June 10, 2019 - Parkinson's Weekly Update

June 10, 2019 – Parkinson’s Weekly Update

World Parkinson Congress 2019 Highlights: Remembering Tom Isaacs; Advice to caregivers: "Be a bit more of a selfish pig"; triple amputee with PD exclaims "If I can do it, you can do it. Get out and go!"; PD diet & nutrition study analyzes real world diet of people with PD to determine what helps and what doesn't; “Living Well, Running Hard: Lessons Learned from Living with Parkinson’s Disease”; plus a weekly roundup of Parkinson's related news ...
try and be a bit more of a selfish pig

WPC2019 : Lyndsay Isaacs – PD caregiver breaking points and lessons from a selfish pig.

Lyndsay Isaacs speech was one of the highlights of the WPC2019 opening session.  A large portion of the WPC2019 opening, not just Lyndsay’s portion, was dedicated to remembering her husband Tom Isaacs, co-founder of UK-based charity Cure Parkinson’s, who passed away since the last WPC. Obviously, any discussion of Tom Isaacs is going to be a mix of sorrow at his passing and smiles recalling memories. But I found her personal story as a caregiver to be extremely insightful, as she touched on her struggles, reaching her breaking point, and finding a way forward. When she was struggling, she found ...
March 3, 2019 - Parkinson's Weekly Update

March 3, 2019 – Parkinson’s Weekly Update

This is a recap of the most interesting news and discussions relating to Parkinson’s Disease this past week. There was a lot of talk last week about the results of the Parkinson’s Disease trial in the UK involving a surgery that implanted tubes in patients’ heads that could be used post-surgery to deliver GDNF and would hopefully regenerate dying dopamine brain cells. On, the other side of the pond, the FDA is allowing a Fecal Microbiota Transplantation (yes, we’re talking about poop transplants) study to include Parkinson’s. Meanwhile in California, a stem cell PD trial moves closer to FDA approval. And ...