Jon Pawelkop – 50 State Rock Steady Boxing Tour

Jon Pawelkop – 50 State Rock Steady Boxing Tour

Congratulations to Jon Pawelkop, who just completed his goal of visiting a Rock Steady Boxing affiliate in every one of the 50 states. Jon believes in the Rock Steady program and wanted to spread the word about how RSB is changing the lives of thousands of people with Parkinson’s. Read about his journey via his Facebook group: https://www.facebook.com/groups/625146757836705/ ...
June 23, 2019 - Parkinson's Weekly Update

June 23, 2019 – Parkinson’s Weekly Update

This Week's Highlights: Is Laughter Still The Best Medicine - Carbidopa/Laughodopa Therapy; Best Blogs from World Parkinson Congress 2019; Gut bacteria ate my Parkinson's meds; magnetic button adapters; Performing DBS while you sleep (the patient that is, not the surgeon); what is the glymphatic system; somatic genetic mutations; PD Summer School; 50-state Rock Steady Boxing Tour; Ping Pong Parkinson; What's in the pipeline for PD; Hype or Hope for treatments in the news; and more ...
June 16, 2019 - Parkinson's Weekly Update

June 16, 2019 – Parkinson’s Weekly Update

Weekly Update Highlights: Parkinson's Disease and the nagging spouse; Parkinson's Si Buko (the must-read inspiring effort in Uganda to educate that PD is not witchcraft); Generic Carbidopa/Levodopa Extended Release; Gut Bacteria Interferes with Parkinson's Disease Medication; PD research updates; diet and nutrition for Parkinson's; PD exercise programs in the news; and more ...
June 10, 2019 - Parkinson's Weekly Update

June 10, 2019 – Parkinson’s Weekly Update

World Parkinson Congress 2019 Highlights: Remembering Tom Isaacs; Advice to caregivers: "Be a bit more of a selfish pig"; triple amputee with PD exclaims "If I can do it, you can do it. Get out and go!"; PD diet & nutrition study analyzes real world diet of people with PD to determine what helps and what doesn't; “Living Well, Running Hard: Lessons Learned from Living with Parkinson’s Disease”; plus a weekly roundup of Parkinson's related news ...
June 2, 2019 - Parkinson's Weekly Update

June 2, 2019 – Parkinson’s Weekly Update

Weekly Update - Highlights include: World Parkinson Congress 2019 heads to Kyoto, Japan for the epic battle of "Parkinson's Disease vs. Chopsticks - Will We Go Home Hungry?"; focused ultrasound and PD; NIH awards $3 million grant for 5-year PD exercise study; deteriorating financial skills, dementia and brain plaques; hockey pucks for Parkinson's; inspiring people with PD; how DBS changes lives for the better; does PD cause low testosterone or is it something else; PD exercise programs in the news and more ...
May 19, 2019 - Parkinson's Weekly Update

May 19, 2019 – Parkinson’s Weekly Update

Weekly Update - Highlights include: On-line Parkinson’s Exercise programs; another clinical trial treatment can't beat the placebo; feral pigs vs. placebo; dancing with your dog; Parkinson’s choruses sing for their supper; What I Wish I Knew, But Am Glad I Didn’t Know (When I Was Diagnosed With Parkinson’s); and more ...
May 11, 2019 - Parkinson's Weekly Update

May 11, 2019 – Parkinson’s Weekly Update

Weekly Update - Highlights include: Mayo Clinic researchers explore the relationship between low levels of Vitamin B-12 and Parkinson’s; appendix removal might or might not affect Parkinson’s risk; monkey butt research finds PD related proteins linked to inflammation; impulse control disorders and PD; Pharmaceutical News from the Annual Meeting of the American Academy of Neurology; technology targets freezing of gait; creating your own placebo effect; inspiring people with Parkinson's talk boxing, DBS and poetry; and more ...
Paula Caldwell - Rock Steady Boxer

Paula Caldwell – Rock Steady Boxer

Paula Caldwell was diagnosed with Parkinson’s 14 years ago. Now in her early 70’s, she was certified as a Rock Steady Boxing coach two years ago, and has helped bring the RSB program to a local boxing gym in a suburb of Youngstown, Ohio, to help others battle PD: https://www.wkbn.com/news/local-news/boardman-woman-fighting-parkinson-s-brings-new-training-program-to-local-gym/1974905438 Update: Another local TV station visits the gym: http://www.wfmj.com/story/40545558/boardman-woman-introduces-boxing-classes-to-punch-out-parkinsons ...
Ned Neuhaus - Rock Steady Boxer

