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  • How Telemedicine Can Help You Live Well with Parkinson’s
    Telemedicine is the practice of healthcare in an online format. As video conferencing technology has developed and become more reliable and secure (including being HIPAA-compliant), many physicians and specialists have begun offering their services through video calls in addition to or instead of in-person appointments. Although telemedicine has traditionally been beneficial for people who live in rural areas or for ... read more
    Source: Davis Phinney FoundationPublished on 2020-11-28By Leigh Cocanougher
  • Get Your Every Victory Counts® Manual by Audio

    People living with Parkinson’s, their care partners and families, and friends of those living with Parkinson’s want reliable and practical information that will help them improve their quality of life today and every day. The Every Victory Counts® manual is the gold-standard resource to help you live well with Parkinson’s and achieve your wellness goals. And now ... read more

    Source: Davis Phinney FoundationPublished on 2020-11-26By Leigh Cocanougher
  • DBS: “We are moving past the idea that one treatment fits all”
    A deep brain stimulation device – launched by global medical technology company Medtronic – continuously records patients’ brain signals and creates a “diary of motor symptoms”. Two experts share how the technology is introducing a new era of personalised Parkinson’s treatments “New technologies are very important to further increase the benefit of deep brain stimulation,” says Maria Fiorella Contarino (pictured ... read more
    Source: Parkinson’s Life EUPublished on 2020-11-26By admin
  • “A space where people with Parkinson’s can speak their minds”
    The Parkinson’s Life podcast has been named the ‘Best Global Audio Campaign of the Year’ at the Global Content Awards 2020. To celebrate, we look back at the series and the generous and honest contributions of our guests We launched the Parkinson’s Life podcast in May 2019 to offer a space for people affected by Parkinson’s disease to talk honestly ... read more
    Source: Parkinson’s Life EUPublished on 2020-11-26By admin
  • Loneliness may increase severity of Parkinson’s disease symptoms
    Researchers in the US have found that people with Parkinson’s disease who experience loneliness may be at an increased risk for severe symptoms related to the condition. As part of the study – published in the medical journal NPJ Parkinson’s Disease – researchers collected information from 1,500 people with the condition between 2014 to 2019. Those who reported being very ... read more
    Source: Parkinson’s Life EUPublished on 2020-11-26By admin
  • C-OPN facilitates new partnership in MSA research
    The Canadian Open Parkinson Network (C-OPN), a project founded by Parkinson Canada and Brain Canada, is designed to foster collaboration between research centres. This week, the Defeat MSA Alliance announced a new genetic study on MSA, partnered with MSA United International and C-OPN. In this study, led by Ziv Gan-Or, MD, PhD (McGill University, Montreal), 100-200 DNA samples from ... read more
    Source: Parkinson CanadaPublished on 2020-11-25By ansunyan
  • [Webinar Recording] YOPD Council: Mental Health and Parkinson’s

    Approximately 50-60% of people living with Parkinson’s experience varying levels of depression and anxiety, and nearly all deal with loss. During this YOPD Council session, the members of our Council discussed:

  • How they have dealt with depression and anxiety
  • Strategies that have worked and those that haven’t to get into a better headspace
  • Tools for managing ... read more
Source: Davis Phinney FoundationPublished on 2020-11-23By Leigh Cocanougher
  • The Cure Parkinson’s Trust Christmas Quiz
    What better way to get in the festive spirit than by hosting a Christmas quiz with family and friends.  We have everything you need to organise and host a virtual quiz that will be remembered for Christmases to come – who knows it may even become a new family tradition. So grab your best (or more likely, worst Christmas jumpers) ... read more
    Source: The Cure Parkinson’s TrustPublished on 2020-11-23
  • Ask the Parkinson’s Expert – All about Care Partners with Davis Phinney & Connie Carpenter Phinney
    When Davis Phinney was diagnosed with Parkinson’s at age 40, he and his wife, Connie Carpenter Phinney, began a new journey together. In this video, they discuss several steps of that journey: sharing the news with their children; building their care team; asking for and accepting help; maintaining a sense of humor; finding joy; showing gratitude, patience, and kindness; staying ... read more
    Source: Davis Phinney FoundationPublished on 2020-11-23By Leigh Cocanougher
  • Announcing the Davis Phinney Foundation Peloton Club
    This year the Davis Phinney Foundation reinvented itself in many ways. We added new programs to support the Parkinson’s community and adapted some of our current programs to fit our new socially distant landscape. We also re-examined our giving programs and created a brand-new recurring giving club. We’re excited to announce the Davis Phinney Foundation Peloton Club! Cycling is near ... read more
    Source: Davis Phinney FoundationPublished on 2020-11-22By Leigh Cocanougher
  • [Webinar Recording] Mental Wellness for Parkinson’s Care Partners

