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  • Fighting the stigma around Parkinson’s in Spain
    Alicia Campos, director of the Spanish Parkinson’s Federation, discusses how Covid-19 has impacted access to healthcare, the need to challenge misconceptions about the condition – and why it’s important to make the Parkinson’s community more visible in society The Spanish Parkinson’s Federation (FEP) is a non-profit organisation, with more than 20 years of experience working to improve the lives of ... read more
    Source: Parkinson’s Life EUPublished on 2020-09-24By admin
  • Ask the expert: How can clinical trials “slow, stop and reverse” Parkinson’s?
    What are clinical trials, why are they so important ­– and what does taking part involve? We talk to Dr Simon Stott and Helen Matthews from The Cure Parkinson’s Trust about how clinical trials help researchers better understand Parkinson’s disease and what potential participants need to know Why are clinical trials important in Parkinson’s disease research? Helen Matthews, deputy CEO ... read more
    Source: Parkinson’s Life EUPublished on 2020-09-24By admin
  • New tool could support “faster diagnosis” of Parkinson’s disease psychosis
    A new screening tool has been developed to support the early diagnosis of Parkinson’s disease psychosis – a symptom of the condition that is often misdiagnosed. Created by Canadian senior care software company, PointClickCare and membership organisation, the American Society of Consultant Pharmacists (ASCP), the platform asks questions on topics like hallucinations and delusions. Healthcare workers can then review the ... read more
    Source: Parkinson’s Life EUPublished on 2020-09-24By admin
  • When Life Gives You Parkinson’s Podcast Returns for Season 3, Parkinson Canada back as presenting partner
    Parkinson Canada is a proud presenting partner of the When Life Gives You Parkinson’s Podcast hosted by Larry Gifford. The podcast, now entering Season 3, is an always honest and sometimes humourous first person perspective on living with Parkinson’s from the point of view of its host, who was diagnosed with Parkinson’s at age 45 in 2017. The authentic, frank ... read more
    Source: Parkinson CanadaPublished on 2020-09-23By ansunyan
  • The Benefits of Visual and Auditory Cueing for Overcoming Freezing of Gait in Parkinson’s
    Written by Jessica Chellsen, PT, DPT, CSCS; Photo: Sidney Collin and Jack, a veteran Sidney worked with to create her first prototype of NexStride. It’s always necessary for people living with Parkinson’s to lead an active lifestyle. It has become even more important to exercise in the last six months while staying safe during the pandemic. So, how do you ... read more
    Source: Davis Phinney FoundationPublished on 2020-09-23By Melani Dizon
  • Prasinezumab shows signs of slowing motor symptom decline in early stage Parkinson’s
    A protein called alpha-synuclein builds up in the brains of people with Parkinson's. This accumulation is believed to play a role in the progressive nature of Parkinson's. Biotech companies have been developing treatments that can remove excess alpha-synuclein, in the hope of slowing/stopping the progression of Parkinson's. One type of treatment being developed is called immunotherapy. Immunotherapy involves artificially boosting ... read more
    Source: The Cure Parkinson’s TrustPublished on 2020-09-22
  • A Primer on Pain and Parkinson’s
    Introduction Studies show that between 60 and 83% of people with Parkinson’s report experiencing pain, and chronic pain is twice as common in people living with Parkinson’s than it is in those without Parkinson’s. Several different types of pain are associated with Parkinson’s, and effective management requires coordination with your care team and implementation of pharma- and non-pharmacological treatments. In ... read more
    Source: Davis Phinney FoundationPublished on 2020-09-21By Leigh Cocanougher
  • Melissa Tafoya Empowers People with Parkinson’s to Live Well
    If you’ve ever thought, “I’d love to do something, but I just don’t know what or where to start”, consider taking a few ideas from Melissa Tafoya’s playbook. Melissa is, among other things, a Rock Steady Boxing affiliate owner in Sacramento who is rallying people together and creating a powerful community of advocates who are doing their part to bring ... read more
    Source: Davis Phinney FoundationPublished on 2020-09-18By Melani Dizon
