of the dedicated APDA-funded researchers who are laser-focused on finding better treatments and a cure for Parkinson’s disease (PD). Today’s installment ... read more
    Source: American Parkinson Disease AssociationPublished on 2019-06-10By Dr. Rebecca Gilbert
  • Move of the Month: Intensity Training
    June’s Move of the Month focuses on intensity training to improve your ability to everyday activities. We’re putting it all together this month to bring you a full, high intensity workout that includes functional and big amplitude training. This workout should push you to work with intent (and a little harder than usual!) to break a sweat and reap ... read more
    Source: Brian Grant FoundationPublished on 2019-06-10By Katrina Kahl
  • Understanding Alpha-Synuclein and it’s role in Parkinson’s
    Alpha-synuclein is a priority for The Michael J. Fox Foundation. We devote substantial resources to programs that help us better understand its role in Parkinson’s, measure it, and develop that target it.A new finding from MJFF-funded researchers, published recently in the Journal of Biological Chemistry, ... read more
    Source: Shake It Up AustraliaPublished on 2019-06-09By admin
  • Parkinson’s Poetry: Wayne A. Gilbert Performs Naughty Parkie Kids & Strange Romance
    Metaphors can be a great way of changing the way we see things. Wayne uses metaphors to create compelling and lasting images in our brains and to help us see Parkinson’s, and how to live well with it today, in a totally new light. After you watch his two poems for today, be sure to leave a comment and let ... read more
    Source: Davis Phinney FoundationPublished on 2019-06-08By Melani Dizon
  • The Source to Salt – Six Marathons in Six Days
    Andrew “Pegs” Pengelly is an inspiring story of courage in the face of adversity. After learning of his diagnosis in his early fifties, Andrew set about constructing a new vision for his life. Part of that vision was a plan of exercise and this ... read more
    Source: Shake It Up AustraliaPublished on 2019-06-06By admin
  • Simple Blood Draw Reveals Early Inflammation/Fatigue Connection
    1.Results2.What Does This Mean?3.Learn MoreFirst described as a common symptom of Parkinson’s disease (PD) more than 20 years ago, PD-related fatigue remains an under-recognized, clinically significant, disabling symptom that can diminish quality of life (Herlofson et al., 2018; Kluger et al., 2016). Often occurring prior to movement symptoms of PD — tremor, rigidity and bradykinesia — (Chong, Albor, Wakade, & ... read more
    Source: National Parkinson FoundationPublished on 2019-06-06By cwhitlock
  • Finding the Home You Need: Modifications for People with Parkinson’s Disease
    It can be very difficult for a someone with Parkinson’s disease (PD) to find a home with accessibility features. Most real estate agents don’t have much experience dealing with accessible properties and there are few resources that can simplify the process for disabled home buyers. It takes considerable research and patience to find a property that meets your needs. It’s ... read more
    Source: National Parkinson FoundationPublished on 2019-06-06By dmcclain
  • Moments of Victory® – Catherine Strisik Shares Memories of Her Husband, Larry
    In this special Moments of Victory® post, Catherine Strisik talks about life with her husband, Larry Schreiber, and how they lived well with Parkinson’s up until his death in early 2016. What was your journey like once Larry was diagnosed? As the wife of Larry Schreiber, and as a writer, I immediately began writing down everything that was happening with Larry. ... read more
    Source: Davis Phinney FoundationPublished on 2019-06-06By Melani Dizon
  • Parkinson’s community rallies around TV journalist after diagnosis
    After appearing on a live broadcast with a visibly shaking hand, veteran journalist Rory Cellan-Jones decided to go public about his Parkinson’s diagnosis – leading to an outpouring of praise and thanks for his honesty Well-wishers have taken to social media to praise UK-based BBC journalist Rory Cellan-Jones’ “courageous” decision to share his Parkinson’s diagnosis. The veteran journalist, 61, was ... read more
    Source: Parkinson’s Life EUPublished on 2019-06-06By admin
  • A musical exploring young onset Parkinson’s
    We spoke to UK-based writer Julie Walker (far left) about ‘These Three Words’, a new play inspired by her Parkinson’s diagnosis seven years ago. Julie shares top tips for others in her position, considers how the condition has boosted her creative confidence – and reflects on the unique challenges facing younger people with the condition You’ve recently written a new musical, ... read more
    Source: Parkinson’s Life EUPublished on 2019-06-06By admin
  • Acupuncture may alleviate Parkinson’s symptoms
    A study conducted by researchers in South Korea has found that acupuncture may help alleviate motor symptoms of Parkinson’s. The study – published in science journal ‘Frontiers in Aging Neuroscience’ – collected data from 42 existing trials testing the effects of acupuncture on different mouse models of Parkinson’s disease. A total of 40 studies showed that acupuncture increased levels of ... read more
    Source: Parkinson’s Life EUPublished on 2019-06-06By admin
  • Why High-Intensity Interval Training Is a HIIT for PD
    Tired of the same old fitness routine? Improve your body strength in just a few minutes by giving high-intensity interval training a shot. A leisurely stroll always does the body good, but short bursts of intense exercise for just a few seconds off and on may help improve Parkinson’s symptoms. High intensity interval training (HIIT)—as it’s ... read more
    Source: Brian Grant FoundationPublished on 2019-06-05By Katrina Kahl
  • Eating Out in Kyoto
    I am in Kyoto, Japan with the World Parkinson Congress for it’s 2019 meeting. I have woken up for the third time since being here in Kyoto. It is hard to say how long I have been here as I ether lost or gained a day during the 12 ours I spent in an airplane to get here from ... read more
    Source: World Parkinson CongressPublished on 2019-06-04By Garry Ballenger
  • CHANGE THE MESSAGE
    Monday NightIn the room were so many people who held our fate in their hands, Drug companies, doctors, researchers, charity organisations. What they choose to work on, where they put the money will decide how soon a 'cure' is found. How can I help that process this week?Tuesday  On Monday we received a few emails that shaped our week and certainly ... read more
    Source: World Parkinson CongressPublished on 2019-06-04By Joe Lacy
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