    Stepping into the role of Parkinson’s care partner is a big change and often a significant stressor. And as time goes by, it’s easy to become so focused on your person with Parkinson’s that you put your own needs on the back burner. This can lead to caregiver burnout or in its extreme, compassion fatigue, where you become ... read more

    Source: Davis Phinney FoundationPublished on 2020-11-20By Leigh Cocanougher
  • Parkinson’s Featured on CBC’s You Can’t Ask That
    A preview of a Season 2 Episode 7 of CBC’s You Can’t Ask That, featuring people living with Parkinson’s disease battling sterotypes. CBC’s You Can’t Ask That is a series designed to confront prejudices and break down taboos in society in an authentic and relatable way. Each episode asks a group of Canadians with different disabilities to respond honestly ... read more
    Source: Parkinson CanadaPublished on 2020-11-19By ansunyan
  • All I Want for Christmas is a Cure
    2020 has been a difficult year for everyone but one of our highlights has been the wonderful Paul Mayhew-Archer agreeing to become a patron. Here he is talking about some of the challenges he has faced this year with a Christmas message in support of CPT. YouTube Video https://www.youtube.com/watch?v=qyjt13qDU2k Due to the pandemic, 95% of The Cure Parkinson’s Trust’s fundraising ... read more
    Source: The Cure Parkinson’s TrustPublished on 2020-11-19
  • The Leicestershire Committee Virtual Christmas Market
    The Cure Parkinson’s Trust (CPT) is delighted to announce that friends and long-term supporters from the Leicestershire, Northamptonshire and Rutland Committee are holding a virtual Christmas Market to raise funds for our ground-breaking Parkinson’s research. The virtual market allows shoppers to place bids on a spectacular array of Christmas gifts, including delicious mince pies, holly wreaths, beautiful silk scarfs and ... read more
    Source: The Cure Parkinson’s TrustPublished on 2020-11-19
  • Sex, intimacy and Parkinson’s disease: an expert guide
    We round up our four-part series on sex, intimacy and Parkinson’s, in which sex therapist, Gila Bronner, and nurse consultant, Orna Moore, share their expert advice – from practical tips on how to encourage intimacy in a relationship post-diagnosis to the importance of seeking professional help 1. Intimacy, sexuality and Parkinson’s In the first part of the series, Gila ... read more
    Source: Parkinson’s Life EUPublished on 2020-11-19By admin
  • Michael J Fox opens up about living with Parkinson’s disease
    The ‘Back to the Future’ star discusses his latest book, how Parkinson’s has been “tough” on his family – and the difficulty of accepting a diagnosis In a recent interview, US actor and Parkinson’s campaigner Michael J Fox discusses his newly released fourth memoir ‘No Time Like the Future: An Optimist Considers Mortality’. In conversation with Australian TV show ... read more
    Source: Parkinson’s Life EUPublished on 2020-11-19By admin
  • Can tremor predict the effect of Parkinson’s disease medication?
    Researchers from the Netherlands have found a link between tremor symptoms and how dopaminergic medication impacts learning abilities in Parkinson’s disease. Many people with Parkinson’s become sensitive to learning through rewards due to a decrease in dopamine in the brain. As part of a new study – published in the scientific journal Brain –researchers assessed 43 tremor-dominant and 20 non-tremor ... read more
    Source: Parkinson’s Life EUPublished on 2020-11-19By admin
  • Santa Dash
    Are you looking to keep active through the Christmas season? Or do you want to burn off those extra mince pies? Join The Cure Parkinson’s Trust’s (CPT) ‘Santa Dash’ and get moving in support of our pioneering Parkinson's research. Plan your favourite local route to conquer in the month of December. Whether you’re running 5k, 10k or taking a stroll ... read more
    Source: The Cure Parkinson’s TrustPublished on 2020-11-19
  • Mental Wellness for Parkinson’s Care Partners