  • MacLean’s: If You Live with Parkinson’s Disease, You are Not Alone
    The following post appeared in a special insert to MacLean’s magazine, published on September 17, 2020. Nobody should have to navigate Parkinson’s disease alone. Blake Bell shares his journey with Parkinson’s, from diagnosis to how he thrives today. Receiving a diagnosis of Parkinson’s disease is tough. I remember when I went to my doctor and he told me, “You ... read more
    Source: Parkinson CanadaPublished on 2020-09-17By ansunyan
  • MacLean’s: If You Live with Parkinson’s Disease, You are Not Alone
    The following post appeared in a special insert to MacLean’s magazine, published on September 17, 2020. Nobody should have to navigate Parkinson’s disease alone. Blake Bell shares his journey with Parkinson’s, from diagnosis to how he thrives today. Receiving a diagnosis of Parkinson’s disease is tough. I remember when I went to my doctor and he told me, “You ... read more
    Source: Parkinson CanadaPublished on 2020-09-17By ansunyan
  • How to Work Full Time & Live Well with Parkinson’s
    One of the most common challenges people with Parkinson’s face is balancing treatment with everyday activities and responsibilities. Exercising, going to medical appointments, attending support groups, focusing on your mental health, and all the other necessities that help you live well with Parkinson’s require a lot of time and ... read more
    Source: Davis Phinney FoundationPublished on 2020-09-17By Leigh Cocanougher
  • Pro cyclist to non-profit founder: Davis Phinney on life with Parkinson’s
    Retired professional cyclist Davis Phinney discusses his Parkinson’s journey ­– from coming to terms with his diagnosis to supporting others in the community through his dedicated foundation Tell us about your cycling career. I started bike racing after witnessing a race in my hometown of Boulder, in Colorado, US. I was enthralled as the riders flew past – just inches ... read more
    Source: Parkinson’s Life EUPublished on 2020-09-17By admin
  • Parkinson’s campaigners cycle across Germany
    The coronavirus crisis meant that Parkinson’s campaigners in Germany had to change their plans for an awareness-raising ‘Great Ride’ bike tour across Europe to a ‘Very Little Great River Rhine Ride’ across the country – but thanks to strong team spirit and an “inspiring” group of people, the scaled-back event was a success A team of 20 experts, authors, artists ... read more
    Source: Parkinson’s Life EUPublished on 2020-09-17By admin
  • Has Covid-19 impacted access to Parkinson’s medication?
    New research has found that the coronavirus pandemic has affected access to medication for people living with Parkinson’s disease. The sub-study used information from a survey conducted by the International Parkinson and Movement Disorder Society. The results from 346 participants showed that 22.8% of high-income and 88.9% of low-income countries’ respondents agreed that the coronavirus crisis had impacted people’s access ... read more
    Source: Parkinson’s Life EUPublished on 2020-09-17By admin
  • The PD-STAT/Simvastatin study results
    In 2012, an international committee of Parkinson's experts brought together by the Cure Parkinson's Trust prioritised the simvastatin for clinical evaluation in Parkinson's. The International Linked Clinical Trials (iLCT) committee believed that there was considerable supporting evidence indicating that this widely used medication may be neuroprotective and could have disease modifying potential in Parkinson's. And since that meeting, more supporting ... read more
    Source: The Cure Parkinson’s TrustPublished on 2020-09-15
  • Cure3 Exhibition raises £1 million for The Cure Parkinson’s Trust
    On 5 September The Cure Parkinson’s Trust (CPT) launched the 3rd edition of Cure3, an acclaimed selling exhibition devised by Artwise Curators and kindly hosted  by Bonhams, London, to raise funds and awareness of CPT’s research into a cure for Parkinson’s. Early results from Cure3 2020 confirm that this unique selling event has now raised over £1m for The Cure ... read more
    Source: The Cure Parkinson’s TrustPublished on 2020-09-15
  • What You Need to Know about Cycling with Parkinson’s
    So, you want to ride a bike? That’s fabulousWe’re behind you all the wayBut we also want to make sure you stay safe and healthy while doing so. So, whether you’re about to take your first or fiftieth ride since your Parkinson’s diagnosis, here’s what you need to know.  #1 ... read more