Ned Neuhaus – Rock Steady Boxer

Ned Neuhaus was diagnosed with Parkinson’s 6 years ago, and decided to channel his effort toward helping others by bringing Rock Steady Boxing to his community in central Illinois. Local news visited Ned’s gym last week: https://hoiabc.com/news/peoria-news/2019/04/29/boxing-through-the-challenge-living-with-parkinsons-disease/ Ned talks about his journey accepting his Parkinson’s diagnosis on YouTube: ...
May 4, 2019 - Parkinson's Weekly Update

May 4, 2019 – Parkinson’s Weekly Update

Weekly Update - We start with why strength training should be a component of any exercise protocol for Parkinson's. Next, we find inspiration and life lessons from 6 individuals who challenge preconceived notions of Parkinson's Disease. In research news, after more than 10 years of study, a once promising drug candidate fizzles out; an interview with the doctor behind the spine tingling research featured last week; a biomarker that will bring a tear to your eye; the latest MJFox Foundation grants. Plus, we share some of our favorite updates from Parkinson's bloggers this week; Parkinson's exercise programs in the news; and ...
April 28, 2019 - Parkinson’s Weekly Update

April 28, 2019 – Parkinson’s Weekly Update

Weekly Update - Spine tingling implants help restore walking ability for housebound patients; young blood infusions aren’t just for vampires any more; brain implants decode and synthesize speech; a health insurer includes coverage for a Parkinson’s Boxing program; Deep Brain Stimulation info;  top Parkinson’s blogs; UK GDNF Trial Follow-up; Parkinson’s exercise programs in the news last week; and more ...
April 21, 2019 - Parkinson’s Weekly Update

April 21, 2019 – Parkinson’s Weekly Update

Major Tom to Ground Control ... this week’s report comes from  somewhere over the North Atlantic Ocean at an altitude of 36,000 feet, where we are currently testing air turbulence therapy for Parkinson’s Disease ... so apologies in advance for any and all typos. In an otherwise slow holiday week, University of Cambridge researchers are suggesting that an existing high blood pressure medication, felodipine, might be repurposed to treat Parkinson’s Disease. This study reminds me of another high blood pressure medication, isradipine, also a calcium channel blocker, which saw positive results in an animal model study 12 years ago. Since ...
April 13, 2019 - Parkinson’s Weekly Update

April 13, 2019 – Parkinson’s Weekly Update

Parkinson’s Disease features this week: World Parkinson’s Day awareness around the globe; boxing helps a husband get his wife back from Parkinson’s grip; bionic assistance for raising a middle finger as a PD salute; a young onset PD perspective on bucket lists; virtual reality training for balance; detecting early stage Parkinson’s with a selfie (and not just because the camera is shaking); people with Parkinson’s in the UK are tired of people thinking they are drunk; and more. Thursday, April 11 was World Parkinson’s Day 2019, a day on which various organizations try to draw public awareness to issues surrounding ...
Rock Steady Boxing helped a husband get his wife back from Parkinson's grip

Rock Steady Boxing helped a husband get his wife back from Parkinson’s grip

A great story out of Rock Steady Boxing Wasatch Front in Utah... Brandi Ballantyne was diagnosed with Parkinson’s Disease 6 years ago. It’s hard not to get choked up when her husband Paul tells how thanks to boxing he got his wife back from Parkinson's grip. She is now a Rock Steady Boxing coach leading classes to help others ...
April 6, 2019 - Parkinson's Weekly Update

April 6, 2019 – Parkinson’s Weekly Update

This is a recap of the most interesting news and discussions related to Parkinson’s Disease this past week. We start by trying to make sense of the latest news reports about Vitamin B-12 and hereditary Parkinson's. The research is very preliminary, but quite interesting when considered in conjunction with other recent studies. Next we ponder why researchers are giving fruit flies jet lag; see how PD progression can be measured with standard MRI equipment; learn why yelling at clouds may be a sign of a particular non-motor symptom of PD; watch local TV news stations participate in Parkinson's Disease Awareness ...