    Stepping into the role of Parkinson’s care partner is a big change and often a significant stressor. And as time goes by, it’s easy to become so focused on your person with Parkinson’s that you put your own needs on the back burner. This can lead to caregiver burnout or in its extreme, compassion fatigue, where you ... read more

    Source: Davis Phinney FoundationPublished on 2020-11-18By Leigh Cocanougher
  • How to Understand and Manage OFF Times as a Parkinson’s Care Partner
    As Parkinson’s care partners know well, everyone living with Parkinson’s experiences OFF times differently. (OFF times occur when the medication wears off, hasn’t kicked in, or just isn’t providing symptom relief.) For some, especially those who have been diagnosed for only a few years, OFF periods may be rare and a minor concern. For others, OFF can be a frequent ... read more
    Source: Davis Phinney FoundationPublished on 2020-11-18By Leigh Cocanougher
  • The Science of Parkinson’s OFF
    Although the terms ON and OFF have been used to describe responses to levodopa therapy for more than 40 years, there is still no universally agreed-upon definition for the term OFF, and everyone with Parkinson’s experiences it differently. OFF periods occur when your medication isn’t working optimally, and your motor and non-motor symptoms return. ... read more
    Source: Davis Phinney FoundationPublished on 2020-11-16By Leigh Cocanougher
  • The Science of Parkinson’s OFF
    Although the terms ON and OFF have been used to describe responses to levodopa therapy for more than 40 years, there is still no universally agreed-upon definition for the term OFF, and everyone with Parkinson’s experiences it differently. OFF periods occur when your medication isn’t working optimally, and your motor and non-motor symptoms return. ... read more
    Source: Davis Phinney FoundationPublished on 2020-11-16By Leigh Cocanougher
  • How to Donate a Car (and Support People with Parkinson’s)
    Have a car, truck, boat, RV, or airplane that you’re ready to part with? Learn how and why Davis Phinney Foundation supporter Lauren Calkins donated two vehicles to the Foundation and how you can do the same. Lauren, What is your connection to Parkinson’s? Although I don’t have a personal connection to Parkinson’s, I have friends whose families are affected ... read more
    Source: Davis Phinney FoundationPublished on 2020-11-13By Leigh Cocanougher
  • How to Donate a Car (and Support People with Parkinson’s)
    Have a car, truck, boat, RV, or airplane that you’re ready to part with? Learn how and why Davis Phinney Foundation supporter Lauren Calkins donated two vehicles to the Foundation and how you can do the same. Lauren, What is your connection to Parkinson’s? Although I don’t have a personal connection to Parkinson’s, I have friends whose families are affected ... read more
    Source: Davis Phinney FoundationPublished on 2020-11-13By Leigh Cocanougher
  • How to Donate a Car (and Support People with Parkinson’s)
    Have a car, truck, boat, RV, or airplane that you’re ready to part with? Learn how and why Davis Phinney Foundation supporter Lauren Calkins donated two vehicles to the Foundation and how you can do the same. Lauren, What is your connection to Parkinson’s? Although I don’t have a personal connection to Parkinson’s, I have friends whose families are affected ... read more
    Source: Davis Phinney FoundationPublished on 2020-11-13By Leigh Cocanougher
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