    Source: Davis Phinney FoundationPublished on 2020-09-15By Melani Dizon
  • Formularies, Insurance, and Parkinson’s 
    Navigating health insurance is challenging even for people in the best of health, but when you need a variety of medications to treat your motor and non-motor Parkinson’s symptoms, it can feel even more overwhelmingHaving a basic understanding of how insurance companies cover prescription medications, though, can help you get the care you need. Here, we’ll explore how formularies work, and we’ll share information about how your ... read more
    Source: Davis Phinney FoundationPublished on 2020-09-11By Leigh Cocanougher
  • Parkinson Canada and McKesson Canada to Bring Personal Touch to SuperWalk Supporters
    TORONTO, September 11, 2020 – This year marks the 30th anniversary of Parkinson Canada SuperWalk, an annual event that allows thousands of Canadians to come together and walk in support of people living with Parkinson’s disease. Due to the new social and fundraising landscape shaped by Covid-19, the 30th anniversary will be different this year. Since the campaign launched in ... read more
    Source: Parkinson CanadaPublished on 2020-09-11By ansunyan
  • Parkinson Canada and McKesson Canada to Bring Personal Touch to SuperWalk Supporters
    TORONTO, September 11, 2020 – This year marks the 30th anniversary of Parkinson Canada SuperWalk, an annual event that allows thousands of Canadians to come together and walk in support of people living with Parkinson’s disease. Due to the new social and fundraising landscape shaped by Covid-19, the 30th anniversary will be different this year. Since the campaign launched in ... read more
    Source: Parkinson CanadaPublished on 2020-09-11By ansunyan
  • Cutting-edge technologies that could treat Parkinson’s
    From vibrating socks to a wearable airbag – find out about three innovative new technologies, supported by the Michael J Fox Foundation, which could help ease the symptoms of Parkinson’s “Today, there are Parkinson’s medications that can treat some symptoms of the condition – but some of the most troublesome parts of the condition such as walking problems don’t respond well ... read more
    Source: Parkinson’s Life EUPublished on 2020-09-10By admin
  • Brazilian dance could improve mobility in people with Parkinson’s, study finds
    Researchers at the Federal University of Rio Grande do Sul in Brazil compared participants in a 12-week programme, inspired by samba and forró dances, with those in a walking exercise programme to measure improvement in their functional mobility and gait. The 18 participants had an average age of 68.6 and had all been diagnosed with Parkinson’s over a year ago. ... read more
    Source: Parkinson’s Life EUPublished on 2020-09-10By admin
  • Alex Green Runs 102 Miles for Parkinson’s Research!
    On the weekend of the 4 and 5 September, The Cure Parkinson’s Trust (CPT) supporter Alex Green took on the fantastic challenge of running 102 miles of the Cotswold Way raising vital funds and awareness of our pioneering Parkinson’s research.Alex decided to take on this amazing challenge in memory of his Nan, who had Parkinson’s. He said:‘As far back as ... read more
    Source: The Cure Parkinson’s TrustPublished on 2020-09-10
  • [Video] Parkinson’s Disease Psychosis with Dr. Christopher Goetz
    Parkinson’s disease psychosis is a non-motor symptom of Parkinson’s that causes people to experience hallucinations and/or delusions. Approximately 50% of all people living with Parkinson’s will experience some form of hallucinations or delusions, and the longer one lives with Parkinson’s, the greater the likelihood they’ll experience them.  Here are some of the questions that were answered during the webinar: ... read more
    Source: Davis Phinney FoundationPublished on 2020-09-09By Melani Dizon
  • Using Music to Heal and Live Well with Parkinson’s
    There’s no denying that the isolation from shelter-in-place orders that have hit some of our communities has disrupted daily life, including our access to healthcare, social activities, and exercise. This has impacted our Parkinson’s community significantly, contributing to an increase in motor- and non-motor symptoms.   As we move forward in this hopefully temporary and short-lived new ... read more
    Source: Davis Phinney FoundationPublished on 2020-09-09By Melani Dizon
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