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  • Ask the expert: Preparing for end of life
    In the latest in our ‘Ask the expert’ series, Estonia-based neurologist Dr Pille Taba discusses how people can prepare for palliative care – and why she thinks a multidisciplinary approach to treatment is even more crucial near the end of life What is palliative care? Palliative care is defined by the World Health Organization as an approach that improves the ... read more
    Source: Parkinson’s Life EUPublished on 2021-06-10By admin
  • Could virtual studies support Parkinson’s disease research?
    Parkinson’s research is “hampered by inefficient recruitment and burdensome in-person assessments”, according to researchers in the US and Canada. But could virtual research have the potential to help solve some of these problems? Recruiting 203 participants from Fox Insight – an online clinical study sponsored by The Michael J Fox Foundation – the team assessed the validity of the participants’ self-reported ... read more
    Source: Parkinson’s Life EUPublished on 2021-06-10By admin
  • “Exercise is important – but so is exercising the mind and soul”
    After Trevor Woollard was diagnosed with Parkinson’s disease 10 years ago, aged 38, he began to feel “increasing creative urges” – despite having “no artistic background or skills”. This ultimately led him to set up non-profit Parkinson’s Art to support creative projects in the community. He shares the inspiration behind the organisation, and tells us why he’s “blown away” by ... read more
    Source: Parkinson’s Life EUPublished on 2021-06-10By admin
  • “Parkinson’s Shmarkinsons”: A New Parkinson’s Image
    Bonnie Clancy is a PWA: Person with Attitude. She’s also a PWP, but that’s backseat to her being a PWA!  Bonnie’s modus operandi in life has always been to make things happen.  She was a private trainer at an exercise studio she owned for 10 years.  Health, exercise and fitness has always been a way of life for her.  She ... read more
    Source: World Parkinson CongressPublished on 2021-06-09By Lissa Kapust, LICSW
  • Watch Video: Expert Q&A: How to Stay Consistent with Exercise
    Thank you for joining us! Below is the full video from the Expert Q&A: How to Stay Consistent with Exercise on June 8, 2021. Thank you to our sponsors, Amneal and Kyowa Kirin, and to all of the generous donations that help support BGF programs. WATCH VIDEO The post Watch Video: Expert Q&A: How to Stay Consistent ... read more
    Source: Brian Grant FoundationPublished on 2021-06-08By Iris
  • Impaired Balance and Falls in People with Parkinson’s Disease
    Balance Impairment and Falls in Parkinson’s Disease One of the most challenging symptoms of Parkinson’s disease (PD) that fundamentally affects quality of life is balance impairment that can lead to falls. Falls are one of the major causes of emergency room visits and hospitalizations for people with PD, so finding ways to prevent as many falls as possible is a ... read more
    Source: American Parkinson Disease AssociationPublished on 2021-06-08By Dr. Rebecca Gilbert
  • 5 tips for staying safe in the sun
    Parkinson’s increases the risk for melanoma, the deadliest type of skin cancer. Learn how to protect yourself. Finally! The long, sunny days of summer are here. It’s prime time for outdoor activities: biking and walking, strolling local festivals, and cooling off at the beach or pool. But the common denominator among all these activities is sun ... read more
    Source: Brian Grant FoundationPublished on 2021-06-06By Katrina Kahl
  • Are You an Advocate?
