Living with Parkinson’s Videos

I haven't posted a video in a while, so thought I'd share something I've challenged myself to, as a shared experience for others with Parkinson's Disease.

"I am almost speechless" - Kolfinna Snæbjørg, Iceland. "This is a must-see" - Brian McElwain, USA. "I have never seen anything like this film" - Emma Stauffer, Switzerland. “Please spread this film” - Patrik Brundin, USA. There are no official figures. Estimates vary but 5 to 10% of those diagnosed with PD are under the age of 50. The condition known as YOPD (Young Onset Parkinson’s Disease) has separate symptoms and rare disease status. Many will live with the condition for decades – suffering because of the condition and through side effects of the treatments currently available. Causes maybe genetic, environmental, or a mix of factors. Its impact stretches far beyond the individual. There are no official figures, there are no official costs. If we did you may well see its impact on your tax bill. It’s something none of us can afford to ignore, and all of us are at risk of. Heather Kennedy is a young, vibrant writer, dancer and mother with Parkinson’s. How do people see her? Is it changing her as a person? What about the future?

Rhythm and flow in Parkinson’s Disease

Watch motivational speaker, Linda K Olson, deliver a keynote address at the Opening Ceremony of the World Parkinson Congress 2019 in Kyoto, Japan. "We Can Do This..Let's Get Out and Go".

Life remains good 11 years after Parkinson's diagnosis. Newly diagnosed will hopefully understand they control much of their future quality of life.

Musician Nenad Bach, born in Croatia, was diagnosed Parkinson's disease and currently uses table tennis as a way to reduce symptoms.

Deep Brain Stimulation: my PROS and CONS after 4 weeks.

A story of one man's battle against Parkinson's disease. A new Documentary film, Written and Directed by Alexander Tressor Music by Ben Haughton and Maestro Gary

Tom Isaacs died in May 2017. This film by incredible BBC documentary producer Jemima Harrison of Passionate Productions entitled “Tom in his own words” focuses on the extraordinary legacy Tom knew he had created. Our mission has become ever more urgent – and delivering Tom’s vision is our absolute priority. Please, if you use any of this video, seek permission from Passionate Productions.

Mitch Faile was diagnosed with Parkinson's Disease at an early age. But that didn't stop him from the pursuit of his dreams and helping to bring worldwide awareness to this life changing affliction.

Wayne A. Gilbert is, among other things, a retired teacher and professor of English and of Educational Psychology. He was diagnosed with Parkinson’s in 2005 and has been writing about his experiences living with it ever since. He’s available for readings and performances. If you’re interested, contact him at magmapoet@comcast.net. To get resources and information on how to live well with Parkinson’s today, visit dpf.org.

Wayne A. Gilbert is, among other things, a retired teacher and professor of English and of Educational Psychology. He was diagnosed with Parkinson’s in 2005 and has been writing about his experiences living with it ever since. He’s available for readings and performances. If you’re interested, contact him at magmapoet@comcast.net. To get resources and information on how to live well with Parkinson’s today, visit dpf.org.

I have been reflecting on the past few years lately and realized things have changed so much …. six years ago this week (March 2013), I heard four words I was not prepared to hear: “You have Parkinson’s disease”. To say I handled it well from the beginning would be an overstatement. However, through the help and guidance of many, I eventually fully accepted my diagnosis and have transformed my focus in life. I couldn’t have imagined sharing this story a few years ago, I was not a person who was so public with my private thoughts. I now believe sharing my journey may, in some way, help someone who is where I was just a few years ago. Please share with anyone who you believe could benefit from hearing this.

WPC 2016 Video Competition Submission from Nan Little (USA) Learn more about the Video Competition at www.wpc2016.org/videocompetition. Ride "On" Time shows how fast pace cycling has mitigated my Parkinson's symptoms for the last 7 years, enabling me to climb mountains, ride thousands of miles and be engaged in research and outreach.

Check out the full interview. Great stuff!! This guy is incredible!!

Tim courageously show us what goes on within the mind of a nurse who is diagnosed with Parkinson’s in mid-life. Tim Hague Sr. is a registered nurse by day (pay check) and a professional speaker and writer the rest of the time (passion). He overcame the odds when he went from a diagnosis of Parkinson’s disease to — just three years later — becoming the inaugural winner of CTV’s The Amazing Race Canada. He believes that, like many others who suffer with a myriad of other ailments, we can live to our fullest when we choose to persevere. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at http://ted.com/tedx

This is my entry to the WPC 2019 Video Competition. I really do hope this music video brings a smirk or a smile to your face, that it makes you laugh and leaves you in a happy place. This track is all about about keeping a sense of humour (or even a sense of humor), despite having Parkinsons. It's about using laughter to fight Parkinsons. It's about laughing and staying positive while the world works to find a cure. It's about trying to see the funny side of Parkinsons too because if you look hard enough, you should find "something" to laugh at. It's about laughing when you feel like crying and smiling when you feel like sighing. If you don't feel like laughing then try to fake it till you make. You may be surprised how a forced smile can quickly turn into a real one. Better still, you may inspire someone else to laugh, or at least smile, if they catch you doing it. We all know that laughter is a great healer and it can be very contagious too. So do your best to laugh every day. Become infectious with laughter and try making someone else smile. And remember, to turn that frown upside-down.