World Parkinson Congress 2019 Video Competition

http://www.livshygiene.no/?p=342 This is one piece I have been wanting to share for a long time. Meet the late Tom Isaacs, a hard working visionary, a ground breaking activist and a wonderful person, severely affected by Parkinson's Disease.This interview with the Co-founder of The Cure Parkinson`s Trust is the fourth and last submission to the World Parkinson Congress 2019 Video Competition by Norwegian filmmaker and parkinson patient Anders M. Leines. "When I met Tom Isaacs in Stockholm in 2012 he was already my idol due to his achievements as a person with Parkinson building the foundation for patient centered research and care. He, Sara Riggare and Jon Stamford together with Toms wife Lyndsey and others attended "Scandmodis 2012" to promote their new initiative "Parkinsons Movement". My role was to make sure we came home with high quality interviews with the researchers that we could share with the growing community, while at the same time introduce ourselves as informed and engaged patients vs the professionals. Fortunately I was able to spend valuable time with Tom who generously shared from his experience of life with Parkinson's. Tom died on May 31st 2017. Parkinson's changed the direction of my life. Tom changed it again. I will always remember you.

My hand drawn sketches in this story help to tell my 9 year old daughter's perspective about my Parkinson's. The story is based on conversations with her and things she has both said and done over the past 3 years and is my interpretation. The red tulips (worldwide symbol of Parkinson's) grow from a bud to fully bloomed through the story and give hope. Music by www.bensound.com. WPC2019 entry

Inspired by my gymnast daughters I, Christine decided to try gymnastics to prevent my Parkinson's progressing. I worked on coordination, flexibility, balance and strength. My goal was to learn to handstand and with a lot of hard work, fear and even setbacks I surprised myself! Amatuer video for the World Parkinson's Congress, 2019. Comments sadly have been disabled but you could comment on my blog: My Blog: www.handstandforparkinsons.com #handstandforparkinsons #parkinsons #parkinsonsexercise #parkinson Family Photo: FaviBéjar - Fotografía Artística https://www.facebook.com/FaviBejarPhotography/

WPC 2019 Video Competition Entry

"Don't Give Up" is a message of hope and resilience dedicated to all of those who battle the non-motor "PD symptoms that you don't see", but that heavily impact quality of life. It is an invitation to look at a broader picture of what living with PD is, from the perspective of newly diagnosed and young onset PWPs who are determined to never give up.

Video Submission for 2019 World Parkinson Congress Kyoto, Japan

At the age of 7, Matt Eagles was diagnosed with Parkinson's disease, but that has never stopped him from achieving his goals and living life to the full. After undergoing Deep Brain Stimulation (DBS), Matt is now able to control his Parkinson's through an electric current that goes into his brain. "I've never at any point thought I've got Parkinson's so I can't do this." Matt Eagles Whether he is photographing Team GB at the 2012 Olympics for ESPNSoccernet, hiking up Loughrigg Fell, abseiling the Manchester Town Hall, or working as Head of Patient Engagement at the Havas Lynx Group, Matt inspires everyone he meets. This is Matt's story of living with Parkinson’s.

How Could this happen to me？

This is a tribute to the life of a very special man called Tom Isaacs, a true Parky Champion. His goal was to find a cure for Parkinson’s and he created 'The Cure Parkinson’s Trust' to help achieve this goal. He was an absolute inspiration to so many people both with and without Parkinson’s and that inspiration was global. I was lucky enough to have worked with Tom and to call him my friend. This tribute to Tom is made up of a mixture of clips derived from sources such as the World Parkinson Coalition as well as footage I filmed myself on behalf of 'The Cure Parkinson's Trust' and 'Parkinson's Movement'. Some clips are the bits that never made the final cut of the finished product, giving us a unique glance into the less serious and funnier side of Tom. A couple of the clips are of Tom's legendary performance at the closing ceremony of the WPC 2016 in Portland. A few of us were lucky enough to get a sneak preview performance at the Music and Movement Night the evening before. When Tom died, I thought what better way to celebrate his life than with music, something very close to his heart, so I wrote this song. I focused on memories that made me smile and laugh and I think that is reflected in the lyrics. Therefore I very pleased to present to you my dedication to Tom. Tom may not have achieved his goal in his lifetime but he has left us the tools to achieve it in ours. Let's do what we can to find a cure and make it happen. Thank you Tom. You were a Superstar! How can you help? https://www.cureparkinsons.org.uk/ Here are the lyrics. SHAKING THE STARS By Eros Bresolin For someone that walked on uncertain feet Each step you took landed so perfectly With such gravity and positivity Some silly moments too, but done so seriously People were drawn to you because you inspired them Half rock star, half hero, it allowed you to guide them Optimism was your super power And you showed them how to fly a million miles an hour Cause you shook the world and now you’re shaking the stars You shook the world and now you’re shaking the stars Yes you’re shaking the stars You shook the world and now you’re shaking the stars You shook the world and now you’re shaking the stars Yes you’re shaking the stars You had so many plans, so much to give We all thought that forever you would live Your glass half filled approach had us all impressed And you’d always joke how you spilt the rest Don’t worry about your ultimate goal You inspired enough people both young and old To fight the fight that you did begin You left your stamp on this world you were in Because you shook the world and now you’re shaking the stars You shook the world and now you’re shaking the stars Yes you’re shaking the stars You shook the world and now you’re shaking the stars You shook the world and now you’re shaking the stars Yes you’re shaking the stars Shake, shake, shaking Shaking the stars Shake, shake, shaking Shaking the stars Everybody enjoyed the songs you sang And what we would give to see you again To see you sing just one more song You shook the world and now you’re shaking the stars You shook the world and now you’re shaking the stars Yes you’re shaking the stars

For 5th WPC2019 Video Competition. 第5回ワールド・パーキンソン・コングレス　ビデオコンテスト参加作品「PD Cafe 〜始まりから今まで、そしてこれから〜」

submitted for World Parkinson Conference 2019 a film by Marc Vlemmix (dance) Rosan Chinnoe (film & Partner)

This story is told by different patients, who faced similar challenges along the progression of the Parkinson’s disease. Staying in the dark, not knowing the symptoms and treatment possibilities, condemns people to disability and social isolation, when knowledge and understanding of the disease by the patients and the public could make their lives better. The idea was initiated by Dr. Cholpon Shambetova, aiming to raise public awareness about the disease, as a first step in establishment of first ever-created association for Parkinson’s disease patients in Kyrgyzstan, where people with Parkinson’s disease have no access to treatment, healthcare resources are limited, and public knowledge of the disease is extremely low. The film was created by: Cholpon Shambetova Ilias Vadud Arstanbek Sargaldaev Talant Urgaziev Aigul Kubatova Patients: Feruza Akhmetova Bakyt Kamchibekov Evgeniy Zalunin Aitbu Jusubalieva