    If you are in England, you might be an advocate if…  you are a solicitor with additional qualifications that allow you to argue cases in the highest courts. An English advocate is roughly equivalent to an American attorney who is qualified to argue in front of the Supreme Court. Just to keep things confusing, there are also lawyers and barristers ... read more
    Source: World Parkinson CongressPublished on 2021-06-03By A.C. Woolnough
  • Getting involved with Parkinson Canada SuperWalk was a part of my healing: Blake Bell’s reflections
    Blake Bell was diagnosed with Parkinson’s at the age of 49. He recalls that his neurologist took three minutes to examine him and delivered the words that rocked his world: “I’m sorry to say, you have Parkinson’s.” “After the shock of the diagnosis, I went into denial,” Blake says. “I hid from the disease, trying very hard not to think ... read more
    Source: Parkinson CanadaPublished on 2021-06-03By ansunyan
  • “Not one of my friends realised you could get Parkinson’s disease so young”
    When UK childrenswear designer Genna Douglas was diagnosed with Parkinson’s disease at the age of 34, she didn’t know anything about the condition. Five years later, she has created a new range of t-shirts and tote bags for clothing retailer Next to help raise awareness and provide vital support for charity Parkinson’s UK Tell us about your experience of being ... read more
    Source: Parkinson’s Life EUPublished on 2021-06-03By admin
  • Gait and tremor may be the best early predictors of Parkinson’s disease
    Gait and tremor may be the most identifiable early signs of Parkinson’s disease, according to researchers from the US, France and Germany. The researchers analysed data from two large health-record databases, including an insurance company’s de-identified administrative claims. Selecting 8,382 participants with Parkinson’s disease, the scientists evaluated individual occurrences of reported symptoms over time – and how these corresponded to ... read more
    Source: Parkinson’s Life EUPublished on 2021-06-03By admin
  • 7 athletes in the Parkinson’s disease community
    How much do you know about sportspeople in the Parkinson’s community? From record-breaking squash players to cycling champions, we profile seven athletes, their achievements – and their connections to the condition Brian Grant As a 12-year veteran of the National Basketball Association, Brian Grant was known for his tough on-court play. A stellar college career was followed by stints at ... read more
    Source: Parkinson’s Life EUPublished on 2021-06-03By admin
  • Exercise for Parkinson’s Virtual Conference for Professionals
    Join us for our first virtual conference for exercise instructors and rehabilitation specialists to learn about Parkinson’s exercise research and activities that can help manage symptoms of the disease. The conference from 8:30 am-12:30 pm PST is free for all participants. The conference presenters are:   Parkinson’s Exercise Guidelines with Miriam Rafferty, PT, DPT, PhD Miriam Rafferty, PT, DPT, PhD ... read more
    Source: Brian Grant FoundationPublished on 2021-06-01By Iris
  • Preventing the Accumulation of alpha-synuclein: An Interview with ADPA Researcher, Dr. April Darling
    Meet Dr. April Darling, an APDA-funded researcher studying methods to reduce alpha-synuclein in the brains of people with Parkinson’s disease.
    April Darling, PhDOur A Closer Look blog is designed to educate, inform, and inspire you through a variety of topics and insights about Parkinson’s disease (PD). One way we do that is through our Interview with APDA Researchers series, as a ... read more
    Source: American Parkinson Disease AssociationPublished on 2021-06-01By Dr. Rebecca Gilbert
  • BGF Bingo Night
    Kids of Parkinson’s invites you and your family members to take part in this free online bingo fun! Tuesday, June 296-7 pm PDTVia Zoom Kids of Parkinson’s connects and supports people who have a parent with Parkinson’s. This event is a casual way to connect and play with your parent and family online. There will be a short introduction, ... read more
    Source: Brian Grant FoundationPublished on 2021-05-27By Iris
  • Exercise and Rehabilitation to Move and Live Well
    The Parkinson’s disease rehabilitation research group at the University of Sydney led by Dr Natalie Allen and Dr Serene Paul aims to develop, evaluate and implement effective physical activity and exercise interventions for people with Parkinson’s disease, in order to improve their physical function and quality of life. Our focus is on developing sustainable, cost-effective and accessible interventions that are ... read more
    Source: World Parkinson CongressPublished on 2021-05-27By Serene Paul, PhD
  • Jeremy Paxman confirms he is living with Parkinson’s disease
    UK journalist, broadcaster and ‘University Challenge’ quizmaster Jeremy Paxman has confirmed he is living with Parkinson’s disease. We find out more about his experience of diagnosis – and how fans, fellow broadcasters and journalists have responded to the news When UK broadcaster Jeremy Paxman experienced a fall that left him with broken ribs earlier this year, he blamed his dog, ... read more
    Source: Parkinson’s Life EUPublished on 2021-05-27By admin
  • “We do ourselves an injustice by just suffering through it”
    Ireland-based dietitian Richelle Flanagan once hid her Parkinson’s disease for fear of judgment, but when she connected with a community of other women with the condition, she felt empowered to speak up. Now a member of several Parkinson’s organisations, she is passionate about the importance of campaigning – and says raising awareness of the condition can benefit “everyone” I ... read more
    Source: Parkinson’s Life EUPublished on 2021-05-27By admin
  • Air pollution may be linked to greater risk of Parkinson’s disease
    A study from researchers in South Korea suggests that exposure to nitrogen dioxide (NO2), a gas associated with car and power plant emissions, could increase the risk of Parkinson’s disease. Using Korean National Health Insurance Service data, the researchers identified 78,830 participants above age 40 who had lived in Seoul during a certain time frame – and had not been ... read more
    Source: Parkinson’s Life EUPublished on 2021-05-27By admin
  • Practical Tips on Living Well with Parkinson’s Disease from our PD Community
    Improve your Routine with Helpful Advice & Tips from People with PD & Care Partners Last month, I hosted Dr. Joseph Friedman, a movement disorders neurologist and the Medical Director of the APDA Rhode Island Chapter and Information & Referral Center, for a conversation about small changes in your routine that can have a big impact on quality of life, ... read more
    Source: American Parkinson Disease AssociationPublished on 2021-05-25By Dr. Rebecca Gilbert
  • Kale and Apple Salad
    Chef Kenny James, personal chef to some of the Portland Trail Blazers greats, is back to share a quick and seasonal salad perfect as a gameday side dish or a healthy lunch. Kale is the starting position of this dish and contains antioxidants and fiber that help manage the symptoms of Parkinson’s. Instructions Wash and chop the kale ... read more
    Source: Brian Grant FoundationPublished on 2021-05-24By Iris
  • Shame and Stigma of Living with Parkinson’s
    Being diagnosed with Parkinson’s disease at age 44 came as quite a shock. I was devastated and filled with dread. My only association to Parkinson’s at that point was an image of a Rabbi from my childhood who stood stooped over, hands shaking and a shuffle walk. I soon learned the term YOPD or Young Onset Parkinson’s Disease. And, yes, ... read more
    Source: World Parkinson CongressPublished on 2021-05-24By Miriam Bram
  • A researcher’s perspective on the future of Parkinson’s research
    At the end of March, Parkinson Canada hosted a two-day discussion on the current and future states of Parkinson’s research. The meetings brought together clinicians, researchers, people living with Parkinson’s and other Parkinson’s organizations, with the aim to achieve the following: Identify current and emerging trends in basic and clinical Parkinson’s research Explore strategies to leverage our research investments and ... read more
    Source: Parkinson CanadaPublished on 2021-05-22By ansunyan
  • Expert Q&A: Pain and Parkinson’s
    Join our July Expert Q&A with Dr. Bethany Tennant to learn about nutrients that can support pain and inflammation to help improve your Parkinson’s symptoms. On Tuesday, July 13, Dr. Bethany Tennant, ND, CNS, LMT will talk specifically about what foods to incorporate into your diet to help improve your Parkinson’s symptoms. Dr. Tennant will be available to take ... read more
    Source: Brian Grant FoundationPublished on 2021-05-20By Iris
  • “This is a condition you have to learn to live with”
    Two people living with ‘advanced’ Parkinson’s disease discuss how the condition affects their day-to-day life – and why it’s important to stay in tune with changing symptoms and seek support Colin Cheesman was diagnosed with Parkinson’s disease two decades ago but lived an “absolutely normal, active life” until about two years ago. It was only then that the former solicitor noticed ... read more
    Source: Parkinson’s Life EUPublished on 2021-05-20By